Latest Posts

Solid Bioscience Gene Therapy Update

August 19, 2019 8:49 am

Alex’s Wish have received a positive update from Solid Bioscience on their gene therapy trial called IGNITE DMD which Alex’s Wish invested in....

Morgan Sullivan Memorial Fishing Match 2019

August 9, 2019 11:49 am

This year’s 4th Morgan Sullivan Memorial Fishing match took place despite the rain, everyone had a great time, people who fish are a hardy bunch and not much puts then off!!...

Alex meets Spiderman

July 19, 2019 12:50 pm

What a treat for Alex to meet with Spiderman, Tom Holland on Sunday at an event in London supporting those with life limiting diseases....

Alex starts another Clinical Trial…

June 3, 2019 1:55 pm

It’s been a while since I last wrote an update on how things are going, so thought I would update you all on what’s happening and why we’ve been busy little bees lately....

Emma presents to Scape Group

April 11, 2019 12:33 pm

Yesterday Emma presented to the team at Scape Group who have chosen Alex’s Wish as their Charity of the Year. It was great opportunity to meet all the team and share our plans with them....

Supporters Thank you Lunch

March 5, 2019 11:17 am

On Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....

Mark’s Challenge

February 28, 2019 2:04 pm

2,019 Miles in 2019 Mark Smith of Stephen George + Partners likes nothing better than a big challenge! 2018 saw him attempt to run from John O’Groats to Lands End raising money for local charity Alex’s Wish....

Warm welcome to Heidi

February 28, 2019 1:36 pm

We are so pleased that we have a new team member Heidi Eastell who joined us at the beginning of the week on a part time basis and will assist with the charity’s events....

Update on Alex’s Trial Application

January 29, 2019 9:38 am

Bitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....

Alex’s Trial Update

January 10, 2019 12:13 pm

Here we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...

End of Year Update from Emma

December 20, 2018 9:07 pm

As 2018 comes to end, I wanted to share with you an update on how this year has gone. For a start, it’s been our best year in terms of fundraising....

Alex's Wish invests into Tamoxifen Open Label Extension Study

Alex’s Wish invests £30,000 to Tamoxifen Open Label Extension Study

December 14, 2018 10:56 am

So pleased to let you know that we have just invested the £30,000 raised at the Mardi Gras Ball! In 2017 we funded £25,000 into a €675,000 funding towards TAMDMD, a phase 3 clinical trial to test the breast cancer drug tamoxifen for use in patients with Duchenne muscular dystrophy. ...

Mardi Gras Ball raises £30,000

November 21, 2018 12:17 pm

Our wonderful Mardi Gras Ball took place on Saturday night at The Village Hotel and raised a staggering £30,000. The evening was a huge success thanks to all our lovely supporters that came along, some who come year after year and those that came for the first time....

Alex’s Wish grants £60,000 to Evox Therapeutics

November 19, 2018 9:15 pm

This is an exciting time for research into Duchenne Muscular Dystrophy (DMD). Several companies are now testing an approach that uses a synthetic gene to replace the faulty dystrophin gene in Duchenne....