Latest Posts

First genetic cure for rare diseases!

April 28, 2015 11:41 am

New era of medicine begins as first children cured of genetic disorder The pioneering therapy offers hope to the hundreds thousands of people suffering from inherited conditions This story gives hope to boys living with Duchenne Muscular Dystrophy....

Paula Parsons runs the London Marathon

April 28, 2015 11:35 am

A massive well done to Paula Parsons one of the school mums at Alex’s Wish for completing today’s London Marathon raising over £500 for Alex’s Wish!!...

Token of Support Campaign raises £500

April 28, 2015 11:31 am

We are absolutely thrilled to hear that Alex’s Wish received the most tokens during a 6 week campaign in the stores at Oadby Co-Op receiving a fabulous £500 for our cause....

Ladies Pamper Evening success

March 10, 2015 10:54 am

Our Ladies Pamper Evening took place on Friday, 6th February at the Rothley School Rooms with 65 ladies attending raising £1,500 for Alex’s Wish....

Crazy Sky Divers raise £13,500

March 10, 2015 10:34 am

Sky Diving Wish Warriors raise £13,500 for Alex’s Wish A team of 17 took to the skies to take part in a Tandem Sky Dive on Sunday, 8th March in aid of Alex’s Wish at Langar Airfield, British Parachute School in Nottingham....

3 Crazy Challenges for my son

February 23, 2015 12:55 pm

This year I’ve decided to take on 3 Crazy Challenges to raise vital money to help save my son from having to suffer the constant progression Duchenne is having on his body....

Super media coverage

February 23, 2015 11:21 am

We would like to thank Rachel Hargraves from RDZ-PR who is donating her time to Alex’s Wish – a true Wish Warrior – to raise awareness of our cause....

$70,000 pledged to new drug

February 17, 2015 11:25 am

Yesterday, Alex’s Wish pledged $70,000 to support the next step in bringing VPB15 (a new novel anti-inflammatory steriod drug) to boys with Duchenne Muscular Dystrophy.  ...

Vigil for Translarna

February 17, 2015 10:54 am

On Wednesday, 11th February, Alex’s Wish took part in a vigil at the door of the NHS England alongside a number of Duchenne charities, families and supporters to demand access to a new ground-breaking drug Translarna.  ...

Urgent Call to Action – Translarna

January 30, 2015 11:13 am

Patients with Duchenne Muscular Dystrophy have been specifically disadvantaged by the failure of the NHS England system to consider funding drugs for rare diseases....

New Wish Warrior Rachel Hargraves

January 20, 2015 12:02 pm

We are delighted to announce that Rachel Hargraves from RDZ PR will be working with Alex’s Wish for the next 12 months....

Translarna Lobby

January 20, 2015 11:49 am

Alex’s Wish took part in a lobby at Westminster on Wednesday, 14th January with the aim to ensure early availability and full funding of a pioneering new treatment called Translarna....

Welcome 2015… January is a new fresh start!

January 4, 2015 8:15 pm

If you’re looking for a new challenge, why not join us and be an Alex’s Wish warrior! You’ll be taking on an exciting and fulfilling challenge and meeting your own personal goals whilst fundraising for a cause that will help the lives of thousands of children and young adults. ...

Thank you Jessica!

December 30, 2014 1:29 pm

Now this is a tale about one of our amazing Wish Warriors, her name is Jessica Apps.  Jessica for years had tried to fall in love with running, and finally about 2 years ago it started to click....

AMETEK Inc. donates $15,000

December 9, 2014 12:07 pm

We are absolutely thrilled to receive a cheque for £9,400 (equivalent of $15,000) this week from Nick Maddock, Marketing Communications Manager at Taylor Hobson Limited....

Thank you Claims.co.uk

December 1, 2014 12:26 pm

We are always looking for corporate support for our charity and we were lucky enough to be approached by Claims.co.uk who asked if they were able to support our charity in any way.  ...

Really Easy Fundraising……

November 24, 2014 4:44 pm

Cyber Weekend is a fabulous opportunity to raise lots of FREE donations for Alex’s Wish through Easyfundraising. Whenever you buy anything online this weekend, or anytime (e.g....

Dandelion Ball raises £23k

November 12, 2014 2:29 pm

Alex’s Wish held its annual black tie charity ball on Saturday, 1st November to raise vital funds into a rare genetic muscle-wasting condition called Duchenne Muscular Dystrophy. ...

Prudential Ride London raises £10k

November 12, 2014 1:36 pm

Despite difficult weather conditions, our 16 riders joined more than 20,000 amateur cyclists and rose to the challenge of riding an 86-mile route through London and Surrey as they took on the sportive....