Tag Archive: DUchenne Muscular Dystrophy

First genetic cure for rare diseases!

April 28, 2015 11:41 am

New era of medicine begins as first children cured of genetic disorder The pioneering therapy offers hope to the hundreds thousands of people suffering from inherited conditions This story gives hope to boys living with Duchenne Muscular Dystrophy....

Paula Parsons runs the London Marathon

April 28, 2015 11:35 am

A massive well done to Paula Parsons one of the school mums at Alex’s Wish for completing today’s London Marathon raising over £500 for Alex’s Wish!!...

Token of Support Campaign raises £500

April 28, 2015 11:31 am

We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause....

Crazy Sky Divers raise £13,500

March 10, 2015 10:34 am

Sky Diving Wish Warriors raise £13,500 for Alex’s Wish A team of 17 took to the skies to take part in a Tandem Sky Dive on Sunday, 8th March in aid of Alex’s Wish at Langar Airfield, British Parachute School in Nottingham....

3 Crazy Challenges for my son

February 23, 2015 12:55 pm

This year I’ve decided to take on 3 Crazy Challenges to raise vital money to help save my son from having to suffer the constant progression Duchenne is having on his body....

$70,000 pledged to new drug

February 17, 2015 11:25 am

Yesterday, Alex’s Wish pledged $70,000 to support the next step in bringing VPB15 (a new novel anti-inflammatory steriod drug) to boys with Duchenne Muscular Dystrophy.  ...

Vigil for Translarna

February 17, 2015 10:54 am

On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna.  ...

Pamper evening success

March 5, 2014 2:28 pm

Ladies Pamper Evening sponsored by Aidan J Reed Estate Agents held on Friday, 28th February raises £1,200 for Alex’s Wish. The evening saw sixty five ladies turn up to be pampered for a great cause....

Looking forward to 2014

March 5, 2014 2:11 pm

What an astonishing year 2013 was – through our amazing supporters we raised £100,000 for research into Duchenne Muscular Dystrophy. For now Alex is doing well....

What a successful first year…

October 1, 2013 11:10 am

Alex’s Wish has been up and running for a year now – and what a year it has been! To date, we have raised over £60,000 to be invested in new clinical trials and research projects to help all children living with Duchenne....