We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s...
Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. ...
This year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...
Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....
It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....
We were delighted to attend a workshop organised by Duchenne UK this week in London. The workshop was designed to understand the Health Technology Assessment (HTA) process in England, and to give an overview of health economics and the process of new drug approval and how the Duchenne community can come together to bring new drugs to market as quickly as possible....
We are delighted to announce on World Duchenne Awareness Day (7th September 2016), that we are joining forces with Duchenne UK as a “Partner charity”, in our fight to conquer Duchenne....
We are absolutely thrilled to announce that our trio of cycling events this year has raised a staggering £50,769.00. Our trio of cycling events includes of Charnwood Forest Cycle Ride which took place in May this year raising £10,797.00, our epic London to Paris Cycle Ride event held in July raising £26,321.00 and our team of riders at this year’s Prudential Ride London raising £13,651.00....
