Alex learns how to fly #BeMoreAlex
June 23, 2021 10:06 amWow!!!! Another amazing day with Rob Barsby at aeroSPARX The Gliding Centre for Alex’s second flight lesson… and guess what Alex only took over the controls and did the loop the loop…....
Latest Posts
Supercar Sunday
June 16, 2021 10:43 amOur first ever Supercar event took place on Sunday in the Beautiful grounds of Whatton House, we were so lucky with the weather with the sun shining all day!...
Positive Update from Vamorolone Trial
June 7, 2021 12:47 pmSteriods are the main stay treatment for those living with Duchenne, Alex has been on them since he was 4, they come with lots of nasty side effects, including poor bone health – Alex broke his hip when he was just 9 years old.As a Charity, we wanted to support a project to help bring a new drug to market that will hopefully one day replace steriods with something that works just as well but has far less side effects....
Join Alex’s Wish at The Virtual London Marathon
May 27, 2021 12:40 pmWe have secured 25 virtual London Marathon places and are looking for runners…………. Zoe Edwards, Fundraising and Marketing Manager at Alex’s Wish and a keen runner herself, has already signed up. ...
#CTD2021
May 20, 2021 9:34 amToday is Clinical Trials Day, the work we do at Alex’s Wish is to fund clinical trials that will hopefully one day see Duchenne cured for good! Our very own Alex has taken part in two clinical trials, he’s still taking part in a trial with Ilfarmaco at Newcastle Hospital to help advance medical science for the greater good. Clinical Trials are so important to help prove that medicines make a difference to the health of people living with medical conditions like Duchenne Muscular Dystrophy. They also give so much hope to families like ourselves. Alex continues to do well and we remain hopeful the drug he is taking is helping him keep on his feet....
DMD Hub Manager post is funded for a further 4 years
May 19, 2021 2:49 pmDuchenne UK, alongside Alex’s Wish, is committed to the ongoing success of the DMD Hub and today announced a further four years of funding for the DMD Hub Manager role, bringing total investment in the DMD Hub to £4.3million. ...
The Miller Partnership join Alex’s Wish Business Club
May 18, 2021 1:02 pmPete Miller and The Miller Partnership have joined Alex’s Wish Ethical Business Club. The well-known tax expert has supported Alex’s Wish for a number of years from sponsoring a hole at their Annual Golf Day through to taking part in the Zip Wire Challenge organised by Glynis Wright MBE during her tenure as President of the Leicestershire Law Society....
Alex’s Wish help fund study to improve our knowledge of heart care in patients with DMD
May 12, 2021 9:52 am12 May 2021 Alex’s Wish has invested £10,000 towards a study funded by Duchenne UK that aims to improve our knowledge of treating heart muscle disease in patients with Duchenne muscular dystrophy (DMD). Almost all people with DMD will develop heart muscle disease, or cardiomyopathy, at some stage....
Why we should all ‘Be More Alex’…
May 10, 2021 12:48 pmThe Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research....
Technology used in COVID-19 vaccine to be used for Duchenne gene therapy research
May 6, 2021 8:19 amAlex’s Wish has funded £30,000 as part of Duchenne UK’s £287,500 investment into a new 18-month study investigating whether Lipid Nanoparticles (LNPs) could be used to help in gene therapy treatments for DMD. ...
New Project Funding into accessible housing.
May 4, 2021 8:26 amOne of the biggest barriers to living an independent life as a disabled person is the lack of suitable, accessible housing. ...
Pure Table Top raise £1,194.60
April 28, 2021 9:40 amThe fabulous team at Pure Table Top, based in Tugby, held a sample sale over the weekend in support of Alex’s Wish....
New Ambassadors – Natalie and Stuart
April 27, 2021 9:51 amWe are so pleased to introduce you to our new Ambassador’s – Natalie and Stuart Allen. Natalie and Stuart are a proud father daughter team that specialise in property....
#BeMoreAlex Campaign
April 15, 2021 1:32 pmWe are so excited to launch our new campaign #BeMoreAlex. This campaign evolved out of working with Brand Clear as we started to feel the effects of the pandemic on our fundraising....
Conquering ‘Mont Ventoux’
April 14, 2021 8:50 amFiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...
CaptainTom100
April 6, 2021 12:36 pmFriday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....
Sue Grogan launches her new book with 50% sales going to Alex’s Wish
March 22, 2021 10:33 amThis fabulous book authored by Sue Grogan ‘Wellbeing: Healthy Staff, Healthy Business – Lessons Learned in Lockdown’ is now available with 50% of sales being donated to Alex’s Wish....
Close to my Heart
March 14, 2021 10:05 amEmma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....
Rare Disease Day
February 26, 2021 10:22 amRare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...
Alex’s Wish AGM
February 23, 2021 3:37 pmYou are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...