Dear supporters, I hope you are keeping well and sane during these times. It feels like such a long time ago when we were able to be out and about seeing our supporters at our events, but hopefully we’ll all be able to see each other again soon....
We would love you to join us & take part in the Tour de Alex’s Wish. Pick your distance and complete your ride at your own leisure, wherever and whenever you would like, do it in one or spread it out over a number of rides....
Despite the unprecedented events of the last two months businesses are still more than happy to help charities close to their heart wherever they can. We have been literally blown away by some of the ideas and conversations that I’ve had over the last few weeks. It has made me realise and appreciate just how lucky we are as a charity to have the supporters, volunteers, Trustees and Ambassadors that we do....
Living a new normal is what we are hearing a lot about in the press and social media at the moment, with COVID-19 affecting our everyday lives – not being able to do things we always have....
We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Sandesh Jesrani of Sharman Fielding Chartered Accountants and Alexandra Slack of The House of Lifestyle Management join their fellow Trustees from the 1st May. Emma Hallam, Founder and Director of Alex’s Wish commented on the new appointments saying, “We’re constantly moving forward and developing as a charity and felt that both Sandesh and Alexandra have vital skills to offer us that will help us hugely to achieve our objective which is to find a cure for Duchenne Muscular Dystrophy – an horrific life limiting disease that continues to devastate the lives of thousands in the UK every year....
On Thursday 16th April we had our regular Alex’s Wish trustee meeting. A number of topics were covered including; how charities are adapting to these unusual times and should Charities furlough staff when they are currently finding that many of their usual fund raising income streams have had to stop....
It has been quite a while since I have wrote anything about my personal story so when Emma asked me to write this blog to let supporters of Alex’s Wish know about me I felt quite apprehensive, it really is difficult writing about yourself as you often worry how you might come across….....
Join The 2.6 Challenge from Sunday 26 April Please join The 2.6 Challenge from Sunday 26 April. It’s been created to help save the UK’s charities – 2.6 miles....
It seems like a life time away since our Supporters Thank You Lunch on 6th March. Such a fabulous day, welcoming many of our supporters, all 160 of them to the newly opened Novotel in Leicester....
In February we were honoured to be one of the causes that the 75th Miss Great Britain competition supported alongside Cancer Research UK....
Twenty-eight of Leicestershire Law Society’s members and supporters joined the President, Glynis Wright, to take part in the fastest zip wire in the world, on Saturday 22nd February....
The latest in a series of events led by local supporter Dhiru Shah alongside Leicester’s Fashion UK, award-winning licensee, has raised over £3,000 for Alex’s Wish....
A Leicestershire based business have decided to support Alex’s Wish, after meeting Emma Hallam – founder and Director of the charity – at Vistage, a peer-to-peer network....
Last week saw the annual Supporters Lunch for Leicestershire-based charity Alex’s Wish take place at the newly opened Novotel in Leicester. With over 150 guests attending including trustees, business club supporters, private individuals, businesses including those who’ve chosen Alex’s Wish as their Charity of the Year, and the newly crowned Miss and Ms GB. The event served not only as a heartfelt thank you to supporters but also an opportunity to update everyone on the activity undertaken throughout the year and plans for the next 12 months....
Children with DMD experience the normal childhood illnesses and accidents. But, because their muscles are weaker, some things are more serious for them than other children....
Leicestershire based creative agency, Masters Allen, have agreed an exciting ‘Services in Kind’ partnership with regional charity Alex’s Wish. Masters Allen have agreed to support Alex’s Wish as their sole creative agency. Speaking of the partnership Aidan Rooney, Managing Director & Partner at Masters Allen said, “We’ve been Alex’s Wish Business Club members for some time now but felt that we could do so much more to help the charity....
Promising drugs for Duchenne Muscular Dystrophy (DMD) which are tested on animals do not always respond the same way in humans....
Alex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....
On 12th December the Leicestershire Law Society had their “Leicestershire Carols for the Courts” at Leicester Cathedral, with a reception at St Martins House....
We are so proud to launch our Christmas Campaign this year on #GivingTuesday. After the frenzy of Black Friday and Cyber Monday #GivingTuesday brings back the focus on what is important during the Christmas Period....
