March 11, 2020 8:44 am
Last week saw the annual Supporters Lunch for Leicestershire-based charity Alex’s Wish take place at the newly opened Novotel in Leicester. With over 150 guests attending including trustees, business club supporters, private individuals, businesses including those who’ve chosen Alex’s Wish as their Charity of the Year, and the newly crowned Miss and Ms GB. The event served not only as a heartfelt thank you to supporters but also an opportunity to update everyone on the activity undertaken throughout the year and plans for the next 12 months....
February 5, 2020 11:37 am
Children with DMD experience the normal childhood illnesses and accidents. But, because their muscles are weaker, some things are more serious for them than other children....
January 30, 2020 3:24 pm
Promising drugs for Duchenne Muscular Dystrophy (DMD) which are tested on animals do not always respond the same way in humans....
January 8, 2020 2:04 pm
Alex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD
Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population
Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....
November 29, 2019 11:31 am
As we approach the end of the year, it’s a great time to reflect on everything which has been going on. The last time I wrote a blog, I explained that Alex had started a new clinical trial – Givinostat – which we were hopeful would help Alex and make a difference....
November 20, 2019 3:53 pm
Alex’s Wish 7th Annual Charity Ball took place at The Hilton East Midlands Airport. The evening was sponsored by Next and Morgan Sindall sponsored our sparkling drinks reception....
November 20, 2019 11:21 am
Janine Edwards Wealth Management and Antidote Art hosted a Paul Karslake Art Exhibition and dinner at Lumbers in Leicester.
The evening started with a drinks reception and an opportunity to see Paul’s new collection alongside beautiful jewellery from Lumbers....
October 7, 2019 9:11 am
Top Line Data of 18-month Vamorolone treatment of Duchenne Muscular Dystrophy patients shows continued improvement of symptoms with reduction in Corticosteroid safety concerns....
September 30, 2019 8:42 am
Duchenne UK has made a grant of $200,000 to help support the Solid Suit program, of which Alex’s Wish funded £35,000....
September 25, 2019 12:24 pm
Thank you to everyone that came along to our Golf Day and made it such a huge success. Thank you to all our sponsors – our headline sponsor Strategic Insurance, our Brunch and longest drive sponsor NEXT, our prize sponsor Brooksure Commercial Insurance Brokers – Coventry West Midlands, our Nearest the Pin Sponsor WK Construction, Refreshment Sponsors Hallam Read and our sponsors Vehicle Consulting Leicester Ltd, Executive Image, 2 New Street Chambers, Jay Webb Consultancy, PB Ross Electricals, United Carpets and Beds, Virtual Assistant Support Services, Gail Siddall, Ben’s Kitchen, Downtown Computers Ltd, Charnwood Brewery....
August 9, 2019 1:47 pm
On the 12th May The Charnwood Forest Cycle Ride sponsored by Glynis Wright & Co took place and we were lucky enough again this year for the sun to shine....
June 26, 2019 2:57 pm
Saturday 1st June was a spectacular evening in Leicester. Over 200 friends, family and clients of Furnley House gathered at Winstanley House on the launch night of the Furnley House Foundation....
June 3, 2019 1:55 pm
It’s been a while since I last wrote an update on how things are going, so thought I would update you all on what’s happening and why we’ve been busy little bees lately....
April 11, 2019 12:33 pm
Yesterday Emma presented to the team at Scape Group who have chosen Alex’s Wish as their Charity of the Year. It was great opportunity to meet all the team and share our plans with them....
March 27, 2019 2:28 pm
The investment is to address the use of testosterone as a treatment for Duchenne Muscular Dystrophy. Testosterone is sometimes given to patients with Duchenne Muscular Dystrophy (DMD) who take steroids....
March 5, 2019 11:17 am
On Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....
February 28, 2019 2:04 pm
2,019 Miles in 2019
Mark Smith of Stephen George + Partners likes nothing
better than a big challenge!
2018 saw him attempt to run from John O’Groats to Lands End
raising money for local charity Alex’s Wish....
February 28, 2019 1:36 pm
We are so pleased that we have a new team member Heidi Eastell who joined us at the beginning of the week on a part time basis and will assist with the charity’s events....
January 16, 2019 8:42 am
Leicester’s newest restaurant and private members club, the
Queen Victoria Arts Club, has chosen local charity Alex’s Wish to be its
charity of the year for 2019....
November 21, 2018 12:17 pm
Our wonderful Mardi Gras Ball took place on Saturday night at The Village Hotel and raised a staggering £30,000.
The evening was a huge success thanks to all our lovely supporters that came along, some who come year after year and those that came for the first time....
