Categories for Blog

Update on Alex’s Trial Application

January 29, 2019 9:38 am

Bitter Sweet Trial News I wrote a blog recently about our trip to Newcastle to see if we could get Alex onto a new clinical trial....

Alex’s Trial Update

January 10, 2019 12:13 pm

Here we go again… Just back from a two-day trip to Newcastle Royal Infirmary to see if we can get Alex onto a new clinical trial specifically looking at reducing inflammation in his muscles which in turn will hopefully make his muscles healthier and more productive, back again in two weeks when we’ll find out if he’s eligible!!...

Emma’s blog

March 12, 2018 2:14 pm

It’s been a long time since I wrote a blog, I thought it time to put things into words on what’s been going on....

A busy year…

October 26, 2016 9:43 am

It’s been a while since I last wrote a blog, there’s lots been going on so I thought now would be a good time to update our supporters on what’s been happening....

A week full of mixed emotions

April 25, 2016 12:43 pm

What a week it has been! The emotions I’ve felt this week has been unbelievable. Alex took part in a film on Monday, I can’t tell you anything now but what I can say is that he was incredible and everyone on set fell in love with him....

Looking forward to 2014

March 5, 2014 2:11 pm

What an astonishing year 2013 was – through our amazing supporters we raised £100,000 for research into Duchenne Muscular Dystrophy. For now Alex is doing well....

Alex Hallam

What a successful first year…

October 1, 2013 11:10 am

Alex’s Wish has been up and running for a year now – and what a year it has been! To date, we have raised over £60,000 to be invested in new clinical trials and research projects to help all children living with Duchenne....

So much to be grateful for

November 29, 2012 2:07 pm

I’ve had a fantastic week – busy, productive and hugely positive! We have so many events scheduled for the next 7 months....

Moment of realization

November 19, 2012 1:22 pm

Each day Alex is growing that bit older, he’s now six and half years old and for him he can’t wait until his next birthday – to be that bit bigger that bit older just like his older friends.  ...

Looking ahead

July 16, 2012 7:50 pm

It has been a very difficult couple of years, getting our heads around our new and uncertain future. It’s almost been a period of mourning for the future we thought was in store for our beautiful little boy....