Vigil for Translarna
On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna. Translarna is the first drug to be approved that offers the prospect of delaying disease progression and keeping boys […]
Translarna Lobby
Alex’s Wish took part in a lobby at Westminster on Wednesday, 14th January with the aim to ensure early availability and full funding of a pioneering new treatment called Translarna. Translarna is the first drug to address the underlying cause of Duchenne. We were welcomed by Dave Anderson MP, Chair of the All Party Parlimentary […]