Latest Posts

Alex starts another Clinical Trial…

June 3, 2019 1:55 pm

It’s been a while since I last wrote an update on how things are going, so thought I would update you all on what’s happening and why we’ve been busy little bees lately....

Emma presents to Scape Group

April 11, 2019 12:33 pm

Yesterday Emma presented to the team at Scape Group who have chosen Alex’s Wish as their Charity of the Year. It was great opportunity to meet all the team and share our plans with them....

Supporters Thank you Lunch

March 5, 2019 11:17 am

On Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....

Mark’s Challenge

February 28, 2019 2:04 pm

2,019 Miles in 2019 Mark Smith of Stephen George + Partners likes nothing better than a big challenge! 2018 saw him attempt to run from John O’Groats to Lands End raising money for local charity Alex’s Wish....

Warm welcome to Heidi

February 28, 2019 1:36 pm

We are so pleased that we have a new team member Heidi Eastell who joined us at the beginning of the week on a part time basis and will assist with the charity’s events....

Update on Alex’s Trial Application

January 29, 2019 9:38 am

Bitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....

Alex’s Trial Update

January 10, 2019 12:13 pm

Here we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...

End of Year Update from Emma

December 20, 2018 9:07 pm

As 2018 comes to end, I wanted to share with you an update on how this year has gone. For a start, it’s been our best year in terms of fundraising....

Alex's Wish invests into Tamoxifen Open Label Extension Study

Alex’s Wish invests £30,000 to Tamoxifen Open Label Extension Study

December 14, 2018 10:56 am

So pleased to let you know that we have just invested the £30,000 raised at the Mardi Gras Ball! In 2017 we funded £25,000 into a €675,000 funding towards TAMDMD, a phase 3 clinical trial to test the breast cancer drug tamoxifen for use in patients with Duchenne muscular dystrophy. ...

Mardi Gras Ball raises £30,000

November 21, 2018 12:17 pm

Our wonderful Mardi Gras Ball took place on Saturday night at The Village Hotel and raised a staggering £30,000. The evening was a huge success thanks to all our lovely supporters that came along, some who come year after year and those that came for the first time....

Alex’s Wish grants £60,000 to Evox Therapeutics

November 19, 2018 9:15 pm

This is an exciting time for research into Duchenne Muscular Dystrophy (DMD). Several companies are now testing an approach that uses a synthetic gene to replace the faulty dystrophin gene in Duchenne....

Charity Dinner Dance

November 2, 2018 2:12 pm

On the 6th October  the Pujara Charitable Foundation (PCF) held a wonderful Dinner & Dance at The Valley Suites, Leicester.  The PCF are a local charitable foundation that raises money to help numerous local charities....

The Shimmering Masquerade Dinner

October 30, 2018 8:50 pm

The Shimmering Masquerade Dinner took place at Lumbers Jewellers in Leicester in support of local charity Alex’s Wish. The dinner was the brainchild of Janine Edwards of Janine Edwards Wealth Management – a Trustee and avid supporter of the charity....

Funding Update

October 18, 2018 2:50 pm

Alex’s Wish has been working with Duchenne UK to invest and fund in some very important projects over the last couple of years and here is an update of our funding....

An update from Emma

October 12, 2018 9:55 am

I thought it was time I wrote a blog about what’s been happening of late. Alex continues to do well, he’s still mobile which is a wonderful thing although I do find myself constantly watching over him and checking he’s okay when we’re out and about....

New Research Project

October 8, 2018 2:02 pm

Duchenne UK, Joining Jack and Alex’s Wish are jointly funding £86,460 into a study to further understand the causes of heart disease in DMD. ...

Alex’s Wish 8th Golf Day

September 27, 2018 11:54 am

Last Friday we had our 8th Annual Golf day at Rothley Park Golf Club. We would like to thank our main sponsors WK Construction and Next, our refreshment sponsors Synergy Recruitment Leicester, Longest Drive sponsor KRS Estate Planning, our hole sponsors Alex Benyon Photography, Juice Apps, Sturgess Hutchinson, Spirit Healthcare, Janine Edwards Wealth Management, PB Ross Electrical Contractors, D F Building Services, Caveney Associates and Charnwood Brewery....

The Business Elevation Show – The Magic of Fundraising

September 26, 2018 4:02 pm

Emma was a guest on The Business Elevation Show on Voice America talking about the Magic of Fundraising. Fundraising is a fantastic way of achieving remarkable life goals with the warm knowledge of giving back to charities and those in need....