
A busy year…
October 26, 2016 9:43 amIt’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....
It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....
We were delighted to attend a workshop organised by Duchenne UK this week in London. The workshop was designed to understand the Health Technology Assessment (HTA) process in England, and to give an overview of health economics and the process of new drug approval and how the Duchenne community can come together to bring new drugs to market as quickly as possible....
We are delighted to announce on World Duchenne Awareness Day (7th September 2016), that we are joining forces with Duchenne UK as a “Partner charity”, in our fight to conquer Duchenne....
We are absolutely thrilled to announce that our trio of cycling events this year has raised a staggering £50,769.00. Our trio of cycling events includes of Charnwood Forest Cycle Ride which took place in May this year raising £10,797.00, our epic London to Paris Cycle Ride event held in July raising £26,321.00 and our team of riders at this year’s Prudential Ride London raising £13,651.00....