Important Update on Alex’s Clinical Trial
June 30, 2022 11:49 amThis is great news for the Duchenne community. We would like to share this news with all of our wonderful supporters....
Tag Archive: Duchenne
Biker Stan gears up for intrepid Nordic adventure for Alex’s Wish
June 23, 2022 9:51 amIntrepid motorcyclist Stan Hulme, also known as the ‘Inspired Rider’ is about to embark on a 6,000-mile Nordic solo expedition across the Scandinavian Arctic in aid of Alex’s Wish....
Spirit Pharmacy Charnwood Forest Cycle Ride 2022
May 18, 2022 10:10 amOur 10th Charnwood Forest Cycle Ride 2022 took place on Sunday and we were so lucky with the weather. Rain was predicted and we only got sunshine, a perfect day to cycle....
Fashion UK’s Valentines Ball raises £6,000
March 8, 2018 4:15 pmValentines Ball is a fundraising hit! Leicester based Fashion UK are celebrating after putting on a charity Valentines Ball in aid Alex’s Wish. ...
Raising awareness for Duchenne
February 2, 2017 2:01 pmLast week we had an amazing opportunity to feature Alex’s Wish on BBC East Midlands today and BBC Radio Leicester. Victoria Hicks had approached us late last year to ask us if Alex’s Wish would like to be featured, and we agreed straight away. ...
TIME Mortgage Experts Bake Off
November 8, 2016 11:32 amWe would like to say a massive thank you to TIME Mortgage Experts who raised money for us at their The Great TIME Bake Off – £220 raised on the day, which was then rounded up to £500!! ...
A busy year…
October 26, 2016 9:43 amIt’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....
IoD Women as Leaders Convention
October 10, 2016 10:28 amEmma Hallam, Founder of Alex’s Wish was invited along to speak on the panel at the Institute of Directors East Midlands ‘Women as Leaders Convention‘ on Friday 7th October held at Radisson Blu Hotel, East Midlands Airport....
Alex’s Wish wins prestigious award
April 25, 2016 12:04 pmWe are thrilled and delighted to have won this year’s Leicester Mercury Business Awards Not-for-Profit category award sponsored by PLUG interiors. ...
Yorkshire Three Peaks
September 10, 2015 2:26 pmOn August 21st some fabulous Wish Warriors – Melissa Jarman, Joanne Whomsley, Rose Stanford, Emma Hallam, Jo Enyon, Laura Storrs, Rachel Barbrook, Sam Hayman, Allison Ambrose, Catherine Jagger and Caroline Worby walked 25 miles on tracks and over hills to raise £3,000 for research and clinical trials to bring about new treatments for boys living with Duchenne Muscular Dystrophy....
Verona and Team Tortoise take on the London 10K
July 14, 2015 9:56 amThe Vitality London 10K took place this weekend on the closed roads of central London. Alex’s Wish was represented by Verona Frankish and Team Tortoise who consisted of Lyndsey Wright, Bill South and Cyril Bekoe....
Race Night at The Rothley Court Hotel
July 2, 2015 11:03 amThank you to The Rothley Court Hotel for hosting a race night for Alex’s Wish. The evening managed to raise £331.60 for our cause. ...
Fantastic Fundraisers
June 25, 2015 11:54 amWe are so lucky to have the Apps and the Devlins riding as part of our team at the Prudential ride London and they have started their fundraising already raising over £800....
Meet Wendy & George Fielding
June 25, 2015 11:36 amWe would like to introduce you to our latest Wish Warriors Wendy Fielding and her 12 year old son George. Wendy and George spent 5 days walking the West Highland way from Glasgow to Fort William averaging 19 miles a day to achieve this 96 mile walk. ...
Token of Support Campaign raises £500
April 28, 2015 11:31 amWe are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause....
Urgent Call to Action – Translarna
January 30, 2015 11:13 amPatients with Duchenne Muscular Dystrophy have been specifically disadvantaged by the failure of the NHS England system to consider funding drugs for rare diseases....
Translarna Lobby
January 20, 2015 11:49 amAlex’s Wish took part in a lobby at Westminster on Wednesday, 14th January with the aim to ensure early availability and full funding of a pioneering new treatment called Translarna....
Moment of realization
November 19, 2012 1:22 pmEach day Alex is growing that bit older, he’s now six and half years old and for him he can’t wait until his next birthday – to be that bit bigger that bit older just like his older friends. ...