April 2, 2025 2:22 pm
We couldn’t believe it when Next approached us to suggest collaborating on a product to celebrate Duchenne Awareness Day! After lots of fun discussions it was decided that Next would develop boys pyjamas with racing cars on, representing Alex’s love of motor racing....
February 14, 2025 2:42 pm
Alex has been taking part in clinical trials most of his life – 9 years in fact. We are so grateful this has been the case, when Alex was diagnosed with Duchenne at 3 years old – there were no trials available for us to even consider....
February 15, 2024 4:08 pm
February is the month of LOVE, so what a perfect time to launch our HEART campaign…..
Our heart muscles need dystrophin to function efficiently....
December 4, 2023 2:52 pm
We are pleased to announce that we have funded £50,864 towards the funding of a project to drive better care for nutrition and weight management in Duchenne muscular dystrophy (DMD).The...