Author Archives for Emma Hallam

New Project Funding into accessible housing.

May 4, 2021 8:26 am Published by Comments Off on New Project Funding into accessible housing.

One of the biggest barriers to living an independent life as a disabled person is the lack of suitable, accessible housing. ...


Pure Table Top raise £1,194.60

April 28, 2021 9:40 am Published by Comments Off on Pure Table Top raise £1,194.60

The fabulous team at Pure Table Top, based in Tugby, held a sample sale over the weekend in support of Alex’s Wish....


New Ambassadors – Natalie and Stuart

April 27, 2021 9:51 am Published by Comments Off on New Ambassadors – Natalie and Stuart

We are so pleased to introduce you to our new Ambassador’s – Natalie and Stuart Allen. Natalie and Stuart are a proud father daughter team that specialise in property....


#BeMoreAlex Campaign

April 15, 2021 1:32 pm Published by Comments Off on #BeMoreAlex Campaign

We are so excited to launch our new campaign #BeMoreAlex. This campaign evolved out of working with Brand Clear as we started to feel the effects of the pandemic on our fundraising....


Conquering ‘Mont Ventoux’

April 14, 2021 8:50 am Published by Comments Off on Conquering ‘Mont Ventoux’

Fiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...


CaptainTom100

April 6, 2021 12:36 pm Published by Comments Off on CaptainTom100

Friday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....


Close to my Heart

March 14, 2021 10:05 am Published by Comments Off on Close to my Heart

Emma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....


Rare Disease Day

February 26, 2021 10:22 am Published by Comments Off on Rare Disease Day

Rare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...


Alex’s Wish AGM

February 23, 2021 3:37 pm Published by Comments Off on Alex’s Wish AGM

You are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...


Virtual Mont Ventoux

February 18, 2021 2:01 pm Published by Comments Off on Virtual Mont Ventoux

The wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...


London Marathon! We have your charity place !

February 9, 2021 2:45 pm Published by Comments Off on London Marathon! We have your charity place !

Would you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...


January 2020 Newsletter

February 1, 2021 12:50 pm Published by Comments Off on January 2020 Newsletter

We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year. ...


Living for Today

January 28, 2021 3:27 pm Published by Comments Off on Living for Today

It was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....


Local Firm of Solicitors Make Unexpected Donation

January 21, 2021 11:28 am Published by Comments Off on Local Firm of Solicitors Make Unexpected Donation

K4 Law, a local firm of solicitors, made an unexpected and much welcomed donation for £350. The donation was made in lieu of buying their clients an annual Christmas ‘thank you’ gift. ...


Alex meets Marianela Schiava

January 20, 2021 2:38 pm Published by Comments Off on Alex meets Marianela Schiava

The last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....


An Epic Adventure for Alex’s Wish

January 19, 2021 6:55 pm Published by Comments Off on An Epic Adventure for Alex’s Wish

Two intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....


Gene Therapy Update

January 13, 2021 10:53 am Published by Comments Off on Gene Therapy Update

This is exciting news for all affected by Duchenne. Gene therapy cannot come soon enough it’s one of the things we are all working so hard to get....


Thank you to Property Fox

December 22, 2020 11:21 am Published by Comments Off on Thank you to Property Fox

A huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...


Thank you and Merry Christmas

December 17, 2020 1:39 pm Published by Comments Off on Thank you and Merry Christmas

As we near the end of 2020, we’ve been reflecting on what’s been achieved together.  We started the year with huge plans, with the momentum that we had established we were sure that this would be our most successful year yet! ...