Latest Posts

Emma’s Blog

April 10, 2020 9:52 am

It seems like a life time away since our Supporters Thank You Lunch on 6th March.  Such a fabulous day, welcoming many of our supporters, all 160 of them to the newly opened Novotel in Leicester....

Miss Great Britain raises £14,277.32

April 3, 2020 9:23 am

In February we were honoured to be one of the causes that the 75th Miss Great Britain competition supported alongside Cancer Research UK....

Team from Leicestershire Law Society raises £10,000

March 27, 2020 12:12 pm

Twenty-eight of Leicestershire Law Society’s members and supporters joined the President, Glynis Wright, to take part in the fastest zip wire in the world, on Saturday 22nd February....

Fundraiser Brings in £3,000 for Alex’s Wish

March 20, 2020 1:41 pm

The latest in a series of events led by local supporter Dhiru Shah alongside Leicester’s Fashion UK, award-winning licensee, has raised over £3,000 for Alex’s Wish....

Thank You Very Much, Says Alex’s Wish

March 11, 2020 8:44 am

Last week saw the annual Supporters Lunch for Leicestershire-based charity Alex’s Wish take place at the newly opened Novotel in Leicester.  With over 150 guests attending including trustees, business club supporters, private individuals, businesses including those who’ve chosen Alex’s Wish as their Charity of the Year, and the newly crowned Miss and Ms GB.  The event served not only as a heartfelt thank you to supporters but also an opportunity to update everyone on the activity undertaken throughout the year and plans for the next 12 months....

Advice for Emergency Care:

February 5, 2020 11:37 am

Children with DMD experience the normal childhood illnesses and accidents. But, because their muscles are weaker, some things are more serious for them than other children....

Leicestershire-based Creative Agency to Support Alex’s Wish

February 3, 2020 9:48 am

Leicestershire based creative agency, Masters Allen, have agreed an exciting ‘Services in Kind’ partnership with regional charity Alex’s Wish. Masters Allen have agreed to support Alex’s Wish as their sole creative agency.  Speaking of the partnership Aidan Rooney, Managing Director & Partner at Masters Allen said, “We’ve been Alex’s Wish Business Club members for some time now but felt that we could do so much more to help the charity....

Alex’s Wish invests £30,000 into Edasalonexent

January 8, 2020 2:04 pm

Alex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....

Leicestershire Law Society Carols for the Courts

December 20, 2019 2:42 pm

On 12th December the Leicestershire Law Society had their “Leicestershire Carols for the Courts” at Leicester Cathedral, with a reception at St Martins House....

Merry Christmas

December 2, 2019 4:38 pm

We are so proud to launch our Christmas Campaign this year on #GivingTuesday. After the frenzy of Black Friday and Cyber Monday #GivingTuesday brings back the focus on what is important during the Christmas Period....

Emma’s Autumn Update

November 29, 2019 11:31 am

As we approach the end of the year, it’s a great time to reflect on everything which has been going on.  The last time I wrote a blog, I explained that Alex had started a new clinical trial – Givinostat – which we were hopeful would help Alex and make a difference....

Scape Group Quiz Night

November 25, 2019 1:46 pm

Alex’s Wish founder Emma and a team of our Trustees had a great night at Scape Group charity quiz night, thank you so much to the Scape Group Team that worked so hard and to everyone that came along to make it a great night – raising a fabulous £4,000 for Alex’s Wish...

Fireworks in aid of Alex’s Wish

November 22, 2019 5:25 pm

Thank you so much to Leicester Cricket Club for holding a Fireworks Display in aid of Alex’s Wish and sponsored by Next....

First meeting of the Matrix Professional Network

November 22, 2019 9:28 am

A great turn out of over 100 guests attended a new networking group for members of Leicestershire’s professional services – Lawyers, Tax Specialists and Accountants....

Alex’s Wish Ball 2019

November 20, 2019 3:53 pm

Alex’s Wish 7th Annual Charity Ball took place at The Hilton East Midlands Airport. The evening was sponsored by Next and Morgan Sindall sponsored our sparkling drinks reception....

An evening at Lumbers with Paul Karslake

November 20, 2019 11:21 am

Janine Edwards Wealth Management and Antidote Art hosted a Paul Karslake Art Exhibition and dinner at Lumbers in Leicester. The evening started with a drinks reception and an opportunity to see Paul’s new collection alongside beautiful jewellery from Lumbers....

Update on Vamorolone Study

October 7, 2019 9:11 am

Top Line Data of 18-month Vamorolone treatment of Duchenne Muscular Dystrophy patients shows continued improvement of symptoms with reduction in Corticosteroid safety concerns....