Author Archives for Emma Hallam

Supporters Thank you Lunch

March 5, 2019 11:17 am Published by Comments Off on Supporters Thank you Lunch

On Friday 1st March Alex’s Wish held their first annual supporters thank you lunch. It is a wonderful opportunity to thank all our supporters, gather them together and share with them the impact that they are having on our goal – to end Duchenne....


Mark’s Challenge

February 28, 2019 2:04 pm Published by Comments Off on Mark’s Challenge

2,019 Miles in 2019 Mark Smith of Stephen George + Partners likes nothing better than a big challenge! 2018 saw him attempt to run from John O’Groats to Lands End raising money for local charity Alex’s Wish....


Warm welcome to Heidi

February 28, 2019 1:36 pm Published by Comments Off on Warm welcome to Heidi

We are so pleased that we have a new team member Heidi Eastell who joined us at the beginning of the week on a part time basis and will assist with the charity’s events....


Update on Alex’s Trial Application

January 29, 2019 9:38 am Published by Comments Off on Update on Alex’s Trial Application

Bitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....


The Queen Victoria Arts Club Supports Alex’s Wish

January 16, 2019 8:42 am Published by Comments Off on The Queen Victoria Arts Club Supports Alex’s Wish

Leicester’s newest restaurant and private members club, the Queen Victoria Arts Club, has chosen local charity Alex’s Wish to be its charity of the year for 2019....


Alex’s Trial Update

January 10, 2019 12:13 pm Published by Comments Off on Alex’s Trial Update

Here we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...


End of Year Update from Emma

December 20, 2018 9:07 pm Published by Comments Off on End of Year Update from Emma

As 2018 comes to end, I wanted to share with you an update on how this year has gone. For a start, it’s been our best year in terms of fundraising....


Alex's Wish invests into Tamoxifen Open Label Extension Study

Alex’s Wish invests £30,000 to Tamoxifen Open Label Extension Study

December 14, 2018 10:56 am Published by Comments Off on Alex’s Wish invests £30,000 to Tamoxifen Open Label Extension Study

So pleased to let you know that we have just invested the £30,000 raised at the Mardi Gras Ball! In 2017 we funded £25,000 into a €675,000 funding towards TAMDMD, a phase 3 clinical trial to test the breast cancer drug tamoxifen for use in patients with Duchenne muscular dystrophy. ...


Charity Dinner Dance

November 2, 2018 2:12 pm Published by Comments Off on Charity Dinner Dance

On the 6th October  the Pujara Charitable Foundation (PCF) held a wonderful Dinner & Dance at The Valley Suites, Leicester.  The PCF are a local charitable foundation that raises money to help numerous local charities....


The Shimmering Masquerade Dinner

October 30, 2018 8:50 pm Published by Comments Off on The Shimmering Masquerade Dinner

The Shimmering Masquerade Dinner took place at Lumbers Jewellers in Leicester in support of local charity Alex’s Wish. The dinner was the brainchild of Janine Edwards of Janine Edwards Wealth Management – a Trustee and avid supporter of the charity....


Funding Update

October 18, 2018 2:50 pm Published by Comments Off on Funding Update

Alex’s Wish has been working with Duchenne UK to invest and fund in some very important projects over the last couple of years and here is an update of our funding....


An update from Emma

October 12, 2018 9:55 am Published by Comments Off on An update from Emma

I thought it was time I wrote a blog about what’s been happening of late. Alex continues to do well, he’s still mobile which is a wonderful thing although I do find myself constantly watching over him and checking he’s okay when we’re out and about....


New Research Project

October 8, 2018 2:02 pm Published by Comments Off on New Research Project

Duchenne UK, Joining Jack and Alex’s Wish are jointly funding £86,460 into a study to further understand the causes of heart disease in DMD. ...


Alex’s Wish 8th Golf Day

September 27, 2018 11:54 am Published by Comments Off on Alex’s Wish 8th Golf Day

Last Friday we had our 8th Annual Golf day at Rothley Park Golf Club. We would like to thank our main sponsors WK Construction and Next, our refreshment sponsors Synergy Recruitment Leicester, Longest Drive sponsor KRS Estate Planning, our hole sponsors Alex Benyon Photography, Juice Apps, Sturgess Hutchinson, Spirit Healthcare, Janine Edwards Wealth Management, PB Ross Electrical Contractors, D F Building Services, Caveney Associates and Charnwood Brewery....


The Business Elevation Show – The Magic of Fundraising

September 26, 2018 4:02 pm Published by Comments Off on The Business Elevation Show – The Magic of Fundraising

Emma was a guest on The Business Elevation Show on Voice America talking about the Magic of Fundraising. Fundraising is a fantastic way of achieving remarkable life goals with the warm knowledge of giving back to charities and those in need....


Taking on the Wolf Run

September 13, 2018 10:58 am Published by Comments Off on Taking on the Wolf Run

At the beginning of September, some of the Furnley House team completed the Wolf run in Warwickshire. There was lots of mud, some tears, lots of bruises but most importantly, a load of fun!...


Summer Sky Dive

September 11, 2018 8:36 am Published by Comments Off on Summer Sky Dive

In August Gordon Rodham and John Woolhouse jumped out of a plane at 13,000 ft to Sky Dive and raise funds for Alex’s Wish....


Morgan Sullivan Memorial Fishing

September 6, 2018 7:54 am Published by Comments Off on Morgan Sullivan Memorial Fishing

Morgan Sullivan Memorial Fishing match was held on Saturday 21st July at Hemmington Lakes, Castle Donnington This is the third year the fishing match has been held in memory of Morgan Sullivan who sadly lost his battle to Duchenne in 2015....


Marks John O’Groats to Lands End Run

August 29, 2018 8:58 am Published by Comments Off on Marks John O’Groats to Lands End Run

Our fabulous supporter Mark Smith is less than a week away from his epic challenge of running from John O’Groats to Land’s End. ...


Brian cycles to Skegness

August 5, 2018 10:23 am Published by Comments Off on Brian cycles to Skegness

Brian works at Spirit Healthcare who are supporting us this year. To raise funds for Alex’s Wish Brian took on the huge challenge of cycling to Skegness last weekend....