September 9, 2021 12:57 pm
Synergy Personnel Services, an East Midlands-based specialist recruitment company, have taken us on on as their Charity of the Year.
Emma Hallam, Founder and CEO of Alex’s Wish, spoke of the news saying, “I’ve known Gavin Dilkes, their Managing Director, for many years now as we network together at BNI Premier. Gavin has always been a huge supporter of Alex’s Wish and I was absolutely delighted when he let me know that Alex’s Wish had been chosen as their Charity of the Year....
September 6, 2021 4:56 pm
When life throws up roadblocks, take a new road!
Stan and Matt were all set for their arctic adventure, they were due to ride 6,000 miles through Scandinavia on a quest to reach the midnight sun....
September 6, 2021 1:54 pm
Our supporters Pure Table Top are sponsoring Oakham United U10s team on behalf of Alex’s Wish – Cure Duchenne for the 2021/2022 season ⚽️
The team is managed by Geoff Mann alongside his two friends Kevin Ainslie and Nathan Bottomley, the team’s boys will all be turning 10 during the course of the season....
July 22, 2021 1:05 pm
Leicestershire County Cricket Club have teamed up with the club’s official charity partner, Alex’s Wish, to dedicate a Vitality Blast T20 fixture to the charity to support with their fundraising efforts....
July 22, 2021 12:54 pm
Queniborough Primary School are fundraising for Alex’s Wish this year and at the beginning of June they decided to take on a challenge as part of their Sports Week – Miles for Muscles....
June 24, 2021 2:59 pm
Pure Table Top took on a 24 hour charity bike ride and they have managed to raise an incredible £4,524.58 Congratulations to everyone that took part and the incredible fundraising that meant that they raised 4 times more than their target....
June 23, 2021 10:06 am
Wow!!!! Another amazing day with Rob Barsby at aeroSPARX The Gliding Centre for Alex’s second flight lesson… and guess what Alex only took over the controls and did the loop the loop…....
June 16, 2021 10:43 am
Our first ever Supercar event took place on Sunday in the Beautiful grounds of Whatton House, we were so lucky with the weather with the sun shining all day!...
June 7, 2021 12:47 pm
Steriods are the main stay treatment for those living with Duchenne, Alex has been on them since he was 4, they come with lots of nasty side effects, including poor bone health – Alex broke his hip when he was just 9 years old.As a Charity, we wanted to support a project to help bring a new drug to market that will hopefully one day replace steriods with something that works just as well but has far less side effects....
May 27, 2021 12:40 pm
We have secured 25 virtual London Marathon places and are looking for runners………….
Zoe Edwards, Fundraising and Marketing Manager at Alex’s Wish and a keen runner herself, has already signed up. ...
May 20, 2021 9:34 am
Today is Clinical Trials Day, the work we do at Alex’s Wish is to fund clinical trials that will hopefully one day see Duchenne cured for good! Our very own Alex has taken part in two clinical trials, he’s still taking part in a trial with Ilfarmaco at Newcastle Hospital to help advance medical science for the greater good.
Clinical Trials are so important to help prove that medicines make a difference to the health of people living with medical conditions like Duchenne Muscular Dystrophy. They also give so much hope to families like ourselves. Alex continues to do well and we remain hopeful the drug he is taking is helping him keep on his feet....
May 19, 2021 2:49 pm
Duchenne UK, alongside Alex’s Wish, is committed to the ongoing success of the DMD Hub and today announced a further four years of funding for the DMD Hub Manager role, bringing total investment in the DMD Hub to £4.3million. ...
May 18, 2021 1:02 pm
Pete Miller and The Miller Partnership have joined Alex’s Wish Ethical Business Club. The well-known tax expert has supported Alex’s Wish for a number of years from sponsoring a hole at their Annual Golf Day through to taking part in the Zip Wire Challenge organised by Glynis Wright MBE during her tenure as President of the Leicestershire Law Society....
May 12, 2021 9:52 am
12 May 2021
Alex’s Wish has invested £10,000 towards a study funded by Duchenne UK that aims to improve our knowledge of treating heart muscle disease in patients with Duchenne muscular dystrophy (DMD).
Almost all people with DMD will develop heart muscle disease, or cardiomyopathy, at some stage....
May 10, 2021 12:48 pm
The Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research....
May 6, 2021 8:19 am
Alex’s Wish has funded £30,000 as part of Duchenne UK’s £287,500 investment into a new 18-month study investigating whether Lipid Nanoparticles (LNPs) could be used to help in gene therapy treatments for DMD. ...
May 4, 2021 8:26 am
One of the biggest barriers to living an independent life as a disabled person is the lack of suitable, accessible housing. ...
April 28, 2021 9:40 am
The fabulous team at Pure Table Top, based in Tugby, held a sample sale over the weekend in support of Alex’s Wish....
April 27, 2021 9:51 am
We are so pleased to introduce you to our new Ambassador’s – Natalie and Stuart Allen. Natalie and Stuart are a proud father daughter team that specialise in property....
April 15, 2021 1:32 pm
We are so excited to launch our new campaign #BeMoreAlex. This campaign evolved out of working with Brand Clear as we started to feel the effects of the pandemic on our fundraising....
