3 Crazy Challenges for my son
This year I’ve decided to take on 3 Crazy Challenges to raise vital money to help save my son from having to suffer the constant progression Duchenne is having on his body. My 3 Crazy challenges including a Tandem Sky Dive (I’ll be free falling from 12k feet) a 100-mile cycle ride at this year’s […]
$70,000 pledged to new drug
Yesterday, Alex’s Wish pledged $70,000 to support the next step in bringing VPB15 (a new novel anti-inflammatory steriod drug) to boys with Duchenne Muscular Dystrophy. The drug is currently in Phase 1 clinical trials and this money will help support the work needed to take the drug into Phase 2a and Phase 2b, with the […]
Vigil for Translarna
On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna. Translarna is the first drug to be approved that offers the prospect of delaying disease progression and keeping boys […]
Pamper evening success
Ladies Pamper Evening sponsored by Aidan J Reed Estate Agents held on Friday, 28th February raises £1,200 for Alex’s Wish. The evening saw sixty five ladies turn up to be pampered for a great cause. Many local beauty salons, beauty therapists, alternative therapy therapists and hair dressers offered mini treatments in exchange for donations to Alex’s […]
Looking forward to 2014
What an astonishing year 2013 was – through our amazing supporters we raised £100,000 for research into Duchenne Muscular Dystrophy. For now Alex is doing well. That said, we know he’s beginning to struggle as his legs and arms are becoming tired more easily. He’s hugely competitive and loves nothing more than scoring goals at his […]
What a successful first year…
Alex’s Wish has been up and running for a year now – and what a year it has been! To date, we have raised over £60,000 to be invested in new clinical trials and research projects to help all children living with Duchenne. From The Big Buggy Push event held just a few weeks ago […]