Latest Posts

Charity Dinner Dance

November 2, 2018 2:12 pm

On the 6th October  the Pujara Charitable Foundation (PCF) held a wonderful Dinner & Dance at The Valley Suites, Leicester.  The PCF are a local charitable foundation that raises money to help numerous local charities....

The Shimmering Masquerade Dinner

October 30, 2018 8:50 pm

The Shimmering Masquerade Dinner took place at Lumbers Jewellers in Leicester in support of local charity Alex’s Wish. The dinner was the brainchild of Janine Edwards of Janine Edwards Wealth Management – a Trustee and avid supporter of the charity....

Funding Update

October 18, 2018 2:50 pm

Alex’s Wish has been working with Duchenne UK to invest and fund in some very important projects over the last couple of years and here is an update of our funding....

An update from Emma

October 12, 2018 9:55 am

I thought it was time I wrote a blog about what’s been happening of late. Alex continues to do well, he’s still mobile which is a wonderful thing although I do find myself constantly watching over him and checking he’s okay when we’re out and about....

New Research Project

October 8, 2018 2:02 pm

Duchenne UK, Joining Jack and Alex’s Wish are jointly funding £86,460 into a study to further understand the causes of heart disease in DMD. ...

Alex’s Wish 8th Golf Day

September 27, 2018 11:54 am

Last Friday we had our 8th Annual Golf day at Rothley Park Golf Club. We would like to thank our main sponsors WK Construction and Next, our refreshment sponsors Synergy Recruitment Leicester, Longest Drive sponsor KRS Estate Planning, our hole sponsors Alex Benyon Photography, Juice Apps, Sturgess Hutchinson, Spirit Healthcare, Janine Edwards Wealth Management, PB Ross Electrical Contractors, D F Building Services, Caveney Associates and Charnwood Brewery....

The Business Elevation Show – The Magic of Fundraising

September 26, 2018 4:02 pm

Emma was a guest on The Business Elevation Show on Voice America talking about the Magic of Fundraising. Fundraising is a fantastic way of achieving remarkable life goals with the warm knowledge of giving back to charities and those in need....

Taking on the Wolf Run

September 13, 2018 10:58 am

At the beginning of September, some of the Furnley House team completed the Wolf run in Warwickshire. There was lots of mud, some tears, lots of bruises but most importantly, a load of fun!...

Summer Sky Dive

September 11, 2018 8:36 am

In August Gordon Rodham and John Woolhouse jumped out of a plane at 13,000 ft to Sky Dive and raise funds for Alex’s Wish....

Morgan Sullivan Memorial Fishing

September 6, 2018 7:54 am

Morgan Sullivan Memorial Fishing match was held on Saturday 21st July at Hemmington Lakes, Castle Donnington This is the third year the fishing match has been held in memory of Morgan Sullivan who sadly lost his battle to Duchenne in 2015....

Marks John O’Groats to Lands End Run

August 29, 2018 8:58 am

Our fabulous supporter Mark Smith is less than a week away from his epic challenge of running from John O’Groats to Land’s End. ...

Brian cycles to Skegness

August 5, 2018 10:23 am

Brian works at Spirit Healthcare who are supporting us this year. To raise funds for Alex’s Wish Brian took on the huge challenge of cycling to Skegness last weekend....

Update on Gene Therapy

July 3, 2018 12:53 pm

In recent years, our community has watched with hope as pre-clinical data has emerged showing the promise of gene therapy as a valuable treatment for everyone living with Duchenne Muscular Dystrophy. ...

Spectacular Furnley House Summer Ball

June 28, 2018 2:38 pm

What an amazing night we had at the Furnley House Summer Ball they put on an incredible show and raised over £30,000 for Alex’s Wish.  ...

Charnwood Forest Cycle Ride is a success

May 26, 2018 1:50 pm

We were so lucky again with the weather this year at our Charnwood Forest Cycle Ride and thank you to everyone who came along and supported our event....

Furnley House Plan Breath-taking Summer Ball

May 24, 2018 7:59 am

Local financial planners and wealth managers, Furnley House, are putting the finishing touches to their inaugural Summer Ball – and all in aid of Alex’s Wish. ...

Joe Burrows takes on Tough Mudder

May 16, 2018 2:04 pm

Joe Burrows took part in the Belvoir Castle Tough Mudder this weekend, raising £367.00 for Alex’s Wish. The tough Mudder took place in the magnificent grounds of Belvoir Castle, nestled in the heart of Grantham,  with rolling hills, natural creeks and serene lakes being interrupted by thousands of Mudders taking on the toughest obstacle course in the world....

Rothley Duck Race is launched

April 27, 2018 8:46 am

This week we went along to the ‘Eggs’ in Rothley to unveil plans for the fourth annual duck race It was a lovely morning and great to see Barbara McCarthy and Louise Reynolds from The Jake McCarthy Foundation and Yvonne Pulford (Tilinanu Orphanage) helping to raise awareness of the event, which takes place at 6.30pm on Thursday 21 June in Bunney’s Field (near The Woodman’s Stroke pub)....

High Sheriff of Leicestershire awards £30,000 to Alex’s Wish

April 18, 2018 11:53 am

We are thrilled at Alex’s Wish to have been awarded £30,000 from The High Sheriff of Leicestershire, Tim Maxted. Tim Maxted is CEO of Leicester-based Berkeley Insurance Group, a privately-owned firm of Chartered Insurance Brokers and High Sheriff of Leicestershire for the term 2017-2018. ...