
Emma’s blog
March 12, 2018 2:14 pmIt’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....
It’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....
We just want to thank every single supporter “Wish Warrior” who has supported Alex’s Wish in 2016. We can’t thank you enough for everything you do for us and we would love you to continue supporting us in 2017 to help us bring about effective treatments for all boys living with Duchenne....
Alex’s Wish partners with Solid-GT and funds important Gene Therapy Development We would like to thank all of our supporters who have enabled us to give a £50,000.00 grant to Solid-GT to support their Gene Therapy Development....
What a fabulous day we had at our 6th annual charity golf day on Friday, 30th September held at Rothley Park Golf Course in Charnwood, Leicestershire....
We were delighted to attend a workshop organised by Duchenne UK this week in London. The workshop was designed to understand the Health Technology Assessment (HTA) process in England, and to give an overview of health economics and the process of new drug approval and how the Duchenne community can come together to bring new drugs to market as quickly as possible....
Star Trust, a foundation which exists to assist smaller charities in the East Midlands which undertake some fantastic work but are often overlooked and unrecognized supported Alex’s Wish at their recent Happy Diamonds event held at Lumbers on Saturday, 10th September....
We are delighted to announce on World Duchenne Awareness Day (7th September 2016), that we are joining forces with Duchenne UK as a “Partner charity”, in our fight to conquer Duchenne....
We were thrilled when Duchenne charity Duchenne UK approached us to see whether Alex would be able to support their new fundraising and awareness campaign World’s Strongest Boys. ...
Alex’s Wish contributes £29,000.00 thanks to its Wish Warriors In December 2015, eight patient organisations, who are working to help support clinical trial development for Duchenne muscular dystrophy, announced £1.2million of investment, to fund sixteen clinical posts. ...
We are absolutely thrilled to announce that our trio of cycling events this year has raised a staggering £50,769.00. Our trio of cycling events includes of Charnwood Forest Cycle Ride which took place in May this year raising £10,797.00, our epic London to Paris Cycle Ride event held in July raising £26,321.00 and our team of riders at this year’s Prudential Ride London raising £13,651.00....
What a fabulous team of cyclists we had this year, with 17 cyclists taking part in this year’s fabulous Prudential Ride London on Sunday, 31st July – a 100 mile bike ride around London and surrounding Surrey towns. ...
We would like to thank The Nottingham Building Society for organising the inaugural Rothley Duck Race this year and for allowing Alex’s Wish to be a part of it....
Alex’s Wish organised a London to Paris Cycle Ride over a 3 day period from 1-3th July this year. With 11 cyclists taking part in the event the charity has raised a staggering £25,000 and money is still coming in....
Emma Hallam was delighted to receive news that she had won a prestigious award at this year’s Institute of Directors East Midlands 2016 Awards Ceremony. ...
What a week it has been! The emotions I’ve felt this week has been unbelievable. Alex took part in a film on Monday, I can’t tell you anything now but what I can say is that he was incredible and everyone on set fell in love with him....
We were thrilled to hear the news last Friday, that NICE have given the green light on Translarna – the first ever drug to treat the underlying cause of Duchenne for those eligible. ...
We would like to thank The Rotary Club of Wreake Valley and the new Syston Rotary Club for choosing Alex’s Wish as their charity to benefit from their Watermead Challenge in 2016. ...
We are absolutely delighted that Ratcliffe College Parent’s Association has chosen Alex’s Wish as one of the chosen charities to benefit from all profits raised at this year’s Spring Fair. ...
Alex’s Wish and seven other patient organisations, who are working to eradicate Duchenne Muscular Dystrophy, are funding a total of 16 clinical posts at Great Ormond Street Hospital in London, The John Walton Muscular Dystrophy Research Centre at Newcastle University and Alder Hey Children’s Hospital in Liverpool, to help support clinical trial development for Duchenne Muscular Dystrophy....
This Christmas instead of buying Christmas cards and paying for postage why not donate that money to Alex’s Wish and in return we will give you a warm fuzzy feeling instead and a lovely jpeg to send to your friends electronically to help spread the love this Christmas!...