Raising awareness for Duchenne

Last week we had an amazing opportunity to feature Alex’s Wish on BBC East Midlands today and BBC Radio Leicester.  Victoria Hicks had approached us late last year to ask us if Alex’s Wish would like to be featured, and we agreed straight away.  Being a charity raising funds and awareness for all boys this is a really effective way to spread the word, a money can’t buy opportunity.

Starting the day at BBC Leicester we had the opportunity to talk about the condition and how it effects those that have it, and about the real possibilities that are on the horizon if we can get adequate funding.  We were also featured on BBC Breakfast news, with snippets featured about the charity.

Then it was on to Alex’s school to start filming for the lunchtime and early evening East Midlands Today programmes. (All on our facebook page) It was hard to hear Alex talk about the condition and how it effects him,  we were bursting with pride at the way he approaches everything with such positivity.  East Midlands Today also produced this powerful video that summed up the day for us all.

The coverage we got was amazing and we have received such lovely feedback from people all across the East Midlands, with donations and people setting up regular donations. With East Midlands Today Evening programme having an estimated 200,000 tune in to watch meant that we were able to tell our story to a huge audience. On social media that day we got over 40,000 views of our videos with over 50,000 people reached on our Facebook page alone!  This awareness means that more people will understand the condition, our fundraising goal and how they are able to help us achieve it.

We would love to thank Victoria Hicks from East Midlands Today for giving us this opportunity, Emily Crossley from Duchenne UK for your invaluable input and Rothley Primary School for allowing us to film there.

Please look at our website to see how you can join our journey through regular giving, taking part in one of our events or organising your own fundraising challenge.