The revolutionary Arm Assist Suit rebranded ELEVEX project has received Grant Funding of £50,000 from Alex’s Wish, with the support of The Brothers Trust ELEVEX is being developed by Duchenne UK (DUK) in partnership with Spinal Muscular Atrophy UK, the University of Liverpool and University of Central Lancashire....
This year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...
THIS YEAR annual charity music event Nottingham Hot Property is celebrating its 20th anniversary with an event BIGGER and BETTER than ever before....
We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....
Our 2024 Spring Launch event took place on 7th March at the Novotel, it was great to have over 100 businesses and supporters in the room....
Last week we had an incredibly interesting time talking to Marie Ellis from Elite Account Services about the ‘mountains’ she has had to climb over the last couple of years....
February is the month of LOVE, so what a perfect time to launch our HEART campaign….. Our heart muscles need dystrophin to function efficiently....
The project, which is led by Dr Jarod Wong, consultant paediatric endocrinologist at the Royal Hospital for Children, Glasgow, aims to increase understanding of diet and nutritional needs in people with Duchenne muscular dystrophy (DMD) so that guidance and resources can be developed....
We are delighted to welcome the news that the Medicines and Healthcare products Regulatory Agency (MHRA) has approved vamorolone (sold under the brand name Agamree) for the treatment of Duchenne muscular dystrophy (DMD) in patients aged 4 years and older.This...
We are pleased to announce that we have funded £50,864 towards the funding of a project to drive better care for nutrition and weight management in Duchenne muscular dystrophy (DMD).The...
This year our Christmas Campaign is all about the Heart. Heart failure continues to be the main cause of death in Duchenne, we have recently had boys that have lost their lives at just 15....
Thank you Steven Havers – here are the fantastic photo’s from our Boogie Nights Ball 2023 – if you would like a print of any photo please see all the prices and details here www.haversbusinessphotography.com...
For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....
EMA recommends approval of first ever treatment for all DMD patients Today The European Medicines Agency (EMA) has recommended the approval of Vamorolone, the first ever treatment for all patients with Duchenne muscular dystrophy (DMD)....
Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....
The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....
A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £12,000 – amazing!!...
An amazing race day took place at the Frontline Recruitment Group Grand Prix yesterday – raising £1,300! Thank you so much to everyone that cam along and took part!...
My dyslexic journey and learning to read with Read Easy Hi, my name is Steph.Let me tell you a bit about myself....
What a fabulous day we had at our Charity Football Tournament on Saturday, 1st July. We would like to say a huge thank you to Astill Planning and Ryan Astill for organising a hugely successful day, yet again – we are now in our 3rd year running....
