Latest Posts

CaptainTom100

April 6, 2021 12:36 pm

Friday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....

Close to my Heart

March 14, 2021 10:05 am

Emma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....

Rare Disease Day

February 26, 2021 10:22 am

Rare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...

Alex’s Wish AGM

February 23, 2021 3:37 pm

You are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...

Virtual Mont Ventoux

February 18, 2021 2:01 pm

The wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...

London Marathon! We have your charity place !

February 9, 2021 2:45 pm

Would you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...

January 2020 Newsletter

February 1, 2021 12:50 pm

We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year. ...

Living for Today

January 28, 2021 3:27 pm

It was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....

Local Firm of Solicitors Make Unexpected Donation

January 21, 2021 11:28 am

K4 Law, a local firm of solicitors, made an unexpected and much welcomed donation for £350. The donation was made in lieu of buying their clients an annual Christmas ‘thank you’ gift. ...

Alex meets Marianela Schiava

January 20, 2021 2:38 pm

The last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....

An Epic Adventure for Alex’s Wish

January 19, 2021 6:55 pm

Two intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....

Gene Therapy Update

January 13, 2021 10:53 am

This is exciting news for all affected by Duchenne. Gene therapy cannot come soon enough it’s one of the things we are all working so hard to get....

Thank you to Property Fox

December 22, 2020 11:21 am

A huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...

Thank you and Merry Christmas

December 17, 2020 1:39 pm

As we near the end of 2020, we’ve been reflecting on what’s been achieved together.  We started the year with huge plans, with the momentum that we had established we were sure that this would be our most successful year yet! ...

Alex wins an award

December 17, 2020 9:02 am

We are so proud of our award winners at The Leicestershire Community Champions Awards put together by the Furnley House Foundation. ...

Un-Masquerade Celebration

December 14, 2020 3:00 pm

THANK YOU to everyone that supported our #unmasquerade celebration, because of this year we are all ‘screened out’ and so we were not sure how it would be received, but you didn’t let us down....

The Big Give Christmas Challenge

December 14, 2020 1:14 pm

We would like to say a HUGE thank you to everyone who supported our Big Give Christmas Campaign. We managed to raise just over £5,500 including gift aid which is fantastic....

Online Charity Quiz Raises £707 For Alex’s Wish

December 10, 2020 12:57 pm

An online charity quiz organised by Vehicle Consulting, Leicester has raised over £700 for local charity Alex’s Wish. Jayne Stephenson of Vehicle Consulting said, “We first heard about Alex’s Wish two years ago when I joined a networking group with Emma – the founder of Alex’s Wish and Mum to Alex, after whom the charity is named. ...

ActionCOACH Ed Cooper Launches Book Club… With a Heart

December 10, 2020 12:28 pm

Local business coach, Ed Cooper, has launched a BookCLUB with a difference! Says Ed, “One of the commitments I made to myself for 2020 is to help business owners in my local community gain the skills, confidence and beliefs that they need to get their already GOOD businesses to GREAT! ...