Author Archives for Emma Hallam

Thank you and Merry Christmas

December 17, 2020 1:39 pm Published by Comments Off on Thank you and Merry Christmas

As we near the end of 2020, we’ve been reflecting on what’s been achieved together.  We started the year with huge plans, with the momentum that we had established we were sure that this would be our most successful year yet! ...


Alex wins an award

December 17, 2020 9:02 am Published by Comments Off on Alex wins an award

We are so proud of our award winners at The Leicestershire Community Champions Awards put together by the Furnley House Foundation. ...


Un-Masquerade Celebration

December 14, 2020 3:00 pm Published by Comments Off on Un-Masquerade Celebration

THANK YOU to everyone that supported our #unmasquerade celebration, because of this year we are all ‘screened out’ and so we were not sure how it would be received, but you didn’t let us down....


The Big Give Christmas Challenge

December 14, 2020 1:14 pm Published by Comments Off on The Big Give Christmas Challenge

We would like to say a HUGE thank you to everyone who supported our Big Give Christmas Campaign. We managed to raise just over £5,500 including gift aid which is fantastic....


Online Charity Quiz Raises £707 For Alex’s Wish

December 10, 2020 12:57 pm Published by Comments Off on Online Charity Quiz Raises £707 For Alex’s Wish

An online charity quiz organised by Vehicle Consulting, Leicester has raised over £700 for local charity Alex’s Wish. Jayne Stephenson of Vehicle Consulting said, “We first heard about Alex’s Wish two years ago when I joined a networking group with Emma – the founder of Alex’s Wish and Mum to Alex, after whom the charity is named. ...


ActionCOACH Ed Cooper Launches Book Club… With a Heart

December 10, 2020 12:28 pm Published by Comments Off on ActionCOACH Ed Cooper Launches Book Club… With a Heart

Local business coach, Ed Cooper, has launched a BookCLUB with a difference! Says Ed, “One of the commitments I made to myself for 2020 is to help business owners in my local community gain the skills, confidence and beliefs that they need to get their already GOOD businesses to GREAT! ...


Alex’s Wish Hug in a Mug

December 8, 2020 12:38 pm Published by Comments Off on Alex’s Wish Hug in a Mug

Alex’s Wish have had these uniquely designed mugs by Pure Table Top that will be perfect for gifts for friends, family....


Embracing CSR….

November 5, 2020 10:50 am Published by Comments Off on Embracing CSR….

At this year’s Leicester Business Festival, Emma Hallam, Founder of Alex’s Wish spoke alongside Stefan Fura, MD of Furnley House about how effective CSR can truly bring great value both of organisations (small, medium and large alike), charities like Alex’s Wish and the local community....


Testosterone shows improvements in Duchenne care…

October 26, 2020 1:11 pm Published by Comments Off on Testosterone shows improvements in Duchenne care…

Alex is taking testosterone supplements, so this is such great news to hear… This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology....


Update on Solid Ignite DMD

October 2, 2020 5:34 pm Published by Comments Off on Update on Solid Ignite DMD

We are absolutely delighted to hear the news that the FDA has lifted the SOLID IGNITE DMD Phase 1/11 Gene Therapy Clinical Trial which had been put on hold due to a serious adverse event with a child taking part in the trial....


Emma’s Summer Blog

September 29, 2020 9:10 am Published by Comments Off on Emma’s Summer Blog

Well what a crazy year it’s been for us all, but pleased to finally have Alex and Isla back at school again learning and seeing their friends – for one thing it means I can actually get my head down and do lots of work on the charity, but also keep my fridge stocked up for a while… oh and finally get my nails and hair done....


Morgan Sullivan Memorial Fishing Match 2020

September 24, 2020 10:36 am Published by Comments Off on Morgan Sullivan Memorial Fishing Match 2020

In June the annual Morgan Sullivan Memorial Fishing Match had to be postponed due to Covid. However they did manage to put together a last minute event last weekend, there were 25 people fishing and a raffle of fishing prizes and they managed to raise £600 for Alex’s Wish....


Coast to Coast Ride Raises over £10,000!!

September 17, 2020 1:12 pm Published by Comments Off on Coast to Coast Ride Raises over £10,000!!

With many charity fundraisers cancelled due to COVID-19 one group of intrepid cyclists have just completed a Coast to Coast cycle ride for Alex’s Wish....


Third Sector Awards

September 7, 2020 11:41 am Published by Comments Off on Third Sector Awards

Wow, wow, wow!!! We are over the moon that Alex’s Wish – Cure Duchenne has been short listed at this year’s national Third Sector Awards in the ‘Small Charity, Big Achiever’ category… simply amazing!!...


Wellbeing4Life organises a 12-hour Wellbeing-a-thon!

August 10, 2020 10:20 am Published by Comments Off on Wellbeing4Life organises a 12-hour Wellbeing-a-thon!

On Saturday, 26th September 2020 – the fabulous ladies Elain Crew and Sharon De Caestecker at Wellbeing4life are organising a 12-hour Wellbeing-a-thon to help raise money for Alex’s Wish This fabulous 12-hour event is aimed at everyone looking to improve their wellbeing, it’s designed to give you lots of wellbeing tips, healthy recipies and get you trying lots of different activities for just £20 donation to Alex’s Wish....


Action Coach in Hinckley supports Alex’s Wish through their Book Club

August 3, 2020 10:52 am Published by Comments Off on Action Coach in Hinckley supports Alex’s Wish through their Book Club

Ed Cooper is an Business Coach and one of the commitments he made to himself in 2020 is to help business owners in his local community to gain the skills, confidence and beliefs that they need to get their already GOOD businesses to GREAT! ...


Alex takes on My Ride London

July 31, 2020 10:54 am Published by Comments Off on Alex takes on My Ride London

Our very own Alex, and a team of friends will ride a combined total of 30km on 15 wheels in My Prudential RideLondon to raise money to find a cure for the disease he lives with....