Latest Posts

Testosterone shows improvements in Duchenne care…

October 26, 2020 1:11 pm

Alex is taking testosterone supplements, so this is such great news to hear… This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology....

Update on Solid Ignite DMD

October 2, 2020 5:34 pm

We are absolutely delighted to hear the news that the FDA has lifted the SOLID IGNITE DMD Phase 1/11 Gene Therapy Clinical Trial which had been put on hold due to a serious adverse event with a child taking part in the trial....

Emma’s Summer Blog

September 29, 2020 9:10 am

Well what a crazy year it’s been for us all, but pleased to finally have Alex and Isla back at school again learning and seeing their friends – for one thing it means I can actually get my head down and do lots of work on the charity, but also keep my fridge stocked up for a while… oh and finally get my nails and hair done....

Ben’s Kitchen’s supports the NHS and raises money for Alex’s Wish

September 28, 2020 9:44 am

Local business, Ben’s Kitchen based at Forest Hill Golf club, adapted to lockdown by preparing and delivering delicious Sunday Dinners to customers both new and old.  As well as helping the business adapt through tricky trading times, Ben’s Kitchen also decided to help two other very worthwhile causes by providing hundreds of high quality meals for NHS workers fighting COVID-19 and by donating £1 from every Sunday Dinner sold to locally-based charity Alex’s Wish....

Morgan Sullivan Memorial Fishing Match 2020

September 24, 2020 10:36 am

In June the annual Morgan Sullivan Memorial Fishing Match had to be postponed due to Covid. However they did manage to put together a last minute event last weekend, there were 25 people fishing and a raffle of fishing prizes and they managed to raise £600 for Alex’s Wish....

Coast to Coast Ride Raises over £10,000!!

September 17, 2020 1:12 pm

With many charity fundraisers cancelled due to COVID-19 one group of intrepid cyclists have just completed a Coast to Coast cycle ride for Alex’s Wish....

Third Sector Awards

September 7, 2020 11:41 am

Wow, wow, wow!!! We are over the moon that Alex’s Wish – Cure Duchenne has been short listed at this year’s national Third Sector Awards in the ‘Small Charity, Big Achiever’ category… simply amazing!!...

Wellbeing4Life organises a 12-hour Wellbeing-a-thon!

August 10, 2020 10:20 am

On Saturday, 26th September 2020 – the fabulous ladies Elain Crew and Sharon De Caestecker at Wellbeing4life are organising a 12-hour Wellbeing-a-thon to help raise money for Alex’s Wish This fabulous 12-hour event is aimed at everyone looking to improve their wellbeing, it’s designed to give you lots of wellbeing tips, healthy recipies and get you trying lots of different activities for just £20 donation to Alex’s Wish....

Alex takes on My Ride London

July 31, 2020 10:54 am

Our very own Alex, and a team of friends will ride a combined total of 30km on 15 wheels in My Prudential RideLondon to raise money to find a cure for the disease he lives with....

The Results are in For Danaher & Walsh!

July 8, 2020 2:08 pm

Leicestershire-based Danaher & Walsh have announced the results of a year of fundraising on behalf of Alex’s Wish. Dan Danaher, Managing Director of Danaher & Walsh said, “Danaher & Walsh chose Alex’s Wish as our Charity of the Year this time last year and we are thrilled to have just donated £5,000 to them. ...

Netmetix continues support

June 12, 2020 7:53 am

Netmetix Continues to Lend Support to Alex’s Wish Coventry-based Netmetix has pledged to continue supporting Midlands-based charity, Alex’s Wish, whose mission is to find treatments and – ultimately – a cure for Duchenne Muscular Dystrophy a life limiting muscle-wasting disease affecting 1 in every 3,500 boys born in the UK.  It is the biggest genetic childhood killer condition and the most lethal and common form of Muscular Dystrophy....

Emma’s blog – freedom!!

June 8, 2020 8:57 am

Dear supporters, I hope you are keeping well and sane during these times. It feels like such a long time ago when we were able to be out and about seeing our supporters at our events, but hopefully we’ll all be able to see each other again soon....

Unprecedented support from our trustees

May 29, 2020 8:50 am

Despite the unprecedented events of the last two months businesses are still more than happy to help charities close to their heart wherever they can.  We have been literally blown away by some of the ideas and conversations that I’ve had over the last few weeks.  It has made me realise and appreciate just how lucky we are as a charity to have the supporters, volunteers, Trustees and Ambassadors that we do....

Living with a new normal

May 15, 2020 2:05 pm

Living a new normal is what we are hearing a lot about in the press and social media at the moment, with COVID-19 affecting our everyday lives – not being able to do things we always have....