We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...
Wow – what an incredible evening, honestly we loved it so much!! We arrived early Saturday morning at our hosts Winstanley House to set up, decorate and get everything in place to welcome our amazing guests, and as the day went on the excitement grew – the decorations, AV, the balloon arch…….and...
What an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months....
Last Sunday saw 9 amazing Alex’s Wish supporters taking part in an epic Wing Walk, each of them overcoming their fears to take on this incredible challenge!...
Our lovely founder Emma Hallam is taking on a daredevil wing walk designed to raise awareness and funds to battle this disease. ...
Thank you to everyone who joined us at The Bodie Hodges Foundation and Alex’s Wish Fashion show – it was a fabulous event....
What a fabulous day we had at our Charity Football Tournament on Saturday, 15th June taking place at Quorn Football Club!...
Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...
We wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....
NOTTINGHAM HOT PROPERTY, the city’s most popular annual charity music event, is encouraging local businesses to get their attendance secured quickly after overwhelming demand saw over three quarters of its available tickets snapped up for the upcoming 20th anniversary show....
The revolutionary Arm Assist Suit rebranded ELEVEX project has received Grant Funding of £50,000 from Alex’s Wish, with the support of The Brothers Trust ELEVEX is being developed by Duchenne UK (DUK) in partnership with Spinal Muscular Atrophy UK, the University of Liverpool and University of Central Lancashire....
This year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...
We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....
For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....
The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....
We are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...
Alex Hallam has become one of the first people in the country to road test the prototype of a revolutionary mobility suit....
Duchenne Muscular Dystrophy is a rare disease. A condition that affects 1 in every 3,500 boys born. Alex was diagnosed with this condition shortly before his 4th birthday....
Thursday 22nd September saw our 11th Alex’s Wish Charity Golf Day which took place at The Rothley Park Golf Course! We had such an amazing turn out and were lucky with the weather again, with just a brief shower....
A recent report from a study funded by partly by Alex’s Wish, in collaboration with Duchenne UK has improved understanding of early detection of heart muscle disease in female carriers of Duchenne muscular dystrophy (DMD), paving the way for further research. ...
