Fashion & Fizz
June 27, 2023 4:30 pm Comments Off on Fashion & FizzWe are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...
Author Archives for Emma Hallam
An Evening with Nigel Owens
June 27, 2023 11:18 am Comments Off on An Evening with Nigel OwensElla Amy Stiles, one of the fabulous Miss Great Britain finalists put on a An Evening with Nigel Owens at Aylesbury Rugby Football Club....
Mancave Football Tournament
June 19, 2023 2:55 pm Comments Off on Mancave Football TournamentMancave Men’s Barbers based on Leicester Road in Wigston put on a Football Tournament to raise money for Alex’s Wish. Taking place at Beauchamp College, the day was very competitive, with a knockout rounds and ending in the big final!...
Right Royal Weekend!
June 19, 2023 2:36 pm Comments Off on Right Royal Weekend!Emma, our founder and Alex’s Mum had a fabulous weekend around the Kings Coronation. Emma was lucky enough to go to the King’s Coronation Concert and then just a few days later went to the King’s garden party....
Next stage of revolutionary SMART Suit project gets £50,000 boost from The Brothers Trust
May 11, 2023 11:26 am Comments Off on Next stage of revolutionary SMART Suit project gets £50,000 boost from The Brothers TrustThe revolutionary SMART Suit project supported by Leicestershire Duchenne charity Alex’s Wish, has received a further boost with The Brothers Trust donating £50,000 towards the next stage of development....
Alex helps road test revolutionary SMART Suit prototype on ITV Central News
March 22, 2023 9:15 am Comments Off on Alex helps road test revolutionary SMART Suit prototype on ITV Central NewsAlex Hallam has become one of the first people in the country to road test the prototype of a revolutionary mobility suit....
Alex’s Wish Spring Launch 2023
March 20, 2023 1:47 pm Comments Off on Alex’s Wish Spring Launch 2023Our Spring Launch took place at the Novotel in Leicester on 17th March, sponsored by Janine Edwards Wealth Management and Spirit Healthcare....
Today, 28th February marks #RareDiseaseDay.
February 28, 2023 9:43 am Comments Off on Today, 28th February marks #RareDiseaseDay.Duchenne Muscular Dystrophy is a rare disease. A condition that affects 1 in every 3,500 boys born. Alex was diagnosed with this condition shortly before his 4th birthday....
Fundraising baking challenge is a piece of cake for Alex
February 23, 2023 2:56 pm Comments Off on Fundraising baking challenge is a piece of cake for AlexOur very own Alex Hallam will be spending a lot of time in the kitchen over the next few months. Alex has been tasked with baking nine celebratory cakes for its supporters....
Alex’s Wish gives £100,000 to Duchenne UK’s Gene Therapy Grant Call
February 21, 2023 4:05 pm Comments Off on Alex’s Wish gives £100,000 to Duchenne UK’s Gene Therapy Grant CallAlex’s Wish has given a further £80,000 on top of the £20,000 pledged in 2022 towards a £1 million gene therapy grant call from Duchenne UK, the national Duchenne Muscular Dystrophy Charity....
Beautiful inside and out: Miss GB finalists to support Alex’s Wish for fourth successive year
February 3, 2023 2:53 pm Comments Off on Beautiful inside and out: Miss GB finalists to support Alex’s Wish for fourth successive yearGreat news. The lovely Miss Great Britain girls will be supporting Alex’s Wish as one of their two chosen charities for the fourth year running....
2023 Events
January 25, 2023 10:33 am Comments Off on 2023 EventsWe are so excited to be unveiling a thrilling line up of events in 2023 June 11 sees the return of Supercars in the stunning grounds of Whatton House....
Alex’s annual bone density scan – what is this and why is it important?
January 9, 2023 2:00 pm Comments Off on Alex’s annual bone density scan – what is this and why is it important?Each year, Alex attends an annual Bone Density scan (also known as DEXA for short) to check his bone health. Alex has Duchenne Muscular Dystrophy, and for someone who has been taking steriods since he was 4 years old, looking after his bone health is very important....
The DMD Hub – and gene therapy trials
November 24, 2022 10:15 am Comments Off on The DMD Hub – and gene therapy trialsThe first boy in the UK to participate in Sarepta’s DMD gene therapy trial enjoyed a starring role in a presentation at the Action Duchenne conference last week....
10th Anniversary Celebratory Ball raises £26.5K
November 22, 2022 3:58 pm Comments Off on 10th Anniversary Celebratory Ball raises £26.5KWow. Just wow. We’ve only gone and raised a staggering £26,500 at our 10th Celebratory Birthday Ball on Saturday night after all costs!!!...
With Love, Steph 💕
October 18, 2022 2:56 pm Comments Off on With Love, Steph 💕A truly heartfelt thank you, from all of us at Alex’s Wish, we are so thrilled and so grateful to have the love and support from With Love, Steph 💕 With Love, Steph 💕 are an inspirational charity with a team who are truly committed to making the world a brighter place, for disadvantaged children and children’s charities....
Alex’s Wish gives £65,000 funding towards innovative DREAM Wheelchair Project
October 11, 2022 2:55 pm Comments Off on Alex’s Wish gives £65,000 funding towards innovative DREAM Wheelchair ProjectAlex’s Wish has made a sizable contribution to an exciting new project which could help transform the lives of young wheelchair users....
Our 10th Anniversary Supporters Lunch
October 11, 2022 1:57 pm Comments Off on Our 10th Anniversary Supporters LunchWhat an incredible afternoon we had on Friday, 7th October at our Alex’s Wish Annual Supporters Lunch celebrating our 10th Anniversary at The Novotel Hotel in Leicester....
Golf Day 2022
September 26, 2022 2:54 pm Comments Off on Golf Day 2022Thursday 22nd September saw our 11th Alex’s Wish Charity Golf Day which took place at The Rothley Park Golf Course! We had such an amazing turn out and were lucky with the weather again, with just a brief shower....
Study paves the way for improved detection of heart disease in female carriers of DMD
September 7, 2022 1:56 pm Comments Off on Study paves the way for improved detection of heart disease in female carriers of DMDA recent report from a study funded by partly by Alex’s Wish, in collaboration with Duchenne UK has improved understanding of early detection of heart muscle disease in female carriers of Duchenne muscular dystrophy (DMD), paving the way for further research. ...