Latest Posts

An Evening with Nigel Owens MBE

June 12, 2024 2:17 pm

What a joyous night it was – An Evening with Nigel Owens MBE. A huge thank you to Ella and Rich for all your hard work over the last six months, selling tickets, getting together amazing prizes and arranging all the details for the event itself....

Supercars 2024

June 10, 2024 8:05 pm

Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...

Emma guest spot on ‘Batting the Breeze’ podcast

May 30, 2024 2:10 pm

We wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....

Multum Gin Parvo Gincello Launched

May 14, 2024 2:11 pm

We are so excited to announce the launch of the Multum Gin Parvo #BeMoreAlex Gincello. We know a big spirit when we see one and there is none bigger than that of Alex Hallam, his family and the team at Alex’s Wish....

The Brother’s Trust funds a new prototype for the Arm Assist Suit.

April 30, 2024 1:20 pm

The revolutionary Arm Assist Suit rebranded ELEVEX project has received Grant Funding of £50,000 from Alex’s Wish, with the support of The Brothers Trust ELEVEX is being developed by Duchenne UK (DUK) in partnership with Spinal Muscular Atrophy UK, the University of Liverpool and University of Central Lancashire....

London Marathon 2024

April 24, 2024 1:28 pm

This year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...

Two new Trustees join the Board at Alex’s Wish.

April 12, 2024 10:22 am

We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....

Spring Launch 2024

March 12, 2024 1:17 pm

Our 2024 Spring Launch event took place on 7th March at the Novotel, it was great to have over 100 businesses and supporters in the room....

Sunday Spotlight – Marie Ellis

March 2, 2024 8:38 pm

Last week we had an incredibly interesting time talking to Marie Ellis from Elite Account Services about the ‘mountains’ she has had to climb over the last couple of years....

Fill our Hearts with Hope

February 15, 2024 4:08 pm

February is the month of LOVE, so what a perfect time to launch our HEART campaign….. Our heart muscles need dystrophin to function efficiently....

Our Christmas Campaign

November 29, 2023 1:01 pm

This year our Christmas Campaign is all about the Heart. Heart failure continues to be the main cause of death in Duchenne, we have recently had boys that have lost their lives at just 15....

Our Boogie Nights Ball Photo’s

November 22, 2023 9:28 am

Thank you Steven Havers – here are the fantastic photo’s from our Boogie Nights Ball 2023 – if you would like a print of any photo please see all the prices and details here www.haversbusinessphotography.com...

Sunday Spotlight – Meet ‘Team Swepstone’

October 27, 2023 11:09 am

For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....

Great news for the Duchenne Community

October 14, 2023 11:02 am

EMA recommends approval of first ever treatment for all DMD patients Today The European Medicines Agency (EMA) has recommended the approval of Vamorolone, the first ever treatment for all patients with Duchenne muscular dystrophy (DMD)....

Autumn Lunch

October 12, 2023 11:22 am

Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....