May 14, 2015 2:06 pmPublished by Emma HallamComments Off on Donation from Leicester Grammar School
We are delighted to receive a £500 donation from Leicester Grammar School. One of their pupils nominated us to their Charities Committee, who voted to donate this money to us. ...
May 14, 2015 1:50 pmPublished by Emma HallamComments Off on £500 donation from Dolphin Brewin
Fabulous News! The Dolphin Brewin Foundation has very kindly donated £500 to Alex’s Wish. We would like to thank Robert Branham for putting us forward and to the management committee for choosing us as one of their charities to support this year....
April 28, 2015 11:41 amPublished by Emma HallamComments Off on First genetic cure for rare diseases!
New era of medicine begins as first children cured of genetic disorder
The pioneering therapy offers hope to the hundreds thousands of people suffering from inherited conditions
This story gives hope to boys living with Duchenne Muscular Dystrophy....
April 28, 2015 11:35 amPublished by Emma HallamComments Off on Paula Parsons runs the London Marathon
A massive well done to Paula Parsons one of the school mums at Alex’s Wish for completing today’s London Marathon raising over £500 for Alex’s Wish!!...
April 28, 2015 11:31 amPublished by Emma HallamComments Off on Token of Support Campaign raises £500
We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause....
March 10, 2015 10:34 amPublished by Emma HallamComments Off on Crazy Sky Divers raise £13,500
Sky Diving Wish Warriors raise £13,500 for Alex’s Wish
A team of 17 took to the skies to take part in a Tandem Sky Dive on Sunday, 8th March in aid of Alex’s Wish at Langar Airfield, British Parachute School in Nottingham....
February 23, 2015 12:55 pmPublished by Emma HallamComments Off on 3 Crazy Challenges for my son
This year I’ve decided to take on 3 Crazy Challenges to raise vital money to help save my son from having to suffer the constant progression Duchenne is having on his body....
February 23, 2015 11:21 amPublished by Emma HallamComments Off on Super media coverage
We would like to thank Rachel Hargraves from RDZ-PR who is donating her time to Alex’s Wish – a true Wish Warrior – to raise awareness of our cause....
February 17, 2015 11:25 amPublished by Emma HallamComments Off on $70,000 pledged to new drug
Yesterday, Alex’s Wish pledged $70,000 to support the next step in bringing VPB15 (a new novel anti-inflammatory steriod drug) to boys with Duchenne Muscular Dystrophy. ...
February 17, 2015 10:54 amPublished by Emma HallamComments Off on Vigil for Translarna
On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna. ...
January 30, 2015 11:13 amPublished by Emma HallamComments Off on Urgent Call to Action – Translarna
Patients with Duchenne Muscular Dystrophy have been specifically disadvantaged by the failure of the NHS England system to consider funding drugs for rare diseases....
January 20, 2015 11:49 amPublished by Emma HallamComments Off on Translarna Lobby
Alex’s Wish took part in a lobby at Westminster on Wednesday, 14th January with the aim to ensure early availability and full funding of a pioneering new treatment called Translarna....
January 4, 2015 8:15 pmPublished by Emma HallamComments Off on Welcome 2015… January is a new fresh start!
If you’re looking for a new challenge, why not join us and be an Alex’s Wish warrior!
You’ll be taking on an exciting and fulfilling challenge and meeting your own personal goals whilst fundraising for a cause that will help the lives of thousands of children and young adults. ...
December 30, 2014 1:29 pmPublished by Emma HallamComments Off on Thank you Jessica!
Now this is a tale about one of our amazing Wish Warriors, her name is Jessica Apps. Jessica for years had tried to fall in love with running, and finally about 2 years ago it started to click....
December 18, 2014 11:06 amPublished by Emma HallamComments Off on Wishing all our supporters a very Merry Christmas
We would like to wish all our wonderful supporters a very Merry Christmas!
Thank you all so much for all your support to date you have been AMAZING....
December 9, 2014 12:07 pmPublished by Emma HallamComments Off on AMETEK Inc. donates $15,000
We are absolutely thrilled to receive a cheque for £9,400 (equivalent of $15,000) this week from Nick Maddock, Marketing Communications Manager at Taylor Hobson Limited....