Alex’s Wish is a charity set-up to eradicate Duchenne Muscular Dystrophy. The charity was set-up in late 2012 by Alex’s parents Emma and Andy Hallam. The charity name is called after Alex their son (he’s now 10 years old) who was diagnosed with Duchenne in April 2010 when he was just 4 years old. We are a non-profit making charity registered with the Charity Commission (charity no: 1148845) with the sole aim to fund world-class science and clinical trials to bring about a cure or new treatments to help delay symptoms and to buy our boys more time.
At time of diagnosis, we were told exactly what was going to happen to Alex (by 12 years old wheelchair bound, by mid teens totally paralysed, by late teens he will suffer respiratory or heart problems that will ultimately lead to a premature death in their late teens/early twenties). Receiving this news was absolutely devastating, in fact the worst day of our lives. To know what is ahead and to know there is nothing available at present is heart-wrenching.
We simply could not sit back and wait for others to do the work. We had to get involved. We knew other charities existed but we would be limited with what we could raise without going it alone. So we decided to set-up Alex’s Wish and raise as much money as possible and as quickly as possible.
We are now truly involved in the Duchenne community. We are so passionate about raising as much money as possible so that we can get it into the hands of the best scientists from around the world who have the best shot at bringing about new treatments and one day a potential cure for all. At present, Duchenne is 100% fatal and most children will NOT live beyond their twenties. But HOPE is around the corner, we are so close to finding treatments – but this work can only continue if there is money available.
Together by working with other charities dedicating to conquering Duchenne, we have a chance – to help children and young adults by investing money into clinical trials/research and clinical trial capacity projects that have the best shot of delivering viable treatments in their lifetime. We 100% believe that better treatments to significantly improve lifespan/life expectancy is within hands reach.
All our trustees work tirelessly and are 100% voluntary. The only costs to us is for administration, general costs to run the charity and event costs which we keep to an absolute minimum ensuring your hard earned money goes directly to where it needs to go. Since launch we have raised £495K throughout hosting events and attracting local businesses and supporters to raise funds for our cause. Our goal is to raise £1m+ by 2020.