January 2020 Newsletter

February 1, 2021 12:50 pm

We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year.  So far, 2021 isn’t looking too different from the year we’ve left behind. In this second wave of the COVID Pandemic and third lockdown, we are all tackling those things we thought we had left behind such as home schooling and zoom meetings.  The start of the year has bought with it the reality that we will be living, working and socialising virtually and socially distanced for some time.  The one thing that is different about 2021 is that we now have the vaccine, which gives us a way forward, along with the learnings from 2020 that in every situation we need to think outside the box, adapt and carry on. We have got some great events for 2021 that we would like to share with you, as well as many still in the planning stage.  We can’t afford to let COVID stop us in our fight, and it will be great to have you by our side as we progress. 

Challenge 2021 Whatever your personal goals this year, we would love to help you achieve them. It could be that you would like to learn a new language or run a 5k, whatever it is we are here to help.  We will help organise everything, put you in touch with likeminded individuals to spur you on and share ideas, keep you accountable and above all party with you when you’ve accomplished it! More details

Golf Day Our annual golf day takes place on 22nd April 2021 sponsored by Strategic Insurance.  This is the highlight of our events calendar, so join us for a round of golf, breakfast rolls on arrival, food in the evening, raffle, refreshments on the course.  In light of the current circumstance we will ensure that this event falls in line with all the social distancing requirements, ensuring all our guests stay safe.  There are prizes for 1st, 2nd, 3rd team, Nearest the Pin and Longest Drive.  There are also sponsorship opportunities available. To find out more please email zoe@alexswish.co.uk

Alex’s Wish Big Give Christmas Challenge We would like to say a HUGE thank you to everyone who supported our Big Give Christmas Campaign. We managed to raise just over £5,500 including gift aid which is fantastic.Thank you to all our pledgers – Glynis WrightEd CooperGavin DilkesKamlesh SamjiMarian PowdrillJay WebbBen KnowlesRaj KhutiSamuel GoddardJosh RaiJoanna StreamesJon AllenAdrian Pawsey – and also to The Hospital Saturday Fund who championed our campaign.  We are now looking, alongside Duchenne UK, to identify what projects we can invest in over the next month. The funds raised at the back end of last year will help us further our mission to bring effective new treatments to market for everyone living with Duchenne.  To help slow down the devastating muscle wasting and buy them more time for the all important cure to come along.  

Alex meets Marianela Schiava The last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards. Marianela’s role was identified to ensure that the data generated by the FOR DMD study will be used to address new clinical and research questions. The study seeks to provide detailed information about the effects of different corticosteroid regimes, which will assist families and clinicians in deciding the best treatment, and support trial design, including being used as a control group for current and future clinical trials.Read more…….

PS In case you missed it, here’s our video showing how we will remember 2020 and the support from you, our community like no other. Thank you for helping us continue to be there for everyone with Duchenne Muscular Dystrophy

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