December 13, 2024 3:29 pm
This week we received THE BEST NEWS the first treatment for EVERYONE living with Duchenne has been approved!!!! NICE, the National Institute of Clinical Excellence in England and Wales announced that Agamree (also known as Vamorolone) a dissociative steroid, has been approved for ALL patients with Duchenne Muscular Dystrophy....
November 19, 2024 2:03 pm
We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...
November 12, 2024 8:24 am
Wow – what an incredible evening, honestly we loved it so much!! We arrived early Saturday morning at our hosts Winstanley House to set up, decorate and get everything in place to welcome our amazing guests, and as the day went on the excitement grew – the decorations, AV, the balloon arch…….and...
November 7, 2024 6:11 pm
The support shown for Alex’s Wish this year by the wonderful Miss Great Britain, Ms Great Britain and Ms Great Britain Classic has blown us away!...
October 15, 2024 8:48 am
What an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months....
September 30, 2024 2:34 pm
Six incredible people decided to take on the Northampton Lift Tower and a 418 foot abseil for Alex’s Wish. We were lucky with the weather, although some of the six may dispute that, secretly hoping it may be cancelled!!...
September 25, 2024 2:02 pm
A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £11,500 – amazing!!...
September 3, 2024 3:04 pm
We are thrilled to announce a new collaboration with leading retailer NEXT Plc to coincide with World Duchenne Awareness Day (WDAD) on Saturday 7 September 2024....
August 20, 2024 3:27 pm
Last Sunday saw 9 amazing Alex’s Wish supporters taking part in an epic Wing Walk, each of them overcoming their fears to take on this incredible challenge!...
August 20, 2024 10:32 am
ORGANISERS of annual charity music event Nottingham Hot Property have revealed a final figure of £36,000 as the money raised at its recent 20th anniversary extravaganza Alex’s Wish....
July 26, 2024 9:59 am
Our lovely founder Emma Hallam is taking on a daredevil wing walk designed to raise awareness and funds to battle this disease. ...
July 24, 2024 9:10 am
We would like to say a huge thank you to Richard Sullivan for raising over £500 for Alex’s Wish at the annual Morgan Sullivan Memorial Fishing Match....
July 4, 2024 12:16 pm
Thank you to everyone who joined us at The Bodie Hodges Foundation and Alex’s Wish Fashion show – it was a fabulous event....
June 19, 2024 3:00 pm
What a fabulous event we have had at our Speakers Morning hosted by the wonderful Lumbers Jewellers in their beautiful venue, truly lovely!First...
June 19, 2024 11:01 am
What a fabulous day we had at our Charity Football Tournament on Saturday, 15th June taking place at Quorn Football Club!...
June 12, 2024 2:17 pm
What a joyous night it was – An Evening with Nigel Owens MBE.
A huge thank you to Ella and Rich for all your hard work over the last six months, selling tickets, getting together amazing prizes and arranging all the details for the event itself....
June 10, 2024 8:05 pm
Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...
May 30, 2024 2:10 pm
We wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....
May 28, 2024 10:12 am
NOTTINGHAM HOT PROPERTY, the city’s most popular annual charity music event, is encouraging local businesses to get their attendance secured quickly after overwhelming demand saw over three quarters of its available tickets snapped up for the upcoming 20th anniversary show....
May 14, 2024 2:11 pm
We are so excited to announce the launch of the Multum Gin Parvo #BeMoreAlex Gincello.
We know a big spirit when we see one and there is none bigger than that of Alex Hallam, his family and the team at Alex’s Wish....