Translarna first ever drug will treat 50 boys in England
We were thrilled to hear the news last Friday, that NICE have given the green light on Translarna – the first ever drug to treat the underlying cause of Duchenne for those eligible. Whilst this is great news for those it will help 50 boys in England, it will not help all. We have 2,500 […]
Watermead Challenge supports Alex’s Wish
We would like to thank The Rotary Club of Wreake Valley and the new Syston Rotary Club for choosing Alex’s Wish as their charity to benefit from their Watermead Challenge in 2016. The Watermead Challenge is a 5 mile or 3 mile run and will take place on Tuesday, 12th July at 7pm at Watermead […]
Ratcliffe College supports Alex’s Wish
We are absolutely delighted that Ratcliffe College Parent’s Association has chosen Alex’s Wish as one of the chosen charities to benefit from all profits raised at this year’s Spring Fair. This came about when a close friend and supporter Alison Etty, also one of the parents within the association put our cause forward. We really […]
Charities announce £1.2m investment into key clinical posts
Alex’s Wish and seven other patient organisations, who are working to eradicate Duchenne Muscular Dystrophy, are funding a total of 16 clinical posts at Great Ormond Street Hospital in London, The John Walton Muscular Dystrophy Research Centre at Newcastle University and Alder Hey Children’s Hospital in Liverpool, to help support clinical trial development for Duchenne […]
Spreading the love this Christmas
This Christmas instead of buying Christmas cards and paying for postage why not donate that money to Alex’s Wish and in return we will give you a warm fuzzy feeling instead and a lovely jpeg to send to your friends electronically to help spread the love this Christmas! For boys like Alex, each Christmas they […]
Bradgate Rotary raises £1,200
Absolutely wonderful news, the newly formed Bradgate Rotary Club has donated £1,200.00 to our cause, the most they have ever donated to date! Members took part in a Santa Run back in December last year. It is with thanks to Sue Witts for putting our charity forward! #WishWarriors
First genetic cure for rare diseases!
New era of medicine begins as first children cured of genetic disorder The pioneering therapy offers hope to the hundreds thousands of people suffering from inherited conditions This story gives hope to boys living with Duchenne Muscular Dystrophy. Danny, Sarah and Michael Wheeler at home British doctors have cured youngsters of a deadly inherited disorder […]
Paula Parsons runs the London Marathon
A massive well done to Paula Parsons one of the school mums at Alex’s Wish for completing today’s London Marathon raising over £500 for Alex’s Wish!! Amazing effort we are so proud of you!! #wishwarrior #fightingduchenne #londonmarathon
Token of Support Campaign raises £500
We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause. We would like to thank Jason Godrich, the store manager at Oadby store for nominating our cause , the staff and management at Co-Op for […]
Crazy Sky Divers raise £13,500
Sky Diving Wish Warriors raise £13,500 for Alex’s Wish A team of 17 took to the skies to take part in a Tandem Sky Dive on Sunday, 8th March in aid of Alex’s Wish at Langar Airfield, British Parachute School in Nottingham. With poor weather conditions, it was looking unlikely to go ahead but after many […]