Latest Posts

Our Christmas Campaign

November 29, 2023 1:01 pm

This year our Christmas Campaign is all about the Heart. Heart failure continues to be the main cause of death in Duchenne, we have recently had boys that have lost their lives at just 15....

Our Boogie Nights Ball Photo’s

November 22, 2023 9:28 am

Thank you Steven Havers – here are the fantastic photo’s from our Boogie Nights Ball 2023 – if you would like a print of any photo please see all the prices and details here www.haversbusinessphotography.com...

Sunday Spotlight – Meet ‘Team Swepstone’

October 27, 2023 11:09 am

For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....

Great news for the Duchenne Community

October 14, 2023 11:02 am

EMA recommends approval of first ever treatment for all DMD patients Today The European Medicines Agency (EMA) has recommended the approval of Vamorolone, the first ever treatment for all patients with Duchenne muscular dystrophy (DMD)....

Autumn Lunch

October 12, 2023 11:22 am

Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....

Our fantastic Miss Great Britain’s

October 2, 2023 12:18 pm

The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....

Golf Day 2023 raises over £12,000

September 25, 2023 4:04 pm

A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £12,000 – amazing!!...

Fabulous FrontlineFormula 1 Event

August 31, 2023 2:29 pm

An amazing race day took place at the Frontline Recruitment Group Grand Prix yesterday – raising £1,300! Thank you so much to everyone that cam along and took part!...

Charity Football Tournament raises £3,763.81!

July 5, 2023 5:28 am

What a fabulous day we had at our Charity Football Tournament on Saturday, 1st July. We would like to say a huge thank you to Astill Planning and Ryan Astill for organising a hugely successful day, yet again – we are now in our 3rd year running....

Fashion & Fizz

June 27, 2023 4:30 pm

We are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...

An Evening with Nigel Owens

June 27, 2023 11:18 am

Ella Amy Stiles, one of the fabulous Miss Great Britain finalists put on a An Evening with Nigel Owens at Aylesbury Rugby Football Club....

Mancave Football Tournament

June 19, 2023 2:55 pm

Mancave Men’s Barbers based on Leicester Road in Wigston put on a Football Tournament to raise money for Alex’s Wish. Taking place at Beauchamp College, the day was very competitive, with a knockout rounds and ending in the big final!...

Right Royal Weekend!

June 19, 2023 2:36 pm

Emma, our founder and Alex’s Mum had a fabulous weekend around the Kings Coronation. Emma was lucky enough to go to the King’s Coronation Concert and then just a few days later went to the King’s garden party....

Alex’s Wish Spring Launch 2023

March 20, 2023 1:47 pm

Our Spring Launch took place at the Novotel in Leicester on 17th March, sponsored by Janine Edwards Wealth Management and Spirit Healthcare....

Today, 28th February marks #RareDiseaseDay.

February 28, 2023 9:43 am

Duchenne Muscular Dystrophy is a rare disease. A condition that affects 1 in every 3,500 boys born. Alex was diagnosed with this condition shortly before his 4th birthday....