Latest Posts

First Treatment for all patients with Duchenne approved

December 13, 2024 3:29 pm

This week we received THE BEST NEWS the first treatment for EVERYONE living with Duchenne has been approved!!!!  NICE, the National Institute of Clinical Excellence in England and Wales announced that Agamree (also known as Vamorolone) a dissociative steroid, has been approved for ALL patients with Duchenne Muscular Dystrophy....

Early Access Programme for Givinostat

November 19, 2024 2:03 pm

We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...

An incredible result for our ‘back to the 80’s rewind’ ball…

November 12, 2024 8:24 am

Wow – what an incredible evening, honestly we loved it so much!! We arrived early Saturday morning at our hosts Winstanley House to set up, decorate and get everything in place to welcome our amazing guests, and as the day went on the excitement grew – the decorations, AV, the balloon arch…….and...

Thank you Miss Great Britain

November 7, 2024 6:11 pm

The support shown for Alex’s Wish this year by the wonderful Miss Great Britain, Ms Great Britain and Ms Great Britain Classic has blown us away!...

Autumn Lunch 2024

October 15, 2024 8:48 am

What an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months....

Abseil Challenge 2024

September 30, 2024 2:34 pm

Six incredible people decided to take on the Northampton Lift Tower and a 418 foot abseil for Alex’s Wish. We were lucky with the weather, although some of the six may dispute that, secretly hoping it may be cancelled!!...

Alex’s Wish Golf Day 2024

September 25, 2024 2:02 pm

A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £11,500 – amazing!!...

Taking to the skies for Alex’s Wish

August 20, 2024 3:27 pm

Last Sunday saw 9 amazing Alex’s Wish supporters taking part in an epic Wing Walk, each of them overcoming their fears to take on this incredible challenge!...

HOT PROPERTY EVENT RAISES £36,000

August 20, 2024 10:32 am

ORGANISERS of annual charity music event Nottingham Hot Property have revealed a final figure of £36,000 as the money raised at its recent 20th anniversary extravaganza Alex’s Wish....

The Morgan Sullivan Memorial Fishing Match

July 24, 2024 9:10 am

We would like to say a huge thank you to Richard Sullivan for raising over £500 for Alex’s Wish at the annual Morgan Sullivan Memorial Fishing Match....

Fashion Show 2024

July 4, 2024 12:16 pm

Thank you to everyone who joined us at The Bodie Hodges Foundation and Alex’s Wish Fashion show – it was a fabulous event....

Football Tournament 2024

June 19, 2024 11:01 am

What a fabulous day we had at our Charity Football Tournament on Saturday, 15th June taking place at Quorn Football Club!...

An Evening with Nigel Owens MBE

June 12, 2024 2:17 pm

What a joyous night it was – An Evening with Nigel Owens MBE. A huge thank you to Ella and Rich for all your hard work over the last six months, selling tickets, getting together amazing prizes and arranging all the details for the event itself....

Supercars 2024

June 10, 2024 8:05 pm

Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...

Emma guest spot on ‘Batting the Breeze’ podcast

May 30, 2024 2:10 pm

We wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....

Multum Gin Parvo Gincello Launched

May 14, 2024 2:11 pm

We are so excited to announce the launch of the Multum Gin Parvo #BeMoreAlex Gincello. We know a big spirit when we see one and there is none bigger than that of Alex Hallam, his family and the team at Alex’s Wish....