April 12, 2024 10:22 amPublished by Emma HallamComments Off on Two new Trustees join the Board at Alex’s Wish.
We are so pleased to announce that we have successfully appointed two new Trustees to join our Board.
Dr Aishah Iqbal and William Hazlerigg join their fellow Trustees from the 1st of April....
March 2, 2024 8:38 pmPublished by Emma HallamComments Off on Sunday Spotlight – Marie Ellis
Last week we had an incredibly interesting time talking to Marie Ellis from Elite Account Services about the ‘mountains’ she has had to climb over the last couple of years....
January 31, 2024 1:08 pmPublished by Emma HallamComments Off on We’re pleased to announce the appointment of Dr Laurie Cave and Vasiliki Ioannidou to our diet and nutrition project
The project, which is led by Dr Jarod Wong, consultant paediatric endocrinologist at the Royal Hospital for Children, Glasgow, aims to increase understanding of diet and nutritional needs in people with Duchenne muscular dystrophy (DMD) so that guidance and resources can be developed....
January 16, 2024 8:34 amPublished by Emma HallamComments Off on Breaking News – First Treatment for ALL patients gets approved in the UK
We are delighted to welcome the news that the Medicines and Healthcare products Regulatory Agency (MHRA) has approved vamorolone (sold under the brand name Agamree) for the treatment of Duchenne muscular dystrophy (DMD) in patients aged 4 years and older.This...
December 4, 2023 2:52 pmPublished by Emma HallamComments Off on Alex’s Wish invests into a new project to improve diet and nutrition for people with DMD
We are pleased to announce that we have funded £50,864 towards the funding of a project to drive better care for nutrition and weight management in Duchenne muscular dystrophy (DMD).The...
November 29, 2023 1:01 pmPublished by Emma HallamComments Off on Our Christmas Campaign
This year our Christmas Campaign is all about the Heart. Heart failure continues to be the main cause of death in Duchenne, we have recently had boys that have lost their lives at just 15....
November 22, 2023 9:28 amPublished by Emma HallamComments Off on Our Boogie Nights Ball Photo’s
Thank you Steven Havers – here are the fantastic photo’s from our Boogie Nights Ball 2023 – if you would like a print of any photo please see all the prices and details here www.haversbusinessphotography.com...
October 27, 2023 11:09 amPublished by Emma HallamComments Off on Sunday Spotlight – Meet ‘Team Swepstone’
For those that don’t know you, how would you describe yourself and your situation?
I was diagnosed with Meniere’s Disease 20 years ago, and over that time have had to deal with violent vertigo attacks and progressive hearing loss in both ears....
October 14, 2023 11:02 amPublished by Emma HallamComments Off on Great news for the Duchenne Community
EMA recommends approval of first ever treatment for all DMD patients
Today The European Medicines Agency (EMA) has recommended the approval of Vamorolone, the first ever treatment for all patients with Duchenne muscular dystrophy (DMD)....
October 12, 2023 11:22 amPublished by Emma HallamComments Off on Autumn Lunch
Collaboration : “Alone we can do so little; together we can do so much”
What an incredible afternoon we had on Friday, 6th October at our Alex’s Wish Annual Autumn Lunch at The Novotel Hotel in Leicester....
October 2, 2023 12:18 pmPublished by Emma HallamComments Off on Our fantastic Miss Great Britain’s
The support shown for Alex’s Wish by the Miss Great Britain, Ms Great Britain and Ms Great Britain Classic finalists clearly shows that their beauty extends far beyond good looks....
September 25, 2023 4:04 pmPublished by Emma HallamComments Off on Golf Day 2023 raises over £12,000
A huge thanks to everyone that came along to support Alex’s Wish Golf Day! What a great day – fabulous sunshine with a teeny tiny amount of rain, great company and we raised over £12,000 – amazing!!...
August 31, 2023 2:29 pmPublished by Emma HallamComments Off on Fabulous FrontlineFormula 1 Event
An amazing race day took place at the Frontline Recruitment Group Grand Prix yesterday – raising £1,300! Thank you so much to everyone that cam along and took part!...
July 5, 2023 5:28 amPublished by Emma HallamComments Off on Charity Football Tournament raises £3,763.81!
What a fabulous day we had at our Charity Football Tournament on Saturday, 1st July.
We would like to say a huge thank you to Astill Planning and Ryan Astill for organising a hugely successful day, yet again – we are now in our 3rd year running....
June 27, 2023 4:30 pmPublished by Emma HallamComments Off on Fashion & Fizz
We are so pleased to announce that the joint Fashion show hosted by DC Boutique together with The Bodie Hodges Foundation and Hope Against Cancer raised a fantastic £3,269.22!!...