Tag Archive: Duchenne

Raising awareness for Duchenne

February 2, 2017 2:01 pm

Last week we had an amazing opportunity to feature Alex’s Wish on BBC East Midlands today and BBC Radio Leicester.  Victoria Hicks had approached us late last year to ask us if Alex’s Wish would like to be featured, and we agreed straight away.  ...

TIME Mortgage Experts Bake Off

November 8, 2016 11:32 am

We would like to say a massive thank you to TIME Mortgage Experts who raised money for us at their The Great TIME Bake Off – £220 raised on the day, which was then rounded up to £500!!  ...

A busy year…

October 26, 2016 9:43 am

It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....

IoD Women as Leaders Convention

October 10, 2016 10:28 am

Emma Hallam, Founder of Alex’s Wish was invited along to speak on the panel at the Institute of Directors East Midlands ‘Women as Leaders Convention‘ on Friday 7th October held at Radisson Blu Hotel, East Midlands Airport....

Alex’s Wish wins prestigious award

April 25, 2016 12:04 pm

We are thrilled and delighted to have won this year’s Leicester Mercury Business Awards Not-for-Profit category award sponsored by PLUG interiors.  ...

Yorkshire Three Peaks

September 10, 2015 2:26 pm

On August 21st some fabulous Wish Warriors – Melissa Jarman, Joanne Whomsley, Rose Stanford, Emma Hallam, Jo Enyon, Laura Storrs, Rachel Barbrook, Sam Hayman, Allison Ambrose, Catherine Jagger and Caroline Worby walked 25 miles on tracks and over hills to raise £3,000 for research and clinical trials to bring about new treatments for boys living with Duchenne Muscular Dystrophy....

Verona and Team Tortoise take on the London 10K

July 14, 2015 9:56 am

The Vitality London 10K took place this weekend on the closed roads of central London.  Alex’s Wish was represented by Verona Frankish and Team Tortoise who consisted of Lyndsey Wright, Bill South and Cyril Bekoe....

Race Night at The Rothley Court Hotel

July 2, 2015 11:03 am

Thank you to The Rothley Court Hotel for hosting a race night for Alex’s Wish.  The evening managed to raise £331.60 for our cause.  ...

Fantastic Fundraisers

June 25, 2015 11:54 am

We are so lucky to have the Apps and the Devlins riding as part of our team at the Prudential ride London and they have started their fundraising already raising over £800....

Meet Wendy & George Fielding

June 25, 2015 11:36 am

We would like to introduce you to our latest Wish Warriors Wendy Fielding and her 12 year old son George.  Wendy and George spent 5 days walking the West Highland way from Glasgow to Fort William averaging 19 miles a day to achieve this 96 mile walk.  ...

Token of Support Campaign raises £500

April 28, 2015 11:31 am

We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause....

Urgent Call to Action – Translarna

January 30, 2015 11:13 am

Patients with Duchenne Muscular Dystrophy have been specifically disadvantaged by the failure of the NHS England system to consider funding drugs for rare diseases....

Translarna Lobby

January 20, 2015 11:49 am

Alex’s Wish took part in a lobby at Westminster on Wednesday, 14th January with the aim to ensure early availability and full funding of a pioneering new treatment called Translarna....

Moment of realization

November 19, 2012 1:22 pm

Each day Alex is growing that bit older, he’s now six and half years old and for him he can’t wait until his next birthday – to be that bit bigger that bit older just like his older friends.  ...