Latest Posts

#CTD2021

May 20, 2021 9:34 am

Today is Clinical Trials Day, the work we do at Alex’s Wish is to fund clinical trials that will hopefully one day see Duchenne cured for good! ...

DMD Hub Manager post is funded for a further 4 years

May 19, 2021 2:49 pm

Duchenne UK, alongside Alex’s Wish, is committed to the ongoing success of the DMD Hub and today announced a further four years of funding for the DMD Hub Manager role, bringing total investment in the DMD Hub to £4.3million.  ...

The Miller Partnership join Alex’s Wish Business Club

May 18, 2021 1:02 pm

Pete Miller and The Miller Partnership have joined Alex’s Wish Ethical Business Club.  The well-known tax expert has supported Alex’s Wish for a number of years from sponsoring a hole at their Annual Golf Day through to taking part in the Zip Wire Challenge organised by Glynis Wright MBE during her tenure as President of the Leicestershire Law Society....

Why we should all ‘Be More Alex’…

May 10, 2021 12:48 pm

The Pandemic hit, our events stopped overnight. Events are our main fundraising income stream. which enable us to invest in potential life-saving research....

Pure Table Top raise £1,194.60

April 28, 2021 9:40 am

The fabulous team at Pure Table Top, based in Tugby, held a sample sale over the weekend in support of Alex’s Wish....

New Ambassadors – Natalie and Stuart

April 27, 2021 9:51 am

We are so pleased to introduce you to our new Ambassador’s – Natalie and Stuart Allen. Natalie and Stuart are a proud father daughter team that specialise in property....

#BeMoreAlex Campaign

April 15, 2021 1:32 pm

We are so excited to launch our new campaign #BeMoreAlex. This campaign evolved out of working with Brand Clear as we started to feel the effects of the pandemic on our fundraising....

Conquering ‘Mont Ventoux’

April 14, 2021 8:50 am

Fiona and Jamie have completed their challenge covering 85 miles and climbing well over the height of Mont Ventoux in just over 29 hours with 9 minutes of sleep!! ...

CaptainTom100

April 6, 2021 12:36 pm

Friday 30th April 2021 would have been Captain Sir Tom Moore’s 101st birthday and the one-year anniversary of the extraordinary celebrations following the conclusion of his famous 100 laps of his garden that raised an incredible £38.9 million for the NHS....

Close to my Heart

March 14, 2021 10:05 am

Emma Hallam, Founder of Alex’s Wish and Mum to Alex, has spoken movingly about how she has discovered that as a manifesting carrier of Duchenne Muscular Dystrophy she has an increased risk of developing cardiac and skeletal muscle weaknesses and dysfunction....

Rare Disease Day

February 26, 2021 10:22 am

Rare Disease Day takes place on the last day of February each year with an objective to raise awareness about rare conditions and the impact they have on people’s lives. ...

Alex’s Wish AGM

February 23, 2021 3:37 pm

You are invited to attend our Annual General Meeting taking place via Zoom on 18th March 2021 8-9am. RSVP to Zoe Edwards – zoe@alexswish.co.uk...

Virtual Mont Ventoux

February 18, 2021 2:01 pm

The wonderful Jamie and Fi, two steadily plodding fifty somethings who enjoy the outdoors are taking on an incredible challenge. They are running 100 miles in 31 hours, incorporating the ascent equivalent of Mont Ventoux!!...

London Marathon! We have your charity place !

February 9, 2021 2:45 pm

Would you like to run the London Marathon for a cause that is close to your heart? Click below for details: London Marathon – We have your charity place!...

January 2020 Newsletter

February 1, 2021 12:50 pm

We are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year. ...

Living for Today

January 28, 2021 3:27 pm

It was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....