Time is our most precious commodity
In every aspect of life, it remains the one thing we can never get back. Our boys need more time.Their families need more time.Time to enjoy life’s simple moments — to celebrate birthdays, to share laughter, and to create lasting memories with loved ones.Time to witness a cure within their lifetime.Time for the dedicated researchers […]
Givinostat – Early Access Scheme – the fight continues for patients to gain access
Alex has been taking part in clinical trials most of his life – 9 years in fact. We are so grateful this has been the case, when Alex was diagnosed with Duchenne at 3 years old – there were no trials available for us to even consider. The purpose of taking part in clinical trials […]
Early Access Programme for Givinostat
We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s currently going through the NICE approval process, but as with these things it’s a slow process – all while families […]
Autumn Lunch 2024
What an incredible afternoon we had at our Annual Autumn Lunch at The Novotel in Leicester to celebrate our fabulous supporters, volunteers, trustees, and ambassadors and together what we have achieved over the last 12 months. We could not do what we do without you, thank you for being our part of our community A […]
Thanks to Swithland Flower & Vegetable Show
We would like to thank the organisers of this year’s Swithland Flower & Vegetable Show and to Gemma Lambell who took part in our Charnwood Forest Cycle Ride last year who nominated Alex’s Wish to receive a £200 donation. Thank you everyone we really appreciate your support! We would like to wish you all a […]
Thanks to Cambridge & Countries Bank, Zu Print Plus & Creative Triangle
A huge thank you goes out to Cambridge & Countries Bank, Zu Print Plus and Creative Triangle for donating £307.00 raised at their recently held Charity Race Night in November. Team members were able to select their charity of choice and any money raised will go direct to their chosen cause. Cambridge & Countries decided […]
Thank you to Melton Mowbray Building Society
We have just received a fantastic donation of £200.00 from the Melton Mowbray Building Society Charitable Foundation which have received via our Trustee Richard Amphlett . Thank you so much!
Bradgate Rotary raises £1,200
Absolutely wonderful news, the newly formed Bradgate Rotary Club has donated £1,200.00 to our cause, the most they have ever donated to date! Members took part in a Santa Run back in December last year. It is with thanks to Sue Witts for putting our charity forward! #WishWarriors
Token of Support Campaign raises £500
We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause. We would like to thank Jason Godrich, the store manager at Oadby store for nominating our cause , the staff and management at Co-Op for […]
Ladies Pamper Evening success
Our Ladies Pamper Evening took place on Friday, 6th February at the Rothley School Rooms with 65 ladies attending raising £1,500 for Alex’s Wish. All money raised will help fund new treatments to help all boys living with Duchenne Muscular Dystrophy. Money raised was through ticket sales, a charity raffle and donations in exchange for beauty treatments. We would […]