Latest Posts

Alex’s Wish invests £30,000 into Edasalonexent

January 8, 2020 2:04 pm

Alex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....

Leicestershire Law Society Carols for the Courts

December 20, 2019 2:42 pm

On 12th December the Leicestershire Law Society had their “Leicestershire Carols for the Courts” at Leicester Cathedral, with a reception at St Martins House....

Merry Christmas

December 2, 2019 4:38 pm

We are so proud to launch our Christmas Campaign this year on #GivingTuesday. After the frenzy of Black Friday and Cyber Monday #GivingTuesday brings back the focus on what is important during the Christmas Period....

Emma’s Autumn Update

November 29, 2019 11:31 am

As we approach the end of the year, it’s a great time to reflect on everything which has been going on.  The last time I wrote a blog, I explained that Alex had started a new clinical trial – Givinostat – which we were hopeful would help Alex and make a difference....

Scape Group Quiz Night

November 25, 2019 1:46 pm

Alex’s Wish founder Emma and a team of our Trustees had a great night at Scape Group charity quiz night, thank you so much to the Scape Group Team that worked so hard and to everyone that came along to make it a great night – raising a fabulous £4,000 for Alex’s Wish...

Fireworks in aid of Alex’s Wish

November 22, 2019 5:25 pm

Thank you so much to Leicester Cricket Club for holding a Fireworks Display in aid of Alex’s Wish and sponsored by Next....

First meeting of the Matrix Professional Network

November 22, 2019 9:28 am

A great turn out of over 100 guests attended a new networking group for members of Leicestershire’s professional services – Lawyers, Tax Specialists and Accountants....

Alex’s Wish Ball 2019

November 20, 2019 3:53 pm

Alex’s Wish 7th Annual Charity Ball took place at The Hilton East Midlands Airport. The evening was sponsored by Next and Morgan Sindall sponsored our sparkling drinks reception....

An evening at Lumbers with Paul Karslake

November 20, 2019 11:21 am

Janine Edwards Wealth Management and Antidote Art hosted a Paul Karslake Art Exhibition and dinner at Lumbers in Leicester. The evening started with a drinks reception and an opportunity to see Paul’s new collection alongside beautiful jewellery from Lumbers....

Update on Vamorolone Study

October 7, 2019 9:11 am

Top Line Data of 18-month Vamorolone treatment of Duchenne Muscular Dystrophy patients shows continued improvement of symptoms with reduction in Corticosteroid safety concerns....

Alex’s Wish Golf Day a great success

September 25, 2019 12:24 pm

Thank you to everyone that came along to our Golf Day and made it such a huge success. Thank you to all our sponsors – our headline sponsor Strategic Insurance, our Brunch and longest drive sponsor NEXT, our prize sponsor Brooksure Commercial Insurance Brokers – Coventry West Midlands, our Nearest the Pin Sponsor WK Construction, Refreshment Sponsors Hallam Read and our sponsors Vehicle Consulting Leicester Ltd, Executive Image, 2 New Street Chambers, Jay Webb Consultancy, PB Ross Electricals, United Carpets and Beds, Virtual Assistant Support Services, Gail Siddall, Ben’s Kitchen, Downtown Computers Ltd, Charnwood Brewery....

Solid Bioscience Gene Therapy Update

August 19, 2019 8:49 am

Alex’s Wish have received a positive update from Solid Bioscience on their gene therapy trial called IGNITE DMD which Alex’s Wish invested in....

Morgan Sullivan Memorial Fishing Match 2019

August 9, 2019 11:49 am

This year’s 4th Morgan Sullivan Memorial Fishing match took place despite the rain, everyone had a great time, people who fish are a hardy bunch and not much puts then off!!...

Alex meets Spiderman

July 19, 2019 12:50 pm

What a treat for Alex to meet with Spiderman, Tom Holland on Sunday at an event in London supporting those with life limiting diseases....