A Journey of a Thousand Words
July 7, 2025 2:50 pmCycling from London to Paris 290 miles over 3 days for Alex’s Wish – Cure Duchenne has been an INCREDIBLE journey....
Latest Posts
Our Annual Charity ‘5 A Side’ Football Tournament raises £3,455.77!!
July 7, 2025 11:30 amOn Saturday, 21st June we held a fabulous Charity ‘5 A Side’ Football Tournament at Quorn Football Club. A total of 15 teams, each in 3 groups of 5 played each other, before the group winners and the best performing runners up progressed to the semi-finals....
PEDAL POWER: 300-MILE LONDON TO PARIS CHARITY BIKE RIDE
June 20, 2025 8:20 amOn Friday 27 June, an inspiring group of cyclists will set off from Greenwich, London, on an ambitious 300-mile journey to Paris in support of Leicestershire-based Alex’s Wish, a charity dedicated to funding vital research and treatments for Duchenne Muscular Dystrophy....
Supercars Sunday raises over £28k for Alex’s Wish
June 4, 2025 10:42 amOur Supercars Day held at Ratcliffe College on Sunday, 1st June was just something else… over 3,000 people, over 70 supercars and a very special hyper car on display – a Bugatti Divo!!...
Get ready for a day of Supercars, Hypercars and family entertainment
May 13, 2025 8:11 amSunday, 1st June 2025 10 – 3pm BOOK YOUR TICKETS NOW Held in the beautiful grounds at Ratcliffe College, Fosse Way, Ratcliffe on the Wreake, Leicestershire Wide selection of fabulous supercars on show (50+ cars) Race your mates on the multi-player race simulator Live music Family entertainment Dako Flying Angels acrobatic show Street food square – BBQ, taco lab, freshly stone baked pizzas, delicious pasta, sweet treats, bubble waffles, plus more Licensed bar and coffee van Charity raffle with fabulous prizes up for grabs (being drawn on the day) Free car parking Accessible Tickets cost £25.00 for a family, £10.00 for an adult, and just £8.00 for a child....
Alex’s Wish welcome Rich Copson as a new Trustee
April 23, 2025 8:43 amEmma Hallam (CEO and Founder) says “We are delighted that Rich accepted to join our trustees board, he will bring a wealth of knowledge about the disability community to our board....
Next Pyjamas
April 2, 2025 2:22 pmWe couldn’t believe it when Next approached us to suggest collaborating on a product to celebrate Duchenne Awareness Day! After lots of fun discussions it was decided that Next would develop boys pyjamas with racing cars on, representing Alex’s love of motor racing....
Thank you The Brothers Trust
March 21, 2025 11:35 amWe had the best news last week – we received a £35,000 donation from The Brother Trust. Donations like this are the crucial for us to be able to progress our mission to cure Duchenne....
Salusbury, Harding & Barlow
March 20, 2025 4:25 pmThis week we met up with Salusbury, Harding & Barlow, we love catching up with these guys! SHB have supported us since 2016 – when they chose us as their charity of the year!...
Alex’s Wish Spring Launch
March 11, 2025 8:52 pmWhat a fabulous afternoon at our Spring Launch event, a huge thank you to Tim, Lesley and the whole team at Market Harborough Building Society for hosting us and being our Headline Sponsors....
Givinostat – Early Access Scheme – the fight continues for patients to gain access
February 14, 2025 2:42 pmAlex has been taking part in clinical trials most of his life – 9 years in fact. We are so grateful this has been the case, when Alex was diagnosed with Duchenne at 3 years old – there were no trials available for us to even consider....
First Treatment for all patients with Duchenne approved
December 13, 2024 3:29 pmThis week we received THE BEST NEWS the first treatment for EVERYONE living with Duchenne has been approved!!!! NICE, the National Institute of Clinical Excellence in England and Wales announced that Agamree (also known as Vamorolone) a dissociative steroid, has been approved for ALL patients with Duchenne Muscular Dystrophy....
Early Access Programme for Givinostat
November 19, 2024 2:03 pmWe’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...
An incredible result for our ‘back to the 80’s rewind’ ball…
November 12, 2024 8:24 amWow – what an incredible evening, honestly we loved it so much!! We arrived early Saturday morning at our hosts Winstanley House to set up, decorate and get everything in place to welcome our amazing guests, and as the day went on the excitement grew – the decorations, AV, the balloon arch…….and...
Thank you Miss Great Britain
November 7, 2024 6:11 pmThe support shown for Alex’s Wish this year by the wonderful Miss Great Britain, Ms Great Britain and Ms Great Britain Classic has blown us away!...
Autumn Lunch 2024
October 15, 2024 8:48 amWhat an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months....
Abseil Challenge 2024
September 30, 2024 2:34 pmSix incredible people decided to take on the Northampton Lift Tower and a 418 foot abseil for Alex’s Wish. We were lucky with the weather, although some of the six may dispute that, secretly hoping it may be cancelled!!...
Alex’s Wish Golf Day 2024
September 25, 2024 2:02 pmA huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £11,500 – amazing!!...
Alex’s Wish teams up with NEXT to help support innovative research grant
September 3, 2024 3:04 pmWe are thrilled to announce a new collaboration with leading retailer NEXT Plc to coincide with World Duchenne Awareness Day (WDAD) on Saturday 7 September 2024....
Taking to the skies for Alex’s Wish
August 20, 2024 3:27 pmLast Sunday saw 9 amazing Alex’s Wish supporters taking part in an epic Wing Walk, each of them overcoming their fears to take on this incredible challenge!...