Latest Posts

Update on Alex’s Trial Application

January 29, 2019 9:38 am

Bitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....

Alex’s Trial Update

January 10, 2019 12:13 pm

Here we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...

End of Year Update from Emma

December 20, 2018 9:07 pm

As 2018 comes to end, I wanted to share with you an update on how this year has gone. For a start, it’s been our best year in terms of fundraising....

Alex's Wish invests into Tamoxifen Open Label Extension Study

Alex’s Wish invests £30,000 to Tamoxifen Open Label Extension Study

December 14, 2018 10:56 am

So pleased to let you know that we have just invested the £30,000 raised at the Mardi Gras Ball! In 2017 we funded £25,000 into a €675,000 funding towards TAMDMD, a phase 3 clinical trial to test the breast cancer drug tamoxifen for use in patients with Duchenne muscular dystrophy. ...

Mardi Gras Ball raises £30,000

November 21, 2018 12:17 pm

Our wonderful Mardi Gras Ball took place on Saturday night at The Village Hotel and raised a staggering £30,000. The evening was a huge success thanks to all our lovely supporters that came along, some who come year after year and those that came for the first time....

Alex’s Wish grants £60,000 to Evox Therapeutics

November 19, 2018 9:15 pm

This is an exciting time for research into Duchenne Muscular Dystrophy (DMD). Several companies are now testing an approach that uses a synthetic gene to replace the faulty dystrophin gene in Duchenne....

Charity Dinner Dance

November 2, 2018 2:12 pm

On the 6th October  the Pujara Charitable Foundation (PCF) held a wonderful Dinner & Dance at The Valley Suites, Leicester.  The PCF are a local charitable foundation that raises money to help numerous local charities....

The Shimmering Masquerade Dinner

October 30, 2018 8:50 pm

The Shimmering Masquerade Dinner took place at Lumbers Jewellers in Leicester in support of local charity Alex’s Wish. The dinner was the brainchild of Janine Edwards of Janine Edwards Wealth Management – a Trustee and avid supporter of the charity....

Funding Update

October 18, 2018 2:50 pm

Alex’s Wish has been working with Duchenne UK to invest and fund in some very important projects over the last couple of years and here is an update of our funding....

An update from Emma

October 12, 2018 9:55 am

I thought it was time I wrote a blog about what’s been happening of late. Alex continues to do well, he’s still mobile which is a wonderful thing although I do find myself constantly watching over him and checking he’s okay when we’re out and about....

New Research Project

October 8, 2018 2:02 pm

Duchenne UK, Joining Jack and Alex’s Wish are jointly funding £86,460 into a study to further understand the causes of heart disease in DMD. ...

Alex’s Wish 8th Golf Day

September 27, 2018 11:54 am

Last Friday we had our 8th Annual Golf day at Rothley Park Golf Club. We would like to thank our main sponsors WK Construction and Next, our refreshment sponsors Synergy Recruitment Leicester, Longest Drive sponsor KRS Estate Planning, our hole sponsors Alex Benyon Photography, Juice Apps, Sturgess Hutchinson, Spirit Healthcare, Janine Edwards Wealth Management, PB Ross Electrical Contractors, D F Building Services, Caveney Associates and Charnwood Brewery....

The Business Elevation Show – The Magic of Fundraising

September 26, 2018 4:02 pm

Emma was a guest on The Business Elevation Show on Voice America talking about the Magic of Fundraising. Fundraising is a fantastic way of achieving remarkable life goals with the warm knowledge of giving back to charities and those in need....

Taking on the Wolf Run

September 13, 2018 10:58 am

At the beginning of September, some of the Furnley House team completed the Wolf run in Warwickshire. There was lots of mud, some tears, lots of bruises but most importantly, a load of fun!...

Summer Sky Dive

September 11, 2018 8:36 am

In August Gordon Rodham and John Woolhouse jumped out of a plane at 13,000 ft to Sky Dive and raise funds for Alex’s Wish....

Morgan Sullivan Memorial Fishing

September 6, 2018 7:54 am

Morgan Sullivan Memorial Fishing match was held on Saturday 21st July at Hemmington Lakes, Castle Donnington This is the third year the fishing match has been held in memory of Morgan Sullivan who sadly lost his battle to Duchenne in 2015....

Marks John O’Groats to Lands End Run

August 29, 2018 8:58 am

Our fabulous supporter Mark Smith is less than a week away from his epic challenge of running from John O’Groats to Land’s End. ...

Brian cycles to Skegness

August 5, 2018 10:23 am

Brian works at Spirit Healthcare who are supporting us this year. To raise funds for Alex’s Wish Brian took on the huge challenge of cycling to Skegness last weekend....

Update on Gene Therapy

July 3, 2018 12:53 pm

In recent years, our community has watched with hope as pre-clinical data has emerged showing the promise of gene therapy as a valuable treatment for everyone living with Duchenne Muscular Dystrophy. ...