London Marathon 2024
April 24, 2024 1:28 pmThis year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...
This year Nima Patel ran the London Marathon for Alex’s Wish – she did an epic run on the day finishing in 4hrs 25!!...
THIS YEAR annual charity music event Nottingham Hot Property is celebrating its 20th anniversary with an event BIGGER and BETTER than ever before....
We are so pleased to announce that we have successfully appointed two new Trustees to join our Board. Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....
February is the month of LOVE, so what a perfect time to launch our HEART campaign….. Our heart muscles need dystrophin to function efficiently....
We are pleased to announce that we have funded £50,864 towards the funding of a project to drive better care for nutrition and weight management in Duchenne muscular dystrophy (DMD).The...
For those that don’t know you, how would you describe yourself and your situation? I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....
Collaboration : “Alone we can do so little; together we can do so much” What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....
The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....
A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £12,000 – amazing!!...
An amazing race day took place at the Frontline Recruitment Group Grand Prix yesterday – raising £1,300! Thank you so much to everyone that cam along and took part!...
Thank you to everyone who came along and supported our Super Cars event on Sunday – the day raised just under £14,000....
Emma, our founder and Alex’s Mum had a fabulous weekend around the Kings Coronation. Emma was lucky enough to go to the King’s Coronation Concert and then just a few days later went to the King’s garden party....
Our Spring Launch took place at the Novotel in Leicester on 17th March, sponsored by Janine Edwards Wealth Management and Spirit Healthcare....
Duchenne Muscular Dystrophy is a rare disease. A condition that affects 1 in every 3,500 boys born. Alex was diagnosed with this condition shortly before his 4th birthday....
Our very own Alex Hallam will be spending a lot of time in the kitchen over the next few months. Alex has been tasked with baking nine celebratory cakes for its supporters....
Alex’s Wish has given a further £80,000 on top of the £20,000 pledged in 2022 towards a £1 million gene therapy grant call from Duchenne UK, the national Duchenne Muscular Dystrophy Charity....
Alex’s Wish has pledged £20,000 so far towards a £1 million grant call into treatments which will ultimately allow everyone living with Duchenne Muscular Dystrophy to receive gene therapy safely and effectively....
Supercars 2022 raises £12,120 for Alex’s Wish This year’s Alex’s Wish annual Supercars event was another resounding success, raising a wonderful £12,120 for the Leicestershire-based Duchenne charity....
We recently announced that Duchenne UK has been awarded £1.25 million from the People’s Postcode Lottery Dream Fund to develop a revolutionary mobility suit....
Italfarmaco Group Announces Positive Topline Data from Phase 3 Trial Showing Beneficial Effect of Givinostat in Patients with Duchenne Muscular Dystrophy — Study meets primary endpoint with secondary and exploratory endpoints showing consistency with primary endpoint — — Data reinforces previously observed safety profile for Givinostat; treatment in boys with DMD continues to show a good tolerability profile — — The company is planning to discuss the potential for marketing application submission with regulatory authorities for Givinostat in DMD — — Results were presented at the Annual PPMD Conference on June 25, 2022 — MILAN, Italy, June 25, 2022 – Italfarmaco Group announced today positive topline data from its completed Phase 3 EPIDYS trial with Givinostat, the company’s proprietary histone deacetylase (HDAC) inhibitor, in boys with Duchenne Muscular Dystrophy (DMD)....