We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....
For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....
The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....
We are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...
Alex Hallam has become one of the first people in the country to road test the prototype of a revolutionary mobility suit....
Duchenne Muscular Dystrophy is a rare disease. A condition that affects 1 in every 3,500 boys born. Alex was diagnosed with this condition shortly before his 4th birthday....
Thursday 22nd September saw our 11th Alex’s Wish Charity Golf Day which took place at The Rothley Park Golf Course! We had such an amazing turn out and were lucky with the weather again, with just a brief shower....
A recent report from a study funded by partly by Alex’s Wish, in collaboration with Duchenne UK has improved understanding of early detection of heart muscle disease in female carriers of Duchenne muscular dystrophy (DMD), paving the way for further research. ...
Alex’s Wish has pledged £20,000 so far towards a £1 million grant call into treatments which will ultimately allow everyone living with Duchenne Muscular Dystrophy to receive gene therapy safely and effectively....
Italfarmaco Group Announces Positive Topline Data from Phase 3 Trial Showing Beneficial Effect of Givinostat in Patients with Duchenne Muscular Dystrophy — Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint — — Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile — — The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD — — Results were presented at the Annual PPMD Conference on June 25, 2022 — MILAN, Italy, June 25, 2022 – Italfarmaco Group announced today positive topline data from its completed Phase 3 EPIDYS trial with Givinostat, the company’s proprietary histone deacetylase (HDAC) inhibitor, in boys with Duchenne Muscular Dystrophy (DMD)....
It’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....
We just want to thank every single supporter “Wish Warrior” who has supported Alex’s Wish in 2016. We can’t thank you enough for everything you do for us and we would love you to continue supporting us in 2017 to help us bring about effective treatments for all boys living with Duchenne....
Alex’s Wish partners with Solid-GT and funds important Gene Therapy Development We would like to thank all of our supporters who have enabled us to give a £50,000.00 grant to Solid-GT to support their Gene Therapy Development....
What a fabulous day we had at our 6th annual charity golf day on Friday, 30th September held at Rothley Park Golf Course in Charnwood, Leicestershire....
We were delighted to attend a workshop organised by Duchenne UK this week in London. The workshop was designed to understand the Health Technology Assessment (HTA) process in England, and to give an overview of health economics and the process of new drug approval and how the Duchenne community can come together to bring new drugs to market as quickly as possible....
Star Trust, a foundation which exists to assist smaller charities in the East Midlands which undertake some fantastic work but are often overlooked and unrecognized supported Alex’s Wish at their recent Happy Diamonds event held at Lumbers on Saturday, 10th September....
We are delighted to announce on World Duchenne Awareness Day (7th September 2016), that we are joining forces with Duchenne UK as a “Partner charity”, in our fight to conquer Duchenne....
We were thrilled when Duchenne charity Duchenne UK approached us to see whether Alex would be able to support their new fundraising and awareness campaign World’s Strongest Boys. ...
Alex’s Wish contributes £29,000.00 thanks to its Wish Warriors In December 2015, eight patient organisations, who are working to help support clinical trial development for Duchenne muscular dystrophy, announced £1.2million of investment, to fund sixteen clinical posts. ...
We are absolutely thrilled to announce that our trio of cycling events this year has raised a staggering £50,769.00. Our trio of cycling events includes of Charnwood Forest Cycle Ride which took place in May this year raising £10,797.00, our epic London to Paris Cycle Ride event held in July raising £26,321.00 and our team of riders at this year’s Prudential Ride London raising £13,651.00....
