Latest Posts

New Ambassadors – Natalie and Stuart

April 27, 2021 9:51 am

We are so pleased to introduce you to our new Ambassador’s – Natalie and Stuart Allen. Natalie and Stuart are a proud father daughter team that specialise in property....

#BeMoreAlex Campaign

April 15, 2021 1:32 pm

We are so excited to launch our new campaign #BeMoreAlex. This campaign evolved out of working with Brand Clear as we started to feel the effects of the pandemic on our fundraising....

Conquering ‘Mont Ventoux’

April 14, 2021 8:50 am

Fiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...

CaptainTom100

April 6, 2021 12:36 pm

Friday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....

Close to my Heart

March 14, 2021 10:05 am

Emma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....

Rare Disease Day

February 26, 2021 10:22 am

Rare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...

Alex’s Wish AGM

February 23, 2021 3:37 pm

You are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...

Virtual Mont Ventoux

February 18, 2021 2:01 pm

The wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...

London Marathon! We have your charity place !

February 9, 2021 2:45 pm

Would you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...

January 2020 Newsletter

February 1, 2021 12:50 pm

We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year.  So far, 2021 isn’t looking too different from the year we’ve left behind. In this second wave of the COVID Pandemic and third lockdown, we are all tackling those things we thought we had left behind such as home schooling and zoom meetings.  The start of the year has bought with it the reality that we will be living, working and socialising virtually and socially distanced for some time.  The one thing that is different about 2021 is that we now have the vaccine, which gives us a way forward, along with the learnings from 2020 that in every situation we need to think outside the box, adapt and carry on. We have got some great events for 2021 that we would like to share with you, as well as many still in the planning stage.  We can’t afford to let COVID stop us in our fight, and it will be great to have you by our side as we progress.  Challenge 2021 Whatever your personal goals this year, we would love to help you achieve them....

Living for Today

January 28, 2021 3:27 pm

It was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....

Local Firm of Solicitors Make Unexpected Donation

January 21, 2021 11:28 am

K4 Law, a local firm of solicitors, made an unexpected and much welcomed donation for £350. The donation was made in lieu of buying their clients an annual Christmas ‘thank you’ gift.  Nick Foreman, co-owner of K4 Law commented on the donation saying, “Each year we buy our clients Christmas presents to say thank you but this year, with everything that’s going on, we decided to donate to a great local cause instead.  Having known Emma, the Founder of Alex’s Wish, for a number of years we chose to support them in their mission to cure Duchenne Muscular Dystrophy.  We know that they have been badly affected by the Pandemic and we wanted to make a positive impact on those living with Duchenne....

Alex meets Marianela Schiava

January 20, 2021 2:38 pm

The last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....

An Epic Adventure for Alex’s Wish

January 19, 2021 6:55 pm

Two intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....

Gene Therapy Update

January 13, 2021 10:53 am

This is exciting news for all affected by Duchenne. Gene therapy cannot come soon enough it’s one of the things we are all working so hard to get....

Thank you to Property Fox

December 22, 2020 11:21 am

A huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...

Thank you and Merry Christmas

December 17, 2020 1:39 pm

As we near the end of 2020, we’ve been reflecting on what’s been achieved together.  We started the year with huge plans, with the momentum that we had established we were sure that this would be our most successful year yet!  How things changed.   However, we could not let COVID stop us, Duchenne will still be around long after we’ve been given the new vaccination for COVID.  So along with you, we have adapted and carried on pushing forward in the only way we know how.  This year has certainly shown us that resilience and determination is absolutely key.  We’ve still been able to honour all of the funds allocated to further our mission to end Duchenne....

Alex wins an award

December 17, 2020 9:02 am

We are so proud of our award winners at The Leicestershire Community Champions Awards put together by the Furnley House Foundation. ...

Un-Masquerade Celebration

December 14, 2020 3:00 pm

THANK YOU to everyone that supported our #unmasquerade celebration, because of this year we are all ‘screened out’ and so we were not sure how it would be received, but you didn’t let us down....