Categories for Uncategorized

Alex’s Wish invests £30,000 into Edasalonexent

January 8, 2020 2:04 pm

Alex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....

Emma’s Autumn Update

November 29, 2019 11:31 am

As we approach the end of the year, it’s a great time to reflect on everything which has been going on.  The last time I wrote a blog, I explained that Alex had started a new clinical trial – Givinostat – which we were hopeful would help Alex and make a difference....

Alex’s Wish Ball 2019

November 20, 2019 3:53 pm

Alex’s Wish 7th Annual Charity Ball took place at The Hilton East Midlands Airport. The evening was sponsored by Next and Morgan Sindall sponsored our sparkling drinks reception....

An evening at Lumbers with Paul Karslake

November 20, 2019 11:21 am

Janine Edwards Wealth Management and Antidote Art hosted a Paul Karslake Art Exhibition and dinner at Lumbers in Leicester. The evening started with a drinks reception and an opportunity to see Paul’s new collection alongside beautiful jewellery from Lumbers....

Update on Vamorolone Study

October 7, 2019 9:11 am

Top Line Data of 18-month Vamorolone treatment of Duchenne Muscular Dystrophy patients shows continued improvement of symptoms with reduction in Corticosteroid safety concerns....

Alex’s Wish Golf Day a great success

September 25, 2019 12:24 pm

Thank you to everyone that came along to our Golf Day and made it such a huge success. Thank you to all our sponsors – our headline sponsor Strategic Insurance, our Brunch and longest drive sponsor NEXT, our prize sponsor Brooksure Commercial Insurance Brokers – Coventry West Midlands, our Nearest the Pin Sponsor WK Construction, Refreshment Sponsors Hallam Read and our sponsors Vehicle Consulting Leicester Ltd, Executive Image, 2 New Street Chambers, Jay Webb Consultancy, PB Ross Electricals, United Carpets and Beds, Virtual Assistant Support Services, Gail Siddall, Ben’s Kitchen, Downtown Computers Ltd, Charnwood Brewery....

Alex starts another Clinical Trial…

June 3, 2019 1:55 pm

It’s been a while since I last wrote an update on how things are going, so thought I would update you all on what’s happening and why we’ve been busy little bees lately....

Emma presents to Scape Group

April 11, 2019 12:33 pm

Yesterday Emma presented to the team at Scape Group who have chosen Alex’s Wish as their Charity of the Year. It was great opportunity to meet all the team and share our plans with them....

Supporters Thank you Lunch

March 5, 2019 11:17 am

On Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....

Mark’s Challenge

February 28, 2019 2:04 pm

2,019 Miles in 2019 Mark Smith of Stephen George + Partners likes nothing better than a big challenge! 2018 saw him attempt to run from John O’Groats to Lands End raising money for local charity Alex’s Wish....

Warm welcome to Heidi

February 28, 2019 1:36 pm

We are so pleased that we have a new team member Heidi Eastell who joined us at the beginning of the week on a part time basis and will assist with the charity’s events....

Mardi Gras Ball raises £30,000

November 21, 2018 12:17 pm

Our wonderful Mardi Gras Ball took place on Saturday night at The Village Hotel and raised a staggering £30,000. The evening was a huge success thanks to all our lovely supporters that came along, some who come year after year and those that came for the first time....

An update from Emma

October 12, 2018 9:55 am

I thought it was time I wrote a blog about what’s been happening of late. Alex continues to do well, he’s still mobile which is a wonderful thing although I do find myself constantly watching over him and checking he’s okay when we’re out and about....

The Business Elevation Show – The Magic of Fundraising

September 26, 2018 4:02 pm

Emma was a guest on The Business Elevation Show on Voice America talking about the Magic of Fundraising. Fundraising is a fantastic way of achieving remarkable life goals with the warm knowledge of giving back to charities and those in need....

Summer Sky Dive

September 11, 2018 8:36 am

In August Gordon Rodham and John Woolhouse jumped out of a plane at 13,000 ft to Sky Dive and raise funds for Alex’s Wish....