Salusbury, Harding & Barlow
March 20, 2025 4:25 pmThis week we met up with Salusbury, Harding & Barlow, we love catching up with these guys! SHB have supported us since 2016 – when they chose us as their charity of the year!...
Tag Archive: DUchenne Muscular Dystrophy
Givinostat – Early Access Scheme – the fight continues for patients to gain access
February 14, 2025 2:42 pmAlex has been taking part in clinical trials most of his life – 9 years in fact. We are so grateful this has been the case, when Alex was diagnosed with Duchenne at 3 years old – there were no trials available for us to even consider....
Early Access Programme for Givinostat
November 19, 2024 2:03 pmWe’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...
An incredible result for our ‘back to the 80’s rewind’ ball…
November 12, 2024 8:24 amWow – what an incredible evening, honestly we loved it so much!! We arrived early Saturday morning at our hosts Winstanley House to set up, decorate and get everything in place to welcome our amazing guests, and as the day went on the excitement grew – the decorations, AV, the balloon arch…….and...
Autumn Lunch 2024
October 15, 2024 8:48 amWhat an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months....
Taking to the skies for Alex’s Wish
August 20, 2024 3:27 pmLast Sunday saw 9 amazing Alex’s Wish supporters taking part in an epic Wing Walk, each of them overcoming their fears to take on this incredible challenge!...
THE TEAM TAKE TO THE SKY IN DAREDEVIL WING WALK
July 26, 2024 9:59 amOur lovely founder Emma Hallam is taking on a daredevil wing walk designed to raise awareness and funds to battle this disease. ...
Fashion Show 2024
July 4, 2024 12:16 pmThank you to everyone who joined us at The Bodie Hodges Foundation and Alex’s Wish Fashion show – it was a fabulous event....
Football Tournament 2024
June 19, 2024 11:01 amWhat a fabulous day we had at our Charity Football Tournament on Saturday, 15th June taking place at Quorn Football Club!...
Supercars 2024
June 10, 2024 8:05 pmThank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...
Emma guest spot on ‘Batting the Breeze’ podcast
May 30, 2024 2:10 pmWe wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....
EXCITEMENT BUILDS AS NOTTINGHAM’S HOTTEST CHARITY EVENT SELLS MORE THAN THREE QUARTERS OF TICKETS IN JUST 30 DAYS
May 28, 2024 10:12 amNOTTINGHAM HOT PROPERTY, the city’s most popular annual charity music event, is encouraging local businesses to get their attendance secured quickly after overwhelming demand saw over three quarters of its available tickets snapped up for the upcoming 20th anniversary show....
The Brother’s Trust funds a new prototype for the Arm Assist Suit.
April 30, 2024 1:20 pmThe revolutionary Arm Assist Suit rebranded ELEVEX project has received Grant Funding of £50,000 from Alex’s Wish, with the support of The Brothers Trust ELEVEX is being developed by Duchenne UK (DUK) in partnership with Spinal Muscular Atrophy UK, the University of Liverpool and University of Central Lancashire....
London Marathon 2024
April 24, 2024 1:28 pmThis year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...
Two new Trustees join the Board at Alex’s Wish.
April 12, 2024 10:22 amWe are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....
Sunday Spotlight – Meet ‘Team Swepstone’
October 27, 2023 11:09 amFor those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....
Our fantastic Miss Great Britain’s
October 2, 2023 12:18 pmThe support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....
Fashion & Fizz
June 27, 2023 4:30 pmWe are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...
Alex helps road test revolutionary SMART Suit prototype on ITV Central News
March 22, 2023 9:15 amAlex Hallam has become one of the first people in the country to road test the prototype of a revolutionary mobility suit....
Today, 28th February marks #RareDiseaseDay.
February 28, 2023 9:43 amDuchenne Muscular Dystrophy is a rare disease. A condition that affects 1 in every 3,500 boys born. Alex was diagnosed with this condition shortly before his 4th birthday....