April 20, 2016 1:43 pm
We were thrilled to hear the news last Friday, that NICE have given the green light on Translarna – the first ever drug to treat the underlying cause of Duchenne for those eligible. ...
February 23, 2015 11:21 am
We would like to thank Rachel Hargraves from RDZ-PR who is donating her time to Alex’s Wish – a true Wish Warrior – to raise awareness of our cause....
February 17, 2015 10:54 am
On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna. ...
January 30, 2015 11:13 am
Patients with Duchenne Muscular Dystrophy have been specifically disadvantaged by the failure of the NHS England system to consider funding drugs for rare diseases....
January 20, 2015 11:49 am
Alex’s Wish took part in a lobby at Westminster on Wednesday, 14th January with the aim to ensure early availability and full funding of a pioneering new treatment called Translarna....