Wow doesn’t it feel like such a long time ago that we were all in lockdown. Spring has been a full-on fun-packed time, with birthday celebrations, charity events, clinical trial reviews, Jubilee celebrations, driving experiences, disability skiing… and that’s just the weekends!...
The Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research....
In the 1st part of my blog I was talking about the diagnosis that hit both myself and my family hard....
It has been quite a while since I have wrote anything about my personal story so when Emma asked me to write this blog to let supporters of Alex’s Wish know about me I felt quite apprehensive, it really is difficult writing about yourself as you often worry how you might come across….....
It seems like a life time away since our Supporters Thank You Lunch on 6th March. Such a fabulous day, welcoming many of our supporters, all 160 of them to the newly opened Novotel in Leicester....
Bitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....
Here we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...
It’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....
It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....
What a week it has been! The emotions I’ve felt this week has been unbelievable. Alex took part in a film on Monday, I can’t tell you anything now but what I can say is that he was incredible and everyone on set fell in love with him....
What an astonishing year 2013 was – through our amazing supporters we raised £100,000 for research into Duchenne Muscular Dystrophy. For now Alex is doing well....
Alex’s Wish has been up and running for a year now – and what a year it has been! To date, we have raised over £60,000 to be invested in new clinical trials and research projects to help all children living with Duchenne....
I’ve had a fantastic week – busy, productive and hugely positive! We have so many events scheduled for the next 7 months....
Each day Alex is growing that bit older, he’s now six and half years old and for him he can’t wait until his next birthday – to be that bit bigger that bit older just like his older friends. ...
It has been a very difficult couple of years, getting our heads around our new and uncertain future. It’s almost been a period of mourning for the future we thought was in store for our beautiful little boy....
