We are thrilled to announce a new collaboration with leading retailer NEXT Plc to coincide with World Duchenne Awareness Day (WDAD) on Saturday 7 September 2024....
We would like to say a huge thank you to Richard Sullivan for raising over £500 for Alex’s Wish at the annual Morgan Sullivan Memorial Fishing Match....
Thank you to everyone who joined us at The Bodie Hodges Foundation and Alex’s Wish Fashion show – it was a fabulous event....
What a joyous night it was – An Evening with Nigel Owens MBE. A huge thank you to Ella and Rich for all your hard work over the last six months, selling tickets, getting together amazing prizes and arranging all the details for the event itself....
Our 2024 Spring Launch event took place on 7th March at the Novotel, it was great to have over 100 businesses and supporters in the room....
Last week we had an incredibly interesting time talking to Marie Ellis from Elite Account Services about the ‘mountains’ she has had to climb over the last couple of years....
The project, which is led by Dr Jarod Wong, consultant paediatric endocrinologist at the Royal Hospital for Children, Glasgow, aims to increase understanding of diet and nutritional needs in people with Duchenne muscular dystrophy (DMD) so that guidance and resources can be developed....
We are delighted to welcome the news that the Medicines and Healthcare products Regulatory Agency (MHRA) has approved vamorolone (sold under the brand name Agamree) for the treatment of Duchenne muscular dystrophy (DMD) in patients aged 4 years and older.This...
This year our Christmas Campaign is all about the Heart. Heart failure continues to be the main cause of death in Duchenne, we have recently had boys that have lost their lives at just 15....
A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £12,000 – amazing!!...
An amazing race day took place at the Frontline Recruitment Group Grand Prix yesterday – raising £1,300! Thank you so much to everyone that cam along and took part!...
What a fabulous day we had at our Charity Football Tournament on Saturday, 1st July. We would like to say a huge thank you to Astill Planning and Ryan Astill for organising a hugely successful day, yet again – we are now in our 3rd year running....
The revolutionary SMART Suit project supported by Leicestershire Duchenne charity Alex’s Wish, has received a further boost with The Brothers Trust donating £50,000 towards the next stage of development....
Alex Hallam has become one of the first people in the country to road test the prototype of a revolutionary mobility suit....
Our very own Alex Hallam will be spending a lot of time in the kitchen over the next few months. Alex has been tasked with baking nine celebratory cakes for its supporters....
Great news. The lovely Miss Great Britain girls will be supporting Alex’s Wish as one of their two chosen charities for the fourth year running....
We are so excited to be unveiling a thrilling line up of events in 2023 June 11 sees the return of Supercars in the stunning grounds of Whatton House....
Each year, Alex attends an annual Bone Density scan (also known as DEXA for short) to check his bone health. Alex has Duchenne Muscular Dystrophy, and for someone who has been taking steriods since he was 4 years old, looking after his bone health is very important....
The first boy in the UK to participate in Sarepta’s DMD gene therapy trial enjoyed a starring role in a presentation at the Action Duchenne conference last week....
Wow. Just wow. We’ve only gone and raised a staggering £26,500 at our 10th Celebratory Birthday Ball on Saturday night after all costs!!!...
