A recent report from a study funded by partly by Alex’s Wish, in collaboration with Duchenne UK has improved understanding of early detection of heart muscle disease in female carriers of Duchenne muscular dystrophy (DMD), paving the way for further research. ...
At Alex’s Wish – Cure Duchenne we are so grateful to Spirit Health and their support over the years. They donate to us every single month to help us conquer Duchenne....
Alex’s Wish has pledged £20,000 so far towards a £1 million grant call into treatments which will ultimately allow everyone living with Duchenne Muscular Dystrophy to receive gene therapy safely and effectively....
Supercars 2022 raises £12,120 for Alex’s Wish This year’s Alex’s Wish annual Supercars event was another resounding success, raising a wonderful £12,120 for the Leicestershire-based Duchenne charity....
We recently announced that Duchenne UK has been awarded £1.25 million from the People’s Postcode Lottery Dream Fund to develop a revolutionary mobility suit....
Italfarmaco Group Announces Positive Topline Data from Phase 3 Trial Showing Beneficial Effect of Givinostat in Patients with Duchenne Muscular Dystrophy — Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint — — Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile — — The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD — — Results were presented at the Annual PPMD Conference on June 25, 2022 — MILAN, Italy, June 25, 2022 – Italfarmaco Group announced today positive topline data from its completed Phase 3 EPIDYS trial with Givinostat, the company’s proprietary histone deacetylase (HDAC) inhibitor, in boys with Duchenne Muscular Dystrophy (DMD)....
This is great news for the Duchenne community. We would like to share this news with all of our wonderful supporters....
Intrepid motorcyclist Stan Hulme, also known as the ‘Inspired Rider’ is about to embark on a 6,000-mile Nordic solo expedition across the Scandinavian Arctic in aid of Alex’s Wish....
Wow doesn’t it feel like such a long time ago that we were all in lockdown. Spring has been a full-on fun-packed time, with birthday celebrations, charity events, clinical trial reviews, Jubilee celebrations, driving experiences, disability skiing… and that’s just the weekends!...
The birth of Gill Castle’s son changed her life forever. Not just in the fact she became a mother, but the trauma of childbirth left her with a permanent stoma, a surgery which someone in the UK undergoes every 39 minutes....
A huge well done to the winners of our Football Tournament on Saturday – DT Systems Electrical Ltd – they took the trophy 🏆 from reigning champions Hallam Read who came second....
Our 10th Charnwood Forest Cycle Ride 2022 took place on Sunday and we were so lucky with the weather. Rain was predicted and we only got sunshine, a perfect day to cycle....
We all have things that we want to hide. Secrets, embarrassing stories, a whole host of information that must be kept out of the public eye....
Recruitment business Synergy Personnel has again chosen Alex’s Wish as its Charity of The Year, unveiling an action-packed programme of fundraising events this summer and autumn....
We have welcomed three more local businesses – Synergy Personnel, Kazoo and SAS Accounting Solutions – to its Ethical Business Club....
Just like our Alex, and so many young boys in the country, eight- year-old Archie has Duchenne. Here, his Mum Sam Hurst tells trustee Tom Carter how the muscular dystrophy diagnosis changed their family’s world and inspired them to start their own charity....
We have received an encouraging update on a gene therapy research project that we helped to fund. In 2016 the charity invested £50,000 with life science company Solid Biosciences Inc in support of its IGNITE DMD clinical trial study for SGT-001 gene therapy....
When Amanda’s son Tomos-William fell forward in his shower chair, she didn’t know that, because of his DMD, he was vulnerable to certain complications. ...
In the UK today, more than 10,000 people suffer from the life-threatening lung disease cysticfibrosis – that’s one in every 2500 babies born....
Alex’s Wish seeks part-time paid admin assistant Would you like a rewarding part-time paid admin role? Well, how about working for a local organisation that’s really making a difference to people’s lives....
