Testosterone shows improvements in Duchenne care…

Alex is taking testosterone supplements, so this is such great news to hear…

This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology. This study was funded by Duchenne Now, and carried out in Newcastle upon Tyne with 15 patients.

The trial was looking at both the physical and psychological affects of taking testosterone in DMD patients, whilst also on steroids. The results were positive, with increased height in most patients, improvements in muscle function and reduced levels of inflammation. It was well tolerated and many patients gave high satisfaction scores for taking part in the trial.

Alex’s Wish alongside Duchenne UK helped fund a Testosterone extension study, to see if the levels of testosterone will remain the same once the injections have stopped. Although testosterone is not part of the recommended Standards of Care, which is currently being reviewed by the DMD Care UK team, this study could lead to its inclusion.

We would like to say a huge thank you to all of our supporters for enabling us to invest in this project, this is proof your support is making a difference to all boys living with Duchenne – thank you.

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