December 13, 2024 3:29 pmPublished by Emma HallamComments Off on First Treatment for all patients with Duchenne approved
This week we received THE BEST NEWS the first treatment for EVERYONE living with Duchenne has been approved!!!! NICE, the National Institute of Clinical Excellence in England and Wales announced that Agamree (also known as Vamorolone) a dissociative steroid, has been approved for ALL patients with Duchenne Muscular Dystrophy....
November 19, 2024 2:03 pmPublished by Emma HallamComments Off on Early Access Programme for Givinostat
We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...
November 12, 2024 8:24 amPublished by Emma HallamComments Off on An incredible result for our ‘back to the 80’s rewind’ ball…
Wow – what an incredible evening, honestly we loved it so much!! We arrived early Saturday morning at our hosts Winstanley House to set up, decorate and get everything in place to welcome our amazing guests, and as the day went on the excitement grew – the decorations, AV, the balloon arch…….and...
October 15, 2024 8:48 amPublished by Emma HallamComments Off on Autumn Lunch 2024
What an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months....
September 30, 2024 2:34 pmPublished by Emma HallamComments Off on Abseil Challenge 2024
Six incredible people decided to take on the Northampton Lift Tower and a 418 foot abseil for Alex’s Wish. We were lucky with the weather, although some of the six may dispute that, secretly hoping it may be cancelled!!...
September 25, 2024 2:02 pmPublished by Emma HallamComments Off on Alex’s Wish Golf Day 2024
A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £11,500 – amazing!!...
September 3, 2024 3:04 pmPublished by Emma HallamComments Off on Alex’s Wish teams up with NEXT to help support innovative research grant
We are thrilled to announce a new collaboration with leading retailer NEXT Plc to coincide with World Duchenne Awareness Day (WDAD) on Saturday 7 September 2024....
August 20, 2024 3:27 pmPublished by Emma HallamComments Off on Taking to the skies for Alex’s Wish
Last Sunday saw 9 amazing Alex’s Wish supporters taking part in an epic Wing Walk, each of them overcoming their fears to take on this incredible challenge!...
August 20, 2024 10:32 amPublished by Emma HallamComments Off on HOT PROPERTY EVENT RAISES £36,000
ORGANISERS of annual charity music event Nottingham Hot Property have revealed a final figure of £36,000 as the money raised at its recent 20th anniversary extravaganza Alex’s Wish....
July 24, 2024 9:10 amPublished by Emma HallamComments Off on The Morgan Sullivan Memorial Fishing Match
We would like to say a huge thank you to Richard Sullivan for raising over £500 for Alex’s Wish at the annual Morgan Sullivan Memorial Fishing Match....
June 12, 2024 2:17 pmPublished by Emma HallamComments Off on An Evening with Nigel Owens MBE
What a joyous night it was – An Evening with Nigel Owens MBE.
A huge thank you to Ella and Rich for all your hard work over the last six months, selling tickets, getting together amazing prizes and arranging all the details for the event itself....
June 10, 2024 8:05 pmPublished by Emma HallamComments Off on Supercars 2024
Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...
May 30, 2024 2:10 pmPublished by Emma HallamComments Off on Emma guest spot on ‘Batting the Breeze’ podcast
We wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....
May 28, 2024 10:12 amPublished by Emma HallamComments Off on EXCITEMENT BUILDS AS NOTTINGHAM’S HOTTEST CHARITY EVENT SELLS MORE THAN THREE QUARTERS OF TICKETS IN JUST 30 DAYS
NOTTINGHAM HOT PROPERTY, the city’s most popular annual charity music event, is encouraging local businesses to get their attendance secured quickly after overwhelming demand saw over three quarters of its available tickets snapped up for the upcoming 20th anniversary show....
May 14, 2024 2:11 pmPublished by Emma HallamComments Off on Multum Gin Parvo Gincello Launched
We are so excited to announce the launch of the Multum Gin Parvo #BeMoreAlex Gincello.
We know a big spirit when we see one and there is none bigger than that of Alex Hallam, his family and the team at Alex’s Wish....