Tag Archive: DUchenne Muscular Dystrophy

Rothley Duck Race raises £705.00

July 14, 2016 12:56 pm

We would like to thank The Nottingham Building Society for organising the inaugural Rothley Duck Race this year and for allowing Alex’s Wish to be a part of it....

London to Paris Cycle Ride raises £25,000

July 14, 2016 12:40 pm

Alex’s Wish organised a London to Paris Cycle Ride over a 3 day period from 1-3th July this year.  With 11 cyclists taking part in the event the charity has raised a staggering £25,000 and money is still coming in....

A week full of mixed emotions

April 25, 2016 12:43 pm

What a week it has been! The emotions I’ve felt this week has been unbelievable. Alex took part in a film on Monday, I can’t tell you anything now but what I can say is that he was incredible and everyone on set fell in love with him....

Watermead Challenge supports Alex’s Wish

April 20, 2016 1:16 pm

We would like to thank The Rotary Club of Wreake Valley and the new Syston Rotary Club for choosing Alex’s Wish as their charity to benefit from their Watermead Challenge in 2016.  ...

Ratcliffe College supports Alex’s Wish

February 1, 2016 4:09 pm

We are absolutely delighted that Ratcliffe College Parent’s Association has chosen Alex’s Wish as one of the chosen charities to benefit from all profits raised at this year’s Spring Fair.  ...

Charities announce £1.2m investment into key clinical posts

December 23, 2015 12:01 pm

Alex’s Wish and seven other patient organisations, who are working to eradicate Duchenne Muscular Dystrophy, are funding a total of 16 clinical posts at Great Ormond Street Hospital in London, The John Walton Muscular Dystrophy Research Centre at Newcastle University and Alder Hey Children’s Hospital in Liverpool, to help support clinical trial development for Duchenne Muscular Dystrophy....

Spreading the love this Christmas

December 1, 2015 4:03 pm

This Christmas instead of buying Christmas cards and paying for postage why not donate that money to Alex’s Wish and in return we will give you a warm fuzzy feeling instead and a lovely jpeg to send to your friends electronically to help spread the love this Christmas!...

Bradgate Rotary raises £1,200

April 28, 2015 11:43 am

Absolutely wonderful news, the newly formed Bradgate Rotary Club has donated £1,200.00 to our cause, the most they have ever donated to date!...

First genetic cure for rare diseases!

April 28, 2015 11:41 am

New era of medicine begins as first children cured of genetic disorder The pioneering therapy offers hope to the hundreds thousands of people suffering from inherited conditions This story gives hope to boys living with Duchenne Muscular Dystrophy....

Paula Parsons runs the London Marathon

April 28, 2015 11:35 am

A massive well done to Paula Parsons one of the school mums at Alex’s Wish for completing today’s London Marathon raising over £500 for Alex’s Wish!!...

Token of Support Campaign raises £500

April 28, 2015 11:31 am

We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause....

Crazy Sky Divers raise £13,500

March 10, 2015 10:34 am

Sky Diving Wish Warriors raise £13,500 for Alex’s Wish A team of 17 took to the skies to take part in a Tandem Sky Dive on Sunday, 8th March in aid of Alex’s Wish at Langar Airfield, British Parachute School in Nottingham....

3 Crazy Challenges for my son

February 23, 2015 12:55 pm

This year I’ve decided to take on 3 Crazy Challenges to raise vital money to help save my son from having to suffer the constant progression Duchenne is having on his body....

$70,000 pledged to new drug

February 17, 2015 11:25 am

Yesterday, Alex’s Wish pledged $70,000 to support the next step in bringing VPB15 (a new novel anti-inflammatory steriod drug) to boys with Duchenne Muscular Dystrophy.  ...

Vigil for Translarna

February 17, 2015 10:54 am

On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna.  ...

Pamper evening success

March 5, 2014 2:28 pm

Ladies Pamper Evening sponsored by Aidan J Reed Estate Agents held on Friday, 28th February raises £1,200 for Alex’s Wish. The evening saw sixty five ladies turn up to be pampered for a great cause....

Looking forward to 2014

March 5, 2014 2:11 pm

What an astonishing year 2013 was – through our amazing supporters we raised £100,000 for research into Duchenne Muscular Dystrophy. For now Alex is doing well....