Author Archives for Emma Hallam

Nottingham Hot Property choses Alex’s Wish

April 19, 2024 3:09 pm Published by Comments Off on Nottingham Hot Property choses Alex’s Wish

THIS YEAR annual charity music event Nottingham Hot Property is celebrating its 20th anniversary with an event BIGGER and BETTER than ever before....


Two new Trustees join the Board at Alex’s Wish.

April 12, 2024 10:22 am Published by Comments Off on Two new Trustees join the Board at Alex’s Wish.

We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....


Spring Launch 2024

March 12, 2024 1:17 pm Published by Comments Off on Spring Launch 2024

Our 2024 Spring Launch event took place on 7th March at the Novotel, it was great to have over 100 businesses and supporters in the room....


Sunday Spotlight – Marie Ellis

March 2, 2024 8:38 pm Published by Comments Off on Sunday Spotlight – Marie Ellis

Last week we had an incredibly interesting time talking to Marie Ellis from Elite Account Services about the ‘mountains’ she has had to climb over the last couple of years....


Fill our Hearts with Hope

February 15, 2024 4:08 pm Published by Comments Off on Fill our Hearts with Hope

February is the month of LOVE, so what a perfect time to launch our HEART campaign….. Our heart muscles need dystrophin to function efficiently....


We’re pleased to announce the appointment of Dr Laurie Cave and Vasiliki Ioannidou to our diet and nutrition project

January 31, 2024 1:08 pm Published by Comments Off on We’re pleased to announce the appointment of Dr Laurie Cave and Vasiliki Ioannidou to our diet and nutrition project

The project, which is led by Dr Jarod Wong, consultant paediatric endocrinologist at the Royal Hospital for Children, Glasgow, aims to increase understanding of diet and nutritional needs in people with Duchenne muscular dystrophy (DMD) so that guidance and resources can be developed....


Breaking News – First Treatment for ALL patients gets approved in the UK

January 16, 2024 8:34 am Published by Comments Off on Breaking News – First Treatment for ALL patients gets approved in the UK

We are delighted to welcome the news that the Medicines and Healthcare products Regulatory Agency (MHRA) has approved vamorolone (sold under the brand name Agamree) for the treatment of Duchenne muscular dystrophy (DMD) in patients aged 4 years and older.This...


Our Christmas Campaign

November 29, 2023 1:01 pm Published by Comments Off on Our Christmas Campaign

This year our Christmas Campaign is all about the Heart. Heart failure continues to be the main cause of death in Duchenne, we have recently had boys that have lost their lives at just 15....


Our Boogie Nights Ball Photo’s

November 22, 2023 9:28 am Published by Comments Off on Our Boogie Nights Ball Photo’s

Thank you Steven Havers – here are the fantastic photo’s from our Boogie Nights Ball 2023 – if you would like a print of any photo please see all the prices and details here www.haversbusinessphotography.com...


Sunday Spotlight – Meet ‘Team Swepstone’

October 27, 2023 11:09 am Published by Comments Off on Sunday Spotlight – Meet ‘Team Swepstone’

For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....


Great news for the Duchenne Community

October 14, 2023 11:02 am Published by Comments Off on Great news for the Duchenne Community

EMA recommends approval of first ever treatment for all DMD patients Today The European Medicines Agency (EMA) has recommended the approval of Vamorolone, the first ever treatment for all patients with Duchenne muscular dystrophy (DMD)....


Autumn Lunch

October 12, 2023 11:22 am Published by Comments Off on Autumn Lunch

Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....


Our fantastic Miss Great Britain’s

October 2, 2023 12:18 pm Published by Comments Off on Our fantastic Miss Great Britain’s

The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....


Golf Day 2023 raises over £12,000

September 25, 2023 4:04 pm Published by Comments Off on Golf Day 2023 raises over £12,000

A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £12,000 – amazing!!...


Fabulous FrontlineFormula 1 Event

August 31, 2023 2:29 pm Published by Comments Off on Fabulous FrontlineFormula 1 Event

An amazing race day took place at the Frontline Recruitment Group Grand Prix yesterday – raising £1,300! Thank you so much to everyone that cam along and took part!...


Sunday Spotlight – Steph’s story

July 14, 2023 1:53 pm Published by Comments Off on Sunday Spotlight – Steph’s story

My dyslexic journey and learning to read with Read Easy Hi, my name is Steph.Let me tell you a bit about myself....


Charity Football Tournament raises £3,763.81!

July 5, 2023 5:28 am Published by Comments Off on Charity Football Tournament raises £3,763.81!

What a fabulous day we had at our Charity Football Tournament on Saturday, 1st July. We would like to say a huge thank you to Astill Planning and Ryan Astill for organising a hugely successful day, yet again – we are now in our 3rd year running....


Another Sunny Day for Our SuperCars Event

June 28, 2023 12:59 pm Published by Comments Off on Another Sunny Day for Our SuperCars Event

Thank you to everyone who came along and supported our Super Cars event on Sunday – the day raised just under £14,000....


Fashion & Fizz

June 27, 2023 4:30 pm Published by Comments Off on Fashion & Fizz

We are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...