On Friday 8th October we held our Supporters’ Thank you Lunch at the Novotel in Leicester. It was a great event and so good to be able to invite all our supporters, in person, to thank them for all that they had done for us over the last 18 months....
A huge thanks to everyone that came along to support Alex’s Wish 10th Golf Day! What a great day – fabulous sunshine, great company and we raised an incredible £10K!...
Synergy Personnel Services, an East Midlands-based specialist recruitment company, have taken us on on as their Charity of the Year. Emma Hallam, Founder and CEO of Alex’s Wish, spoke of the news saying, “I’ve known Gavin Dilkes, their Managing Director, for many years now as we network together at BNI Premier. Gavin has always been a huge supporter of Alex’s Wish and I was absolutely delighted when he let me know that Alex’s Wish had been chosen as their Charity of the Year....
When life throws up roadblocks, take a new road! Stan and Matt were all set for their arctic adventure, they were due to ride 6,000 miles through Scandinavia on a quest to reach the midnight sun....
Our supporters Pure Table Top are sponsoring Oakham United U10s team on behalf of Alex’s Wish – Cure Duchenne for the 2021/2022 season ⚽️ The team is managed by Geoff Mann alongside his two friends Kevin Ainslie and Nathan Bottomley, the team’s boys will all be turning 10 during the course of the season....
Wow!!!! Another amazing day with Rob Barsby at aeroSPARX The Gliding Centre for Alex’s second flight lesson… and guess what Alex only took over the controls and did the loop the loop…....
Alex’s Wish has funded £30,000 as part of Duchenne UK’s £287,500 investment into a new 18-month study investigating whether Lipid Nanoparticles (LNPs) could be used to help in gene therapy treatments for DMD. ...
Fiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...
Friday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....
This fabulous book authored by Sue Grogan ‘Wellbeing: Healthy Staff, Healthy Business – Lessons Learned in Lockdown’ is now available with 50% of sales being donated to Alex’s Wish....
Emma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....
Rare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...
You are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...
The wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...
Would you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...
We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year. So far, 2021 isn’t looking too different from the year we’ve left behind. In this second wave of the COVID Pandemic and third lockdown, we are all tackling those things we thought we had left behind such as home schooling and zoom meetings. The start of the year has bought with it the reality that we will be living, working and socialising virtually and socially distanced for some time. The one thing that is different about 2021 is that we now have the vaccine, which gives us a way forward, along with the learnings from 2020 that in every situation we need to think outside the box, adapt and carry on. We have got some great events for 2021 that we would like to share with you, as well as many still in the planning stage. We can’t afford to let COVID stop us in our fight, and it will be great to have you by our side as we progress. Challenge 2021 Whatever your personal goals this year, we would love to help you achieve them....
It was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....
The last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....
Two intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....
A huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...
