Why we should all ‘Be More Alex’…

May 10, 2021 12:48 pm

The Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research. It was incredibly important we didn’t stop our work.

Over the past 14 months, we’ve still been able to generate funds with virtual events and supporter initiatives but we are at least 30% down on funds.

Alex is the one that makes our charity brand and vision so personal.  He has shown incredible strength and determination throughout the Pandemic, regardless of his daily challenges as a result of his condition.  He never gives up, never complains and always, always strives to do his best.  This is typical of boys with Duchenne. They are amazing, they always have a smile on their face despite so many personal challenges and sacrifices they have to make.

We’ve seen too many boys recently lose their battle with Duchenne at such a young age. It’s absolutely heart-breaking.  It’s true that we never know when our child’s life will end – but it’s a daily worry for parents with a child with Duchenne – a condition that is life-limiting. It is sadly too late for them; but it drives us to carry on doing what we can in their memory to help this and the next generation of boys and change the course of this hideous disease.

Our Be More Alex campaign was launched in April with the help from our friends at Brand Clear. Our inspiration came from three fundamental building blocks of what we stand for – Time, Health and Family. We wanted to create something that would engage our supporters, by giving just £7 a month, they become part of our incredible journey to conquer Duchenne.

Every month, our Be More Alex supporters receive an inspirational message from Alex – what he has been doing, his challenges and how he’s overcoming those – alongside fun and engaging ways to get involved…. ‘When life gives you lemons… make lemon meringue pie!!’  Being part of Be More Alex you’ll be invited along to events to enjoy with the family our Supercar event is just one example of what’s coming.

We are on a mission to sign-up 200 supporters each donating £7 a month by the end of this year.  One of the best ways you can support us is to donate regularly, as this ensures regular income when events are not running. You can sign-up today – it’s super easy by visiting https://alexswish.co.uk/bemorealex/

Come on let’s all Be More Alex, let’s help save thousands of boys’ lives and give them hope for a brighter future. Your support is needed more so than ever before. Research has taken a back seat and we must get it back on track.

Much love as ever, Emma (Alex’s mum) X

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