January 2020 Newsletter
February 1, 2021 12:50 pmWe are coming to the end of January already, we hope that you managed to celebrate, rest and recuperate over Christmas and New Year. ...
Categories for Uncategorized
Living for Today
January 28, 2021 3:27 pmIt was literally great news to be a featured article in the Leicester Mercury, with Stan Hulme and Matt Daley’s Nordic Adventure....
Alex meets Marianela Schiava
January 20, 2021 2:38 pmThe last time that Alex visited Newcastle he was so pleased to be able to meet Marianela Schiava. Marianela is the Clinical Research Associate, a position that Alex’s Wish funded £30,000 towards, alongside Duchenne UK....
An Epic Adventure for Alex’s Wish
January 19, 2021 6:55 pmTwo intrepid Leicestershire-based adventurers will travel 5,700 miles on motorbikes in 2021 for Alex’s Wish. Travelling across England, Netherland, Germany, Sweden, Denmark, Norway and Finland, their trip will take them up to the North Cape in Norway – Europe’s most northerly point accessible by car (or, in this case, motorbikes) – where they will visit the poignant Children of the World monument....
Thank you to Property Fox
December 22, 2020 11:21 amA huge thank you to Property Fox for a lovely Christmas surprise. John and Emma Ghent, Directors at The Property Fox presented a cheque for £500 to Alex’s Wish as well as two other local charities. ...
Alex’s Wish Hug in a Mug
December 8, 2020 12:38 pmAlex’s Wish have had these uniquely designed mugs by Pure Table Top that will be perfect for gifts for friends, family....
Embracing CSR….
November 5, 2020 10:50 amAt this year’s Leicester Business Festival, Emma Hallam, Founder of Alex’s Wish spoke alongside Stefan Fura, MD of Furnley House about how effective CSR can truly bring great value both of organisations (small, medium and large alike), charities like Alex’s Wish and the local community....
Alex’s Wish has been short listed for this year’s IoD East Midlands Director of the Year Awards 2020
October 26, 2020 1:23 pmSo wonderful to hear we’ve been nominated for this prestigous award and now made it through to the finalists list for the Social Impact and Sustainability Award....
Testosterone shows improvements in Duchenne care…
October 26, 2020 1:11 pmAlex is taking testosterone supplements, so this is such great news to hear… This week, the results of the ‘Testosterone in DMD’ study were published in the European Journal of Endocrinology....
Foxes Foundation selects two children’s charity partners
October 22, 2020 1:20 pmWe are so honoured that Alex’s Wish will benefit from a new partnership with Leicestershire County Cricket Club (LCCC) as the club revives its Foundation....
Update on Solid Ignite DMD
October 2, 2020 5:34 pmWe are absolutely delighted to hear the news that the FDA has lifted the SOLID IGNITE DMD Phase 1/11 Gene Therapy Clinical Trial which had been put on hold due to a serious adverse event with a child taking part in the trial....
Emma’s Summer Blog
September 29, 2020 9:10 amWell what a crazy year it’s been for us all, but pleased to finally have Alex and Isla back at school again learning and seeing their friends – for one thing it means I can actually get my head down and do lots of work on the charity, but also keep my fridge stocked up for a while… oh and finally get my nails and hair done....
Ben’s Kitchen’s supports the NHS and raises money for Alex’s Wish
September 28, 2020 9:44 amLocal business, Ben’s Kitchen based at Forest Hill Golf club, adapted to lockdown by preparing and delivering delicious Sunday Dinners to customers both new and old. ...
Morgan Sullivan Memorial Fishing Match 2020
September 24, 2020 10:36 amIn June the annual Morgan Sullivan Memorial Fishing Match had to be postponed due to Covid. However they did manage to put together a last minute event last weekend, there were 25 people fishing and a raffle of fishing prizes and they managed to raise £600 for Alex’s Wish....
Coast to Coast Ride Raises over £10,000!!
September 17, 2020 1:12 pmWith many charity fundraisers cancelled due to COVID-19 one group of intrepid cyclists have just completed a Coast to Coast cycle ride for Alex’s Wish....
Wellbeing4Life organises a 12-hour Wellbeing-a-thon!
August 10, 2020 10:20 amOn Saturday, 26th September 2020 – the fabulous ladies Elain Crew and Sharon De Caestecker at Wellbeing4life are organising a 12-hour Wellbeing-a-thon to help raise money for Alex’s Wish This fabulous 12-hour event is aimed at everyone looking to improve their wellbeing, it’s designed to give you lots of wellbeing tips, healthy recipies and get you trying lots of different activities for just £20 donation to Alex’s Wish....
Action Coach in Hinckley supports Alex’s Wish through their Book Club
August 3, 2020 10:52 amEd Cooper is an Business Coach and one of the commitments he made to himself in 2020 is to help business owners in his local community to gain the skills, confidence and beliefs that they need to get their already GOOD businesses to GREAT! ...
Netmetix continues support
June 12, 2020 7:53 amNetmetix Continues to Lend Support to Alex’s Wish Coventry-based Netmetix has pledged to continue supporting Midlands-based charity, Alex’s Wish, whose mission is to find treatments and – ultimately – a cure for Duchenne Muscular Dystrophy a life limiting muscle-wasting disease affecting 1 in every 3,500 boys born in the UK. ...
Emma’s blog – freedom!!
June 8, 2020 8:57 amDear supporters, I hope you are keeping well and sane during these times. It feels like such a long time ago when we were able to be out and about seeing our supporters at our events, but hopefully we’ll all be able to see each other again soon....
Tour de Alex’s Wish launches, our latest virtual cycling event
May 29, 2020 8:57 amWe would love you to join us & take part in the Tour de Alex’s Wish. Pick your distance and complete your ride at your own leisure, wherever and whenever you would like, do it in one or spread it out over a number of rides....