Conquering ‘Mont Ventoux’
April 14, 2021 8:50 amFiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...
Categories for Uncategorized
CaptainTom100
April 6, 2021 12:36 pmFriday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....
Sue Grogan launches her new book with 50% sales going to Alex’s Wish
March 22, 2021 10:33 amThis fabulous book authored by Sue Grogan ‘Wellbeing: Healthy Staff, Healthy Business – Lessons Learned in Lockdown’ is now available with 50% of sales being donated to Alex’s Wish....
Close to my Heart
March 14, 2021 10:05 amEmma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....
Rare Disease Day
February 26, 2021 10:22 amRare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...
Alex’s Wish AGM
February 23, 2021 3:37 pmYou are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...
Virtual Mont Ventoux
February 18, 2021 2:01 pmThe wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...
London Marathon! We have your charity place !
February 9, 2021 2:45 pmWould you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...
January 2020 Newsletter
February 1, 2021 12:50 pmWe are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year. So far, 2021 isn’t looking too different from the year we’ve left behind. In this second wave of the COVID Pandemic and third lockdown, we are all tackling those things we thought we had left behind such as home schooling and zoom meetings. The start of the year has bought with it the reality that we will be living, working and socialising virtually and socially distanced for some time. The one thing that is different about 2021 is that we now have the vaccine, which gives us a way forward, along with the learnings from 2020 that in every situation we need to think outside the box, adapt and carry on. We have got some great events for 2021 that we would like to share with you, as well as many still in the planning stage. We can’t afford to let COVID stop us in our fight, and it will be great to have you by our side as we progress. Challenge 2021 Whatever your personal goals this year, we would love to help you achieve them....
Living for Today
January 28, 2021 3:27 pmIt was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....
Alex meets Marianela Schiava
January 20, 2021 2:38 pmThe last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....
An Epic Adventure for Alex’s Wish
January 19, 2021 6:55 pmTwo intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....
Thank you to Property Fox
December 22, 2020 11:21 amA huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...
Alex’s Wish Hug in a Mug
December 8, 2020 12:38 pmAlex’s Wish have had these uniquely designed mugs by Pure Table Top that will be perfect for gifts for friends, family....
Embracing CSR….
November 5, 2020 10:50 amAt this year’s Leicester Business Festival, Emma Hallam, Founder of Alex’s Wish spoke alongside Stefan Fura, MD of Furnley House about how effective CSR can truly bring great value both of organisations (small, medium and large alike), charities like Alex’s Wish and the local community....
Alex’s Wish has been short listed for this year’s IoD East Midlands Director of the Year Awards 2020
October 26, 2020 1:23 pmSo wonderful to hear we’ve been nominated for this prestigous award and now made it through to the finalists list for the Social Impact and Sustainability Award....
Testosterone shows improvements in Duchenne care…
October 26, 2020 1:11 pmAlex is taking testosterone supplements, so this is such great news to hear… This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology....
Foxes Foundation selects two children’s charity partners
October 22, 2020 1:20 pmWe are so honoured that Alex’s Wish will benefit from a new partnership with Leicestershire County Cricket Club (LCCC) as the club revives its Foundation....
Update on Solid Ignite DMD
October 2, 2020 5:34 pmWe are absolutely delighted to hear the news that the FDA has lifted the SOLID IGNITE DMD Phase 1/11 Gene Therapy Clinical Trial which had been put on hold due to a serious adverse event with a child taking part in the trial....
Emma’s Summer Blog
September 29, 2020 9:10 amWell what a crazy year it’s been for us all, but pleased to finally have Alex and Isla back at school again learning and seeing their friends – for one thing it means I can actually get my head down and do lots of work on the charity, but also keep my fridge stocked up for a while… oh and finally get my nails and hair done....