Unprecedented support from our trustees
May 29, 2020 8:50 amDespite the unprecedented events of the last two months businesses are still more than happy to help charities close to their heart wherever they can. ...
Categories for Uncategorized
Living with a new normal
May 15, 2020 2:05 pmLiving a new normal is what we are hearing a lot about in the press and social media at the moment, with COVID-19 affecting our everyday lives – not being able to do things we always have....
The 2.6 Challenge
April 17, 2020 12:07 pmJoin The 2.6 Challenge from Sunday 26 April Please join The 2.6 Challenge from Sunday 26 April. It’s been created to help save the UK’s charities – 2.6 miles....
Thank You Very Much, Says Alex’s Wish
March 11, 2020 8:44 amLast week saw the annual Supporters Lunch for Leicestershire-based charity Alex’s Wish take place at the newly opened Novotel in Leicester. ...
Advice for Emergency Care:
February 5, 2020 11:37 amChildren with DMD experience the normal childhood illnesses and accidents. But, because their muscles are weaker, some things are more serious for them than other children....
Alex’s Wish invest in a new grant to help improve the success rate of clinical trials
January 30, 2020 3:24 pmPromising drugs for Duchenne Muscular Dystrophy (DMD) which are tested on animals do not always respond the same way in humans....
Alex’s Wish invests £30,000 into Edasalonexent
January 8, 2020 2:04 pmAlex’s Wish invests £30,000 into first study to examine Edasalonexent as a potential treatment for non-ambulant patients with DMD Alex’s Wish along with Duchenne UK and Joining Jack, grant US$615,056 to Catabasis Pharmaceuticals to study Edasalonexent, a new drug for DMD to be tested in non-ambulant boysThe charities approached Catabasis last year to offer funding to extend their clinical trials to the non-ambulant population Edasalonexent is a novel NF-kB inhibitor, that is being studied in patients not taking steroids....
Emma’s Autumn Update
November 29, 2019 11:31 amAs we approach the end of the year, it’s a great time to reflect on everything which has been going on. ...
Alex’s Wish Ball 2019
November 20, 2019 3:53 pmAlex’s Wish 7th Annual Charity Ball took place at The Hilton East Midlands Airport. The evening was sponsored by Next and Morgan Sindall sponsored our sparkling drinks reception....
An evening at Lumbers with Paul Karslake
November 20, 2019 11:21 amJanine Edwards Wealth Management and Antidote Art hosted a Paul Karslake Art Exhibition and dinner at Lumbers in Leicester. The evening started with a drinks reception and an opportunity to see Paul’s new collection alongside beautiful jewellery from Lumbers....
Update on Vamorolone Study
October 7, 2019 9:11 amTop Line Data of 18-month Vamorolone treatment of Duchenne Muscular Dystrophy patients shows continued improvement of symptoms with reduction in Corticosteroid safety concerns....
The Solid Suit: Wearable support for patients with Duchenne muscular dystrophy (DMD)
September 30, 2019 8:42 amDuchenne UK has made a grant of $200,000 to help support the Solid Suit program, of which Alex’s Wish funded £35,000....
Alex’s Wish Golf Day a great success
September 25, 2019 12:24 pmThank you to everyone that came along to our Golf Day and made it such a huge success. Thank you to all our sponsors – our headline sponsor Strategic Insurance, our Brunch and longest drive sponsor NEXT, our prize sponsor Brooksure Commercial Insurance Brokers – Coventry West Midlands, our Nearest the Pin Sponsor WK Construction, Refreshment Sponsors Hallam Read and our sponsors Vehicle Consulting Leicester Ltd, Executive Image, 2 New Street Chambers, Jay Webb Consultancy, PB Ross Electricals, United Carpets and Beds, Virtual Assistant Support Services, Gail Siddall, Ben’s Kitchen, Downtown Computers Ltd, Charnwood Brewery....
The sun shone again for our Charnwood Forest Cycle Ride
August 9, 2019 1:47 pmOn the 12th May The Charnwood Forest Cycle Ride sponsored by Glynis Wright & Co took place and we were lucky enough again this year for the sun to shine....
Furnley House, launch Foundation and raise £15,000 for Alex’s Wish in one evening.
June 26, 2019 2:57 pmSaturday 1st June was a spectacular evening in Leicester. Over 200 friends, family and clients of Furnley House gathered at Winstanley House on the launch night of the Furnley House Foundation....
Alex starts another Clinical Trial…
June 3, 2019 1:55 pmIt’s been a while since I last wrote an update on how things are going, so thought I would update you all on what’s happening and why we’ve been busy little bees lately....
Emma presents to Scape Group
April 11, 2019 12:33 pmYesterday Emma presented to the team at Scape Group who have chosen Alex’s Wish as their Charity of the Year. It was great opportunity to meet all the team and share our plans with them....
Alex’s Wish invests £10,000 towards a £228,562.51 grant
March 27, 2019 2:28 pmThe investment is to address the use of testosterone as a treatment for Duchenne Muscular Dystrophy. Testosterone is sometimes given to patients with Duchenne Muscular Dystrophy (DMD) who take steroids....
Supporters Thank you Lunch
March 5, 2019 11:17 amOn Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....
Mark’s Challenge
February 28, 2019 2:04 pm2,019 Miles in 2019 Mark Smith of Stephen George + Partners likes nothing better than a big challenge! 2018 saw him attempt to run from John O’Groats to Lands End raising money for local charity Alex’s Wish....