Advice for Emergency Care:
February 5, 2020 11:37 amChildren with DMD experience the normal childhood illnesses and accidents. But, because their muscles are weaker, some things are more serious for them than other children....
Latest Posts
Leicestershire-based Creative Agency to Support Alex’s Wish
February 3, 2020 9:48 amLeicestershire based creative agency, Masters Allen, have agreed an exciting ‘Services in Kind’ partnership with regional charity Alex’s Wish. Masters Allen have agreed to support Alex’s Wish as their sole creative agency. Speaking of the partnership Aidan Rooney, Managing Director & Partner at Masters Allen said, “We’ve been Alex’s Wish Business Club members for some time now but felt that we could do so much more to help the charity....
Alex’s Wish invest in a new grant to help improve the success rate of clinical trials
January 30, 2020 3:24 pmPromising drugs for Duchenne Muscular Dystrophy (DMD) which are tested on animals do not always respond the same way in humans....
Alex’s Wish invests £30,000 into Edasalonexent
January 8, 2020 2:04 pmAlex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....
Leicestershire Law Society Carols for the Courts
December 20, 2019 2:42 pmOn 12th December the Leicestershire Law Society had their “Leicestershire Carols for the Courts” at Leicester Cathedral, with a reception at St Martins House....
Merry Christmas
December 2, 2019 4:38 pmWe are so proud to launch our Christmas Campaign this year on #GivingTuesday. After the frenzy of Black Friday and Cyber Monday #GivingTuesday brings back the focus on what is important during the Christmas Period....
Emma’s Autumn Update
November 29, 2019 11:31 amAs we approach the end of the year, it’s a great time to reflect on everything which has been going on. The last time I wrote a blog, I explained that Alex had started a new clinical trial – Givinostat – which we were hopeful would help Alex and make a difference....
Scape Group Quiz Night
November 25, 2019 1:46 pmAlex’s Wish founder Emma and a team of our Trustees had a great night at Scape Group charity quiz night, thank you so much to the Scape Group Team that worked so hard and to everyone that came along to make it a great night – raising a fabulous £4,000 for Alex’s Wish...
Fireworks in aid of Alex’s Wish
November 22, 2019 5:25 pmThank you so much to Leicester Cricket Club for holding a Fireworks Display in aid of Alex’s Wish and sponsored by Next....
First meeting of the Matrix Professional Network
November 22, 2019 9:28 amA great turn out of over 100 guests attended a new networking group for members of Leicestershire’s professional services – Lawyers, Tax Specialists and Accountants....
Alex’s Wish Ball 2019
November 20, 2019 3:53 pmAlex’s Wish 7th Annual Charity Ball took place at The Hilton East Midlands Airport. The evening was sponsored by Next and Morgan Sindall sponsored our sparkling drinks reception....
An evening at Lumbers with Paul Karslake
November 20, 2019 11:21 amJanine Edwards Wealth Management and Antidote Art hosted a Paul Karslake Art Exhibition and dinner at Lumbers in Leicester. The evening started with a drinks reception and an opportunity to see Paul’s new collection alongside beautiful jewellery from Lumbers....
Being socially responsible is good for business and good for staff
October 9, 2019 9:26 amOne of the biggest challenges business owners face is the attraction, retention, development and return on the people that they employ....
Update on Vamorolone Study
October 7, 2019 9:11 amTop Line Data of 18-month Vamorolone treatment of Duchenne Muscular Dystrophy patients shows continued improvement of symptoms with reduction in Corticosteroid safety concerns....
The Solid Suit: Wearable support for patients with Duchenne muscular dystrophy (DMD)
September 30, 2019 8:42 amDuchenne UK has made a grant of $200,000 to help support the Solid Suit program, of which Alex’s Wish funded £35,000....
Alex’s Wish Golf Day a great success
September 25, 2019 12:24 pmThank you to everyone that came along to our Golf Day and made it such a huge success. Thank you to all our sponsors – our headline sponsor Strategic Insurance, our Brunch and longest drive sponsor NEXT, our prize sponsor Brooksure Commercial Insurance Brokers – Coventry West Midlands, our Nearest the Pin Sponsor WK Construction, Refreshment Sponsors Hallam Read and our sponsors Vehicle Consulting Leicester Ltd, Executive Image, 2 New Street Chambers, Jay Webb Consultancy, PB Ross Electricals, United Carpets and Beds, Virtual Assistant Support Services, Gail Siddall, Ben’s Kitchen, Downtown Computers Ltd, Charnwood Brewery....
New Chairman and Trustee join our Team
August 21, 2019 9:35 amWe are excited to share with you that we have appointed a new Chairman of our Board of Trustees and a new Trustee. ...
Solid Bioscience Gene Therapy Update
August 19, 2019 8:49 amAlex’s Wish have received a positive update from Solid Bioscience on their gene therapy trial called IGNITE DMD which Alex’s Wish invested in....
The sun shone again for our Charnwood Forest Cycle Ride
August 9, 2019 1:47 pmOn the 12th May The Charnwood Forest Cycle Ride sponsored by Glynis Wright & Co took place and we were lucky enough again this year for the sun to shine....
Our Trustee Glynis Wright becomes President of the Leicestershire Law Society
August 9, 2019 12:28 pmCongratulations to our Trustee Glynis Wright on becoming the 9th female President of the Leicestershire Law Society, a fabulous evening, thank you from the bottom of my heart for choosing Alex’s Wish, we are honoured & delighted to be involved such an amazing opportunity....