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Alex learns how to fly #BeMoreAlex

June 23, 2021 10:06 am

Wow!!!! Another amazing day with Rob Barsby at aeroSPARX The Gliding Centre for Alex’s second flight lesson… and guess what Alex only took over the controls and did the loop the loop…....

Conquering ‘Mont Ventoux’

April 14, 2021 8:50 am

Fiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...

CaptainTom100

April 6, 2021 12:36 pm

Friday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....

Close to my Heart

March 14, 2021 10:05 am

Emma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....

Rare Disease Day

February 26, 2021 10:22 am

Rare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...

Alex’s Wish AGM

February 23, 2021 3:37 pm

You are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...

Virtual Mont Ventoux

February 18, 2021 2:01 pm

The wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...

London Marathon! We have your charity place !

February 9, 2021 2:45 pm

Would you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...

January 2020 Newsletter

February 1, 2021 12:50 pm

We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year.  So far, 2021 isn’t looking too different from the year we’ve left behind. In this second wave of the COVID Pandemic and third lockdown, we are all tackling those things we thought we had left behind such as home schooling and zoom meetings.  The start of the year has bought with it the reality that we will be living, working and socialising virtually and socially distanced for some time.  The one thing that is different about 2021 is that we now have the vaccine, which gives us a way forward, along with the learnings from 2020 that in every situation we need to think outside the box, adapt and carry on. We have got some great events for 2021 that we would like to share with you, as well as many still in the planning stage.  We can’t afford to let COVID stop us in our fight, and it will be great to have you by our side as we progress.  Challenge 2021 Whatever your personal goals this year, we would love to help you achieve them....

Living for Today

January 28, 2021 3:27 pm

It was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....

Alex meets Marianela Schiava

January 20, 2021 2:38 pm

The last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....

An Epic Adventure for Alex’s Wish

January 19, 2021 6:55 pm

Two intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....

Thank you to Property Fox

December 22, 2020 11:21 am

A huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...

Alex’s Wish Hug in a Mug

December 8, 2020 12:38 pm

Alex’s Wish have had these uniquely designed mugs by Pure Table Top that will be perfect for gifts for friends, family....

Embracing CSR….

November 5, 2020 10:50 am

At this year’s Leicester Business Festival, Emma Hallam, Founder of Alex’s Wish spoke alongside Stefan Fura, MD of Furnley House about how effective CSR can truly bring great value both of organisations (small, medium and large alike), charities like Alex’s Wish and the local community....

Testosterone shows improvements in Duchenne care…

October 26, 2020 1:11 pm

Alex is taking testosterone supplements, so this is such great news to hear… This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology....