Latest Posts

Gene Therapy Update

January 13, 2021 10:53 am

This is exciting news for all affected by Duchenne. Gene therapy cannot come soon enough it’s one of the things we are all working so hard to get....

Thank you to Property Fox

December 22, 2020 11:21 am

A huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...

Thank you and Merry Christmas

December 17, 2020 1:39 pm

As we near the end of 2020, we’ve been reflecting on what’s been achieved together.  We started the year with huge plans, with the momentum that we had established we were sure that this would be our most successful year yet!  How things changed.   However, we could not let COVID stop us, Duchenne will still be around long after we’ve been given the new vaccination for COVID.  So along with you, we have adapted and carried on pushing forward in the only way we know how.  This year has certainly shown us that resilience and determination is absolutely key.  We’ve still been able to honour all of the funds allocated to further our mission to end Duchenne....

Alex wins an award

December 17, 2020 9:02 am

We are so proud of our award winners at The Leicestershire Community Champions Awards put together by the Furnley House Foundation. ...

Un-Masquerade Celebration

December 14, 2020 3:00 pm

THANK YOU to everyone that supported our #unmasquerade celebration, because of this year we are all ‘screened out’ and so we were not sure how it would be received, but you didn’t let us down....

The Big Give Christmas Challenge

December 14, 2020 1:14 pm

We would like to say a HUGE thank you to everyone who supported our Big Give Christmas Campaign. We managed to raise just over £5,500 including gift aid which is fantastic....

Online Charity Quiz Raises £707 For Alex’s Wish

December 10, 2020 12:57 pm

An online charity quiz organised by Vehicle Consulting, Leicester has raised over £700 for local charity Alex’s Wish. Jayne Stephenson of Vehicle Consulting said, “We first heard about Alex’s Wish two years ago when I joined a networking group with Emma – the founder of Alex’s Wish and Mum to Alex, after whom the charity is named.  I was driven to tears when I first saw Emma’s 10 minute presentation about Alex’s Wish....

ActionCOACH Ed Cooper Launches Book Club… With a Heart

December 10, 2020 12:28 pm

Local business coach, Ed Cooper, has launched a BookCLUB with a difference! Says Ed, “One of the commitments I made to myself for 2020 is to help business owners in my local community gain the skills, confidence and beliefs that they need to get their already GOOD businesses to GREAT!  This will not only transform their lives for the better but also impact on their community and the people they employ....

Alex’s Wish Hug in a Mug

December 8, 2020 12:38 pm

Alex’s Wish have had these uniquely designed mugs by Pure Table Top that will be perfect for gifts for friends, family....

Embracing CSR….

November 5, 2020 10:50 am

At this year’s Leicester Business Festival, Emma Hallam, Founder of Alex’s Wish spoke alongside Stefan Fura, MD of Furnley House about how effective CSR can truly bring great value both of organisations (small, medium and large alike), charities like Alex’s Wish and the local community....

Testosterone shows improvements in Duchenne care…

October 26, 2020 1:11 pm

Alex is taking testosterone supplements, so this is such great news to hear… This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology....

Update on Solid Ignite DMD

October 2, 2020 5:34 pm

We are absolutely delighted to hear the news that the FDA has lifted the SOLID IGNITE DMD Phase 1/11 Gene Therapy Clinical Trial which had been put on hold due to a serious adverse event with a child taking part in the trial....

Emma’s Summer Blog

September 29, 2020 9:10 am

Well what a crazy year it’s been for us all, but pleased to finally have Alex and Isla back at school again learning and seeing their friends – for one thing it means I can actually get my head down and do lots of work on the charity, but also keep my fridge stocked up for a while… oh and finally get my nails and hair done....

Ben’s Kitchen’s supports the NHS and raises money for Alex’s Wish

September 28, 2020 9:44 am

Local business, Ben’s Kitchen based at Forest Hill Golf club, adapted to lockdown by preparing and delivering delicious Sunday Dinners to customers both new and old.  As well as helping the business adapt through tricky trading times, Ben’s Kitchen also decided to help two other very worthwhile causes by providing hundreds of high quality meals for NHS workers fighting COVID-19 and by donating £1 from every Sunday Dinner sold to locally-based charity Alex’s Wish....

Morgan Sullivan Memorial Fishing Match 2020

September 24, 2020 10:36 am

In June the annual Morgan Sullivan Memorial Fishing Match had to be postponed due to Covid. However they did manage to put together a last minute event last weekend, there were 25 people fishing and a raffle of fishing prizes and they managed to raise £600 for Alex’s Wish....

Coast to Coast Ride Raises over £10,000!!

September 17, 2020 1:12 pm

With many charity fundraisers cancelled due to COVID-19 one group of intrepid cyclists have just completed a Coast to Coast cycle ride for Alex’s Wish....

Third Sector Awards

September 7, 2020 11:41 am

Wow, wow, wow!!! We are over the moon that Alex’s Wish – Cure Duchenne has been short listed at this year’s national Third Sector Awards in the ‘Small Charity, Big Achiever’ category… simply amazing!!...

Wellbeing4Life organises a 12-hour Wellbeing-a-thon!

August 10, 2020 10:20 am

On Saturday, 26th September 2020 – the fabulous ladies Elain Crew and Sharon De Caestecker at Wellbeing4life are organising a 12-hour Wellbeing-a-thon to help raise money for Alex’s Wish This fabulous 12-hour event is aimed at everyone looking to improve their wellbeing, it’s designed to give you lots of wellbeing tips, healthy recipies and get you trying lots of different activities for just £20 donation to Alex’s Wish....