Latest Posts

Our 10th Anniversary Supporters Lunch

October 11, 2022 1:57 pm

What an incredible afternoon we had on Friday, 7th October at our Alex’s Wish Annual Supporters Lunch celebrating our 10th Anniversary at The Novotel Hotel in Leicester....

Golf Day 2022

September 26, 2022 2:54 pm

Thursday 22nd September saw our 11th Alex’s Wish Charity Golf Day which took place at The Rothley Park Golf Course! We had such an amazing turn out and were lucky with the weather again, with just a brief shower....

International Day of Charity

September 5, 2022 3:31 pm

At Alex’s Wish – Cure Duchenne we are so grateful to Spirit Health and their support over the years. They donate to us every single month to help us conquer Duchenne....

Supercar Day Success

July 29, 2022 12:54 pm

Supercars 2022 raises £12,120 for Alex’s Wish This year’s Alex’s Wish annual Supercars event was another resounding success, raising a wonderful £12,120 for the Leicestershire-based Duchenne charity....

Italfarmaco announces positive topline data from Phase 3 trial showing positive benefits of Givinostat in Duchenne

July 4, 2022 1:10 pm

Italfarmaco Group Announces Positive Topline Data from Phase 3 Trial Showing Beneficial Effect of Givinostat in Patients with Duchenne Muscular Dystrophy  — Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint —  — Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile —  — The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD —  — Results were presented at the Annual PPMD Conference on June 25, 2022 —  MILAN, Italy, June 25, 2022 – Italfarmaco Group announced today positive topline data from its completed Phase 3 EPIDYS trial with Givinostat, the company’s proprietary histone deacetylase (HDAC) inhibitor, in boys with Duchenne Muscular Dystrophy (DMD)....

Emma’s Blog June 2022

June 16, 2022 11:10 am

Wow doesn’t it feel like such a long time ago that we were all in lockdown. Spring has been a full-on fun-packed time, with birthday celebrations, charity events, clinical trial reviews, Jubilee celebrations, driving experiences, disability skiing… and that’s just the weekends!...

Sunday Spotlight – Gill Castle

June 9, 2022 11:56 am

The birth of Gill Castle’s son changed her life forever. Not just in the fact she became a mother, but the trauma of childbirth left her with a permanent stoma, a surgery which someone in the UK undergoes every 39 minutes....

Football Tournament 2022

June 1, 2022 1:28 pm

A huge well done to the winners of our Football Tournament on Saturday – DT Systems Electrical Ltd – they took the trophy 🏆 from reigning champions Hallam Read who came second....

Spirit Pharmacy Charnwood Forest Cycle Ride 2022

May 18, 2022 10:10 am

Our 10th Charnwood Forest Cycle Ride 2022 took place on Sunday and we were so lucky with the weather. Rain was predicted and we only got sunshine, a perfect day to cycle....

Sunday Spotlight: Rich Copson

May 8, 2022 7:12 pm

We all have things that we want to hide. Secrets, embarrassing stories, a whole host of information that must be kept out of the public eye....

Sunday Spotlight: Archie’s Army

March 20, 2022 8:21 pm

Just like our Alex, and so many young boys in the country, eight- year-old Archie has Duchenne. Here, his Mum Sam Hurst tells trustee Tom Carter how the muscular dystrophy diagnosis changed their family’s world and inspired them to start their own charity....