Emma’s blog
March 12, 2018 2:14 pmIt’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....
Tag Archive: DUchenne Muscular Dystrophy
Happy New Year!
January 4, 2017 6:15 pmWe just want to thank every single supporter “Wish Warrior” who has supported Alex’s Wish in 2016. We can’t thank you enough for everything you do for us and we would love you to continue supporting us in 2017 to help us bring about effective treatments for all boys living with Duchenne....
Alex’s Wish gives £50,000 grant to Solid-GT
October 15, 2016 7:53 amAlex’s Wish partners with Solid-GT and funds important Gene Therapy Development We would like to thank all of our supporters who have enabled us to give a £50,000.00 grant to Solid-GT to support their Gene Therapy Development....
6th Annual Charity Golf Day best yet!
October 4, 2016 12:49 pmWhat a fabulous day we had at our 6th annual charity golf day on Friday, 30th September held at Rothley Park Golf Course in Charnwood, Leicestershire....
Alex’s Wish attends Health & Technology Workshop
September 16, 2016 12:21 pmWe were delighted to attend a workshop organised by Duchenne UK this week in London. The workshop was designed to understand the Health Technology Assessment (HTA) process in England, and to give an overview of health economics and the process of new drug approval and how the Duchenne community can come together to bring new drugs to market as quickly as possible....
Star Trust raises £12,450 for Alex’s Wish
September 15, 2016 9:33 amStar Trust, a foundation which exists to assist smaller charities in the East Midlands which undertake some fantastic work but are often overlooked and unrecognized supported Alex’s Wish at their recent Happy Diamonds event held at Lumbers on Saturday, 10th September....
Alex’s Wish joins forces with Duchenne UK as ‘Partner Charity’
September 7, 2016 2:59 pmWe are delighted to announce on World Duchenne Awareness Day (7th September 2016), that we are joining forces with Duchenne UK as a “Partner charity”, in our fight to conquer Duchenne....
Alex stars in World’s Strongest Boys campaign
August 25, 2016 10:30 amWe were thrilled when Duchenne charity Duchenne UK approached us to see whether Alex would be able to support their new fundraising and awareness campaign World’s Strongest Boys. ...
Ten posts in place to support UK Clinical Trial Capacity
August 15, 2016 11:54 amAlex’s Wish contributes £29,000.00 thanks to its Wish Warriors In December 2015, eight patient organisations, who are working to help support clinical trial development for Duchenne muscular dystrophy, announced £1.2million of investment, to fund sixteen clinical posts. ...
Trio of cycling events raises £50,769.00
August 15, 2016 11:09 amWe are absolutely thrilled to announce that our trio of cycling events this year has raised a staggering £50,769.00. Our trio of cycling events includes of Charnwood Forest Cycle Ride which took place in May this year raising £10,797.00, our epic London to Paris Cycle Ride event held in July raising £26,321.00 and our team of riders at this year’s Prudential Ride London raising £13,651.00....
Team of cyclists at this year’s Prudential Ride London raises £13,651
August 15, 2016 10:59 amWhat a fabulous team of cyclists we had this year, with 17 cyclists taking part in this year’s fabulous Prudential Ride London on Sunday, 31st July – a 100 mile bike ride around London and surrounding Surrey towns. ...
Rothley Duck Race raises £705.00
July 14, 2016 12:56 pmWe would like to thank The Nottingham Building Society for organising the inaugural Rothley Duck Race this year and for allowing Alex’s Wish to be a part of it....
London to Paris Cycle Ride raises £25,000
July 14, 2016 12:40 pmAlex’s Wish organised a London to Paris Cycle Ride over a 3 day period from 1-3th July this year. With 11 cyclists taking part in the event the charity has raised a staggering £25,000 and money is still coming in....
Emma Hallam, Founder wins Special Award for Personal Impact
July 14, 2016 11:14 amEmma Hallam was delighted to receive news that she had won a prestigious award at this year’s Institute of Directors East Midlands 2016 Awards Ceremony. ...
A week full of mixed emotions
April 25, 2016 12:43 pmWhat a week it has been! The emotions I’ve felt this week has been unbelievable. Alex took part in a film on Monday, I can’t tell you anything now but what I can say is that he was incredible and everyone on set fell in love with him....
Translarna first ever drug will treat 50 boys in England
April 20, 2016 1:43 pmWe were thrilled to hear the news last Friday, that NICE have given the green light on Translarna – the first ever drug to treat the underlying cause of Duchenne for those eligible. ...
Watermead Challenge supports Alex’s Wish
April 20, 2016 1:16 pmWe would like to thank The Rotary Club of Wreake Valley and the new Syston Rotary Club for choosing Alex’s Wish as their charity to benefit from their Watermead Challenge in 2016. ...
Ratcliffe College supports Alex’s Wish
February 1, 2016 4:09 pmWe are absolutely delighted that Ratcliffe College Parent’s Association has chosen Alex’s Wish as one of the chosen charities to benefit from all profits raised at this year’s Spring Fair. ...
Charities announce £1.2m investment into key clinical posts
December 23, 2015 12:01 pmAlex’s Wish and seven other patient organisations, who are working to eradicate Duchenne Muscular Dystrophy, are funding a total of 16 clinical posts at Great Ormond Street Hospital in London, The John Walton Muscular Dystrophy Research Centre at Newcastle University and Alder Hey Children’s Hospital in Liverpool, to help support clinical trial development for Duchenne Muscular Dystrophy....
Spreading the love this Christmas
December 1, 2015 4:03 pmThis Christmas instead of buying Christmas cards and paying for postage why not donate that money to Alex’s Wish and in return we will give you a warm fuzzy feeling instead and a lovely jpeg to send to your friends electronically to help spread the love this Christmas!...