May 30, 2024 2:10 pm
We wanted to share with you Emma’s first podcast appearance, it is a fabulous listen as she takes you right back to when Alex was diagnosed, and talks about setting up the charity and how the diagnosis has powered her to make a difference....
June 16, 2022 11:10 am
Wow doesn’t it feel like such a long time ago that we were all in lockdown. Spring has been a full-on fun-packed time, with birthday celebrations, charity events, clinical trial reviews, Jubilee celebrations, driving experiences, disability skiing… and that’s just the weekends!...
May 10, 2021 12:48 pm
The Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research....
June 17, 2020 9:22 am
In the 1st part of my blog I was talking about the diagnosis that hit both myself and my family hard....
April 18, 2020 11:55 am
It has been quite a while since I have wrote
anything about my personal story so when Emma asked me to write this blog to
let supporters of Alex’s Wish know about me I felt quite apprehensive, it
really is difficult writing about yourself as you often worry how you might
come across….....
April 10, 2020 9:52 am
It seems like a life time away since our Supporters Thank You Lunch on 6th March. Such a fabulous day, welcoming many of our supporters, all 160 of them to the newly opened Novotel in Leicester....
January 29, 2019 9:38 am
Bitter Sweet Trial News
I wrote a blog recently about
our trip to Newcastle to see if we could get Alex onto a new clinical trial....
January 10, 2019 12:13 pm
Here we go again…
Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...
March 12, 2018 2:14 pm
It’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....
October 26, 2016 9:43 am
It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....
April 25, 2016 12:43 pm
What a week it has been! The emotions I’ve felt this week has been unbelievable. Alex took part in a film on Monday, I can’t tell you anything now but what I can say is that he was incredible and everyone on set fell in love with him....
March 5, 2014 2:11 pm
What an astonishing year 2013 was – through our amazing supporters we raised £100,000 for research into Duchenne Muscular Dystrophy.
For now Alex is doing well....
October 1, 2013 11:10 am
Alex’s Wish has been up and running for a year now – and what a year it has been! To date, we have raised over £60,000 to be invested in new clinical trials and research projects to help all children living with Duchenne....
November 29, 2012 2:07 pm
I’ve had a fantastic week – busy, productive and hugely positive!
We have so many events scheduled for the next 7 months....
November 19, 2012 1:22 pm
Each day Alex is growing that bit older, he’s now six and half years old and for him he can’t wait until his next birthday – to be that bit bigger that bit older just like his older friends. ...
July 16, 2012 7:50 pm
It has been a very difficult couple of years, getting our heads around our new and uncertain future. It’s almost been a period of mourning for the future we thought was in store for our beautiful little boy....