Supercar Day Success
July 29, 2022 12:54 pmSupercars 2022 raises £12,120 for Alex’s Wish This year’s Alex’s Wish annual Supercars event was another resounding success, raising a wonderful £12,120 for the Leicestershire-based Duchenne charity....
Latest Posts
We are excited that we have invested £87,000 towards development of revolutionary mobility SMART suit
July 8, 2022 11:28 amWe recently announced that Duchenne UK has been awarded £1.25 million from the People’s Postcode Lottery Dream Fund to develop a revolutionary mobility suit....
Italfarmaco announces positive topline data from Phase 3 trial showing positive benefits of Givinostat in Duchenne
July 4, 2022 1:10 pmItalfarmaco Group Announces Positive Topline Data from Phase 3 Trial Showing Beneficial Effect of Givinostat in Patients with Duchenne Muscular Dystrophy — Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint — — Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile — — The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD — — Results were presented at the Annual PPMD Conference on June 25, 2022 — MILAN, Italy, June 25, 2022 – Italfarmaco Group announced today positive topline data from its completed Phase 3 EPIDYS trial with Givinostat, the company’s proprietary histone deacetylase (HDAC) inhibitor, in boys with Duchenne Muscular Dystrophy (DMD)....
Important Update on Alex’s Clinical Trial
June 30, 2022 11:49 amThis is great news for the Duchenne community. We would like to share this news with all of our wonderful supporters....
Biker Stan gears up for intrepid Nordic adventure for Alex’s Wish
June 23, 2022 9:51 amIntrepid motorcyclist Stan Hulme, also known as the ‘Inspired Rider’ is about to embark on a 6,000-mile Nordic solo expedition across the Scandinavian Arctic in aid of Alex’s Wish....
Emma’s Blog June 2022
June 16, 2022 11:10 amWow doesn’t it feel like such a long time ago that we were all in lockdown. Spring has been a full-on fun-packed time, with birthday celebrations, charity events, clinical trial reviews, Jubilee celebrations, driving experiences, disability skiing… and that’s just the weekends!...
Sunday Spotlight – Gill Castle
June 9, 2022 11:56 amThe birth of Gill Castle’s son changed her life forever. Not just in the fact she became a mother, but the trauma of childbirth left her with a permanent stoma, a surgery which someone in the UK undergoes every 39 minutes....
Football Tournament 2022
June 1, 2022 1:28 pmA huge well done to the winners of our Football Tournament on Saturday – DT Systems Electrical Ltd – they took the trophy 🏆 from reigning champions Hallam Read who came second....
Spirit Pharmacy Charnwood Forest Cycle Ride 2022
May 18, 2022 10:10 amOur 10th Charnwood Forest Cycle Ride 2022 took place on Sunday and we were so lucky with the weather. Rain was predicted and we only got sunshine, a perfect day to cycle....
Sunday Spotlight: Rich Copson
May 8, 2022 7:12 pmWe all have things that we want to hide. Secrets, embarrassing stories, a whole host of information that must be kept out of the public eye....
Synergy Personnel takes on a series of tough challenges for us, as their Charity of the Year
May 5, 2022 1:23 pmRecruitment business Synergy Personnel has again chosen Alex’s Wish as its Charity of The Year, unveiling an action-packed programme of fundraising events this summer and autumn....
Alex’s Wish Ethical Business Club welcomes three new members
April 13, 2022 8:17 amWe have welcomed three more local businesses – Synergy Personnel, Kazoo and SAS Accounting Solutions – to its Ethical Business Club....
Sunday Spotlight: Archie’s Army
March 20, 2022 8:21 pmJust like our Alex, and so many young boys in the country, eight- year-old Archie has Duchenne. Here, his Mum Sam Hurst tells trustee Tom Carter how the muscular dystrophy diagnosis changed their family’s world and inspired them to start their own charity....
Alex’s Wish encouraged by Solid Biosciences gene therapy project update
March 8, 2022 2:50 pmWe have received an encouraging update on a gene therapy research project that we helped to fund. In 2016 the charity invested £50,000 with life science company Solid Biosciences Inc in support of its IGNITE DMD clinical trial study for SGT-001 gene therapy....
Prepare for Emergencies with the Duchenne UK App
March 8, 2022 2:26 pmWhen Amanda’s son Tomos-William fell forward in his shower chair, she didn’t know that, because of his DMD, he was vulnerable to certain complications. ...
Sunday Spotlight: Sophie Grace Holmes
March 4, 2022 3:46 pmIn the UK today, more than 10,000 people suffer from the life-threatening lung disease cysticfibrosis – that’s one in every 2500 babies born....
We’re Hiring
February 8, 2022 4:52 pmAlex’s Wish seeks part-time paid admin assistant Would you like a rewarding part-time paid admin role? Well, how about working for a local organisation that’s really making a difference to people’s lives....
Support from Alex’s Wish helps fund Duchenne Muscular Dystrophy (DMD) Clinical Trials Lectureship.
January 28, 2022 1:51 pmWe are delighted to report the outcomes of our grant for a Duchenne Muscular Dystrophy (DMD) Clinical Trials Lectureship. The grant, which was supported by a consortium of seven UK charities, saw Alex’s Wish joined by Duchenne UK, Action Duchenne, Duchenne Research Fund, Duchenne Now, Duchenne UK, Harrison’s Fund and Joining Jack to invest a total of £250,000....
Thank You to our Wonderful Ambassador Rich Copson
January 27, 2022 5:21 pmA huge thank you to Rich Copson, for being one of our wonderful Ambassadors for Alex’s Wish Our charity is held together by all the wonderful supporters we have, Rich Copson, being one of our longest serving Ambassadors and good friend....
Time to Expore Ball 2021
November 24, 2021 1:52 pmIt was amazing to see so many supporters at our Charity Ball on Saturday, amazing memories made and what made it so very special is that our very own Alex was there as well....