The Solid Suit: Wearable support for patients with Duchenne muscular dystrophy (DMD)
September 30, 2019 8:42 amDuchenne UK has made a grant of $200,000 to help support the Solid Suit program, of which Alex’s Wish funded £35,000....
Latest Posts
Alex’s Wish Golf Day a great success
September 25, 2019 12:24 pmThank you to everyone that came along to our Golf Day and made it such a huge success. Thank you to all our sponsors – our headline sponsor Strategic Insurance, our Brunch and longest drive sponsor NEXT, our prize sponsor Brooksure Commercial Insurance Brokers – Coventry West Midlands, our Nearest the Pin Sponsor WK Construction, Refreshment Sponsors Hallam Read and our sponsors Vehicle Consulting Leicester Ltd, Executive Image, 2 New Street Chambers, Jay Webb Consultancy, PB Ross Electricals, United Carpets and Beds, Virtual Assistant Support Services, Gail Siddall, Ben’s Kitchen, Downtown Computers Ltd, Charnwood Brewery....
New Chairman and Trustee join our Team
August 21, 2019 9:35 amWe are excited to share with you that we have appointed a new Chairman of our Board of Trustees and a new Trustee. ...
Solid Bioscience Gene Therapy Update
August 19, 2019 8:49 amAlex’s Wish have received a positive update from Solid Bioscience on their gene therapy trial called IGNITE DMD which Alex’s Wish invested in....
The sun shone again for our Charnwood Forest Cycle Ride
August 9, 2019 1:47 pmOn the 12th May The Charnwood Forest Cycle Ride sponsored by Glynis Wright & Co took place and we were lucky enough again this year for the sun to shine....
Our Trustee Glynis Wright becomes President of the Leicestershire Law Society
August 9, 2019 12:28 pmCongratulations to our Trustee Glynis Wright on becoming the 9th female President of the Leicestershire Law Society, a fabulous evening, thank you from the bottom of my heart for choosing Alex’s Wish, we are honoured & delighted to be involved such an amazing opportunity....
Morgan Sullivan Memorial Fishing Match 2019
August 9, 2019 11:49 amThis year’s 4th Morgan Sullivan Memorial Fishing match took place despite the rain, everyone had a great time, people who fish are a hardy bunch and not much puts then off!!...
Alex meets Spiderman
July 19, 2019 12:50 pmWhat a treat for Alex to meet with Spiderman, Tom Holland on Sunday at an event in London supporting those with life limiting diseases....
Furnley House, launch Foundation and raise £15,000 for Alex’s Wish in one evening.
June 26, 2019 2:57 pmSaturday 1st June was a spectacular evening in Leicester. Over 200 friends, family and clients of Furnley House gathered at Winstanley House on the launch night of the Furnley House Foundation....
Alex starts another Clinical Trial…
June 3, 2019 1:55 pmIt’s been a while since I last wrote an update on how things are going, so thought I would update you all on what’s happening and why we’ve been busy little bees lately....
Emma presents to Scape Group
April 11, 2019 12:33 pmYesterday Emma presented to the team at Scape Group who have chosen Alex’s Wish as their Charity of the Year. It was great opportunity to meet all the team and share our plans with them....
Alex’s Wish invests £10,000 towards a £228,562.51 grant
March 27, 2019 2:28 pmThe investment is to address the use of testosterone as a treatment for Duchenne Muscular Dystrophy. Testosterone is sometimes given to patients with Duchenne Muscular Dystrophy (DMD) who take steroids....
Supporters Thank you Lunch
March 5, 2019 11:17 amOn Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....
Mark’s Challenge
February 28, 2019 2:04 pm2,019 Miles in 2019 Mark Smith of Stephen George + Partners likes nothing better than a big challenge! 2018 saw him attempt to run from John O’Groats to Lands End raising money for local charity Alex’s Wish....
Warm welcome to Heidi
February 28, 2019 1:36 pmWe are so pleased that we have a new team member Heidi Eastell who joined us at the beginning of the week on a part time basis and will assist with the charity’s events....
Update on Alex’s Trial Application
January 29, 2019 9:38 amBitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....
The Queen Victoria Arts Club Supports Alex’s Wish
January 16, 2019 8:42 amLeicester’s newest restaurant and private members club, the Queen Victoria Arts Club, has chosen local charity Alex’s Wish to be its charity of the year for 2019....
Alex’s Trial Update
January 10, 2019 12:13 pmHere we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...
End of Year Update from Emma
December 20, 2018 9:07 pmAs 2018 comes to end, I wanted to share with you an update on how this year has gone. For a start, it’s been our best year in terms of fundraising....
Alex’s Wish invests £30,000 to Tamoxifen Open Label Extension Study
December 14, 2018 10:56 amSo pleased to let you know that we have just invested the £30,000 raised at the Mardi Gras Ball! In 2017 we funded £25,000 into a €675,000 funding towards TAMDMD, a phase 3 clinical trial to test the breast cancer drug tamoxifen for use in patients with Duchenne muscular dystrophy. ...