Early Access Programme for Givinostat
We’ve been talking about Givinostat for some time now especially at our events.This is a new drug that Alex has been on for the past 5 years, that is proving to be delaying disease progression.It’s currently going through the NICE approval process, but as with these things it’s a slow process – all while families […]
Supercars 2024
Thank you to everyone who came along and supported our Supercars event on Sunday – the day raised over £9,500. This year we had a fabulous new venue Ratcliffe College with a beautiful drive up to the venue itself. The sun was out, brilliantly showcasing some of the world’s most spectacular supercars, with Ferraris, Porsches, […]
London Marathon 2024
This year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!! This was an amazing and definitely the result of months of training that Nima has put in preparation for the big day. We were introduced to Nima through our fabulous supporters […]
Autumn Lunch
Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester. They say it takes a village to bring up a child, well it takes every one of amazing supporters […]
A busy year…
It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening. Summer of riding The summer has been mental, we’ve been busy running several fundraising events mainly cycling events and I even signed up […]
Alex’s Wish attends Health & Technology Workshop
We were delighted to attend a workshop organised by Duchenne UK this week in London. The workshop was designed to understand the Health Technology Assessment (HTA) process in England, and to give an overview of health economics and the process of new drug approval and how the Duchenne community can come together to bring new […]
Alex’s Wish joins forces with Duchenne UK as ‘Partner Charity’
We are delighted to announce on World Duchenne Awareness Day (7th September 2016), that we are joining forces with Duchenne UK as a “Partner charity”, in our fight to conquer Duchenne. Alex’s Wish will join Duchenne UK as a partner charity, to co-fund research. Alex’s Wish will remain as a strong and successful fundraising charity, […]
Trio of cycling events raises £50,769.00
We are absolutely thrilled to announce that our trio of cycling events this year has raised a staggering £50,769.00. Our trio of cycling events includes of Charnwood Forest Cycle Ride which took place in May this year raising £10,797.00, our epic London to Paris Cycle Ride event held in July raising £26,321.00 and our team […]