January 27, 2022 5:21 pmPublished by Emma HallamComments Off on Thank You to our Wonderful Ambassador Rich Copson
A huge thank you to Rich Copson, for being one of our wonderful Ambassadors for Alex’s Wish
Our charity is held together by all the wonderful supporters we have, Rich Copson, being one of our longest serving Ambassadors and good friend....
November 24, 2021 1:52 pmPublished by Emma HallamComments Off on Time to Expore Ball 2021
It was amazing to see so many supporters at our Charity Ball on Saturday, amazing memories made and what made it so very special is that our very own Alex was there as well....
October 11, 2021 8:45 amPublished by Emma HallamComments Off on Alex’s Wish Supporters Lunch 2021
On Friday 8th October we held our Supporters’ Thank you Lunch at the Novotel in Leicester. It was a great event and so good to be able to invite all our supporters, in person, to thank them for all that they had done for us over the last 18 months....
September 27, 2021 8:44 amPublished by Emma HallamComments Off on Golf Day 2021
A huge thanks to everyone that came along to support Alex’s Wish 10th Golf Day! What a great day – fabulous sunshine, great company and we raised an incredible £10K!...
September 9, 2021 12:57 pmPublished by Emma HallamComments Off on Synergy Personnel Take on Alex’s Wish as Charity of the Year
Synergy Personnel Services, an East Midlands-based specialist recruitment company, have taken us on on as their Charity of the Year.
Emma Hallam, Founder and CEO of Alex’s Wish, spoke of the news saying, “I’ve known Gavin Dilkes, their Managing Director, for many years now as we network together at BNI Premier. ...
September 6, 2021 4:56 pmPublished by Emma HallamComments Off on The quest to beat the setting sun
When life throws up roadblocks, take a new road!
Stan and Matt were all set for their arctic adventure, they were due to ride 6,000 miles through Scandinavia on a quest to reach the midnight sun....
September 6, 2021 1:54 pmPublished by Emma HallamComments Off on Pure Table Top sponsor Oakham United U10’s
Our supporters Pure Table Top are sponsoring Oakham United U10s team on behalf of Alex’s Wish – Cure Duchenne for the 2021/2022 season ⚽️
The team is managed by Geoff Mann alongside his two friends Kevin Ainslie and Nathan Bottomley, the team’s boys will all be turning 10 during the course of the season....
July 22, 2021 1:05 pmPublished by Emma HallamComments Off on Supporting Alex’s Wish with a themed T20 match
Leicestershire County Cricket Club have teamed up with the club’s official charity partner, Alex’s Wish, to dedicate a Vitality Blast T20 fixture to the charity to support with their fundraising efforts....
July 22, 2021 12:54 pmPublished by Emma HallamComments Off on Queniborough School raise £1,000 running Miles for Muscles.
Queniborough Primary School are fundraising for Alex’s Wish this year and at the beginning of June they decided to take on a challenge as part of their Sports Week – Miles for Muscles....
June 24, 2021 2:59 pmPublished by Emma HallamComments Off on Thank you Pure Table Top
Pure Table Top took on a 24 hour charity bike ride and they have managed to raise an incredible £4,524.58 Congratulations to everyone that took part and the incredible fundraising that meant that they raised 4 times more than their target....
June 23, 2021 10:06 amPublished by Emma HallamComments Off on Alex learns how to fly #BeMoreAlex
Wow!!!! Another amazing day with Rob Barsby at aeroSPARX The Gliding Centre for Alex’s second flight lesson… and guess what Alex only took over the controls and did the loop the loop…....
June 16, 2021 10:43 amPublished by Emma HallamComments Off on Supercar Sunday
Our first ever Supercar event took place on Sunday in the Beautiful grounds of Whatton House, we were so lucky with the weather with the sun shining all day!...
June 7, 2021 12:47 pmPublished by Emma HallamComments Off on Positive Update from Vamorolone Trial
Steriods are the main stay treatment for those living with Duchenne, Alex has been on them since he was 4, they come with lots of nasty side effects, including poor bone health – Alex broke his hip when he was just 9 years old.As...
May 27, 2021 12:40 pmPublished by Emma HallamComments Off on Join Alex’s Wish at The Virtual London Marathon
We have secured 25 virtual London Marathon places and are looking for runners………….
Zoe Edwards, Fundraising and Marketing Manager at Alex’s Wish and a keen runner herself, has already signed up. ...
May 19, 2021 2:49 pmPublished by Emma HallamComments Off on DMD Hub Manager post is funded for a further 4 years
Duchenne UK, alongside Alex’s Wish, is committed to the ongoing success of the DMD Hub and today announced a further four years of funding for the DMD Hub Manager role, bringing total investment in the DMD Hub to £4.3million. ...
May 18, 2021 1:02 pmPublished by Emma HallamComments Off on The Miller Partnership join Alex’s Wish Business Club
Pete Miller and The Miller Partnership have joined Alex’s Wish Ethical Business Club. The well-known tax expert has supported Alex’s Wish for a number of years from sponsoring a hole at their Annual Golf Day through to taking part in the Zip Wire Challenge organised by Glynis Wright MBE during her tenure as President of the Leicestershire Law Society....
May 12, 2021 9:52 amPublished by Emma HallamComments Off on Alex’s Wish help fund study to improve our knowledge of heart care in patients with DMD
12 May 2021
Alex’s Wish has invested £10,000 towards a study funded by Duchenne UK that aims to improve our knowledge of treating heart muscle disease in patients with Duchenne muscular dystrophy (DMD). ...
May 10, 2021 12:48 pmPublished by Emma HallamComments Off on Why we should all ‘Be More Alex’…
The Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research....
May 6, 2021 8:19 amPublished by Emma HallamComments Off on Technology used in COVID-19 vaccine to be used for Duchenne gene therapy research
Alex’s Wish has funded £30,000 as part of Duchenne UK’s £287,500 investment into a new 18-month study investigating whether Lipid Nanoparticles (LNPs) could be used to help in gene therapy treatments for DMD. ...